Help Hope Live for Ashley Martucci
When Ashley was 12 years old she was diagnosed with an ultra-rare and disabling disease, Fibrodysplasia Ossificans Progressiva (FOP). The disease progressively turns muscle and ligaments into bone preventing or limiting mobility and functionality in the person. Currently there is no cure for this disease.
Updates (1)
March 4, 2025
Thank you for your continued support! Progression of the FOP has created new challenges for Ashley. Despite these challenges we are excited to report that Ashley graduated college in December on the Dean's list. She is also has been accepted to a Master's Program in Library Sciences which will commence in the fall.The construction to make our home more accessible is also progressing. Architectural plans have been drawn, a contractor retained and construction scheduled to begin this spring. In addition, a wheelchair ramp has been installed allowing wheelchair access from the driveway to the house which has been a blessing. Other smaller modifications have also been made as we continue to look for ways to make Ashley's environment safer and more accessible.
