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Hi Everyone,
My name is Traci, I am a mother, daughter, sister, aunt, friend, and coworker.
I was a foster parent for about 5 years and during that time I had the privilege of caring for quite a few amazing little people. I picked up my last foster child at the hospital when he was 48 hours old. After years of waiting, the fates decreed that he was “the one” and his adoption was finalized in 2013. He is the light of my life, the warmth in my heart, along with my daily frustration. I wouldn’t trade a moment of any of that. I miss taking daily walks around the neighborhood, trips to the pumpkin patch, visits to the railroad museums and all the fun things we used to do together. My lung disease has impacted my daily living to the point I can’t do any of these things anymore. I am on oxygen 24/7 and really only leave home when I have to and rarely for anything fun.
To say that my life has been an adventure is pure truth, and I have truly been blessed. When I was born my right lung collapsed. I spent most of my childhood in and out of hospitals, yet still managed to have a somewhat “normal-ish” life until a couple years ago. I have Primary Ciliary Dyskinesia (PCD). The short of it is, I don’t have the hair-like fibers in my lungs to sweep out all the crud that is in the air that we breathe. PCD is a progressive disease and as I have gotten older, the disease has now progressed to the point that I need a double lung transplant.
Unfortunately, Kansas City does not have a lung transplant center; the closest one is 4 hours away in St. Louis. Once I am ready to be listed, I will need to re-locate to St. Louis, along with my mom & my 11-year-old son and live there for at least 6 months for me to have this life saving transplant. The funds raised will help with out-of-pocket expenses, transportation, and lodging while we are in St. Louis for those 6 months.
I have started a fundraiser through Help Hope Live (https://helphopelive.org/campaign/23079/) to assist with these expenses. Please consider giving a tax-deductible donation. Together we will help me get back to my life so I can do all the things I enjoy like trainspotting and other adventures with my son Logan, traveling, volunteering with Habitat for Humanity, hanging out with family & friends, and living life to the fullest! Thank you for reading my story. I truly appreciate your time and consideration.
Hi All – I hope you had a wonderful and blessed holiday season, no matter how you celebrate. I wanted to give you all a quick update.
The week before Christmas, I went to St. Louis for some pre-transplant testing, to see if I was ready to be put on the list. After 4 days of intense poking, prodding, scanning and other tests, they have decided that I am indeed finally “sick enough” to list!
I will have to return to St. Louis one more time for what they call “Pink Heart Day”, before they will officially put me on the list. They want me to meet with the pharmacist, surgeon, researcher, do some more breathing tests and some antibody labs. It is my understanding that once these are done, I will be ready to list.
Once I’m on the list, I can get the call any time, day, or night. Once that call comes, it will kick off a flurry of activity, as I will need to get to St. Louis within 5-6 hours.
I will endeavor to keep everyone updated with the latest information as I can. Wish me luck & I will wish upon you a joyful and peaceful new year.
Traci
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Thinking of you all
Kathlyn Brooks
A fellow PCD girl from Overland Park, KS and boy mom - sending you ❤️
Evan Barker
Traci, I'm praying for you and keeping you and your family lifted up in prayer. I'm asking God for your total healing and restoration, keeping in mind that... we are because "GOD is"! HE is everything that we need and more! HE's got you!
Your co-worker and teammate, Pat W.
Patricia Washington
You are a wonderful mother, friend and coworker. You are truly an inspiration to everyone around you! Praying for you and your medical team and for the donor family as well. Sending hugs and love on your journey to recovery. XXOO
Kelley Harris
Traci,
You are an amazing mother and a strong woman. You are such an inspiration to everyone. My thoughts and prayers are with you and your family during this journey of healing.
Mary Lynne McIntyre
You, your mom and Logan are such special people. You constantly teach Owen and I about love and life from four hours away. I can’t imagine the amount of people you’ve touched where you live and beyond. We’re thinking of you and the call that’s coming to change your life.
Rebecca Boston
My prayers are with you and your family.
Anonymous
Wishing you good luck and good health!
Peter Ludwig
Sending love!
Grace Woessner
Traci, I have always admired your positive, can-do attitude and generous heart. I know the path ahead will demand a lot from you, but I am confident that you are up to the challenge.
Wishing you a smooth and successful transplant, a speedy recovery, and a future filled with renewed health and happiness.
All the best,
Jeanne Harris
Jeanne Harris
You have fought long and hard! Hopefully the end is in sight, and soon you will be able to breathe and walk and play again. We will be cheering for you!
Judi and Emmett Kraus
Judi and Emmett Kraus
<3
Kelsey Will
You are truly one of the bravest people I have ever met. You face so many challenges yet you are rarely negative and are such a pleasure to work with and be around. Hugs my friend!!
Sherri Hamilton
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Traci Glynne Higbee
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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