Help Hope Live for Sylvan Desocio

Help Sylvan Enjoy Family Time!Sylvan was born in 2018. Almost immediately, it became apparent that he struggled to meet milestones. After an MRI (and just a touch of waiting), Sylvan was diagnosed with two conditions. The first and most life-altering is polyimicrogyria. That means, “many folds in the brain”. His brain was formed differently, and it affects every part of his life. PMG looks a lot like cerebral palsy. He will need full care for all of his life – with eating, moving, and playing.Sylvan also has DiGeorge Syndrome, which is a chromosome deletion. It can affect hearing, cause heart conditions, and facial asymmetry. It can also, every once in a while, cause PMG.We believe that Sylvan was wonderfully made by a God who loves him and us. We are grateful for him and how he adds to our family. He has drawn us closer to each other and helped us to slow down and be present with each other and in the world.We also have extra financial needs that come naturally with caregiving. The first is an accessible car. A car that Sylvan can easily and safely enter by wheelchair would open up our ability to travel. It will create a way for Sylvan to travel in comfort as he is growing out of his car seat. It will help the DeSocios “be together” better!Here’s some info about Help Hope Live:Family and friends of Sylvan DeSocio are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Illness.Sylvan has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.For more information, please contact Help Hope Live at 800.642.8399.Thank you for your support!