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Acaiyah is a beautiful 9 year old girl in third grade. Around her 7th birthday we noticed she had severe scoliosis, seemingly out of nowhere. This led to visits with different specialists with several tests and MRIs, leading to her diagnosis of Chiari Malformation Type I. A far less invasive surgery with far less side effects is available in Barcelona, Spain and cash is the only option for payment since it is outside of the USA.
Acaiyah is full of life and curiosity. She is very competitive and loves to play a wide variety of games and make jokes. She enjoys trying new foods and loves getting in the pool. She is on her school’s dance team and also in the coding club! She loves to help her mom and dad with simple tasks and is a great helper at school, too.
Since her Chiari diagnosis, she has been unable to play any sports (she wants to play sports SO BAD). She is limited in what she can do physically for P.E. at school. On any given day she pushes herself a little too hard, her symptoms arise quickly and painfully. Her most frequent symptoms are: Tingling, zapping, or numbness (“dead feeling” according to Acaiyah) of her limbs, back pain, neck pain, and vision anomalies. She also suffers from a lack of muscle growth, most noticeable on her right leg. When she tries to run, she quickly develops a limp.
We are raising funds for Acaiyah’s surgery and our travel expenses in Barcelona, Spain. We are also raising funds for physical therapy and other treatments that will follow surgery, including a one year check up with the institute in Barcelona. We are aiming to raise $50,000 to cover these expenses over the next year.
Acaiyah would be able to start physical therapy to correct her scoliosis and build muscle where it is currently underdeveloped. She would also gain the freedom to start playing sports and live the active lifestyle which she yearns for so deeply! Her symptoms will either be reduced significantly or be eliminated entirely!
Please donate to Help Hope Live in Acaiyah’s honor today, and ask your friends and family
to give, too! We would love to plan some fundraisers in Acaiyah’s honor, too, so if you can
help with that, please contact us at [email protected]. Thank you for
your generous support!
Family and friends of Acaiyah Dandridge are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Illness.
Acaiyah has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Hi friends and family!
Acaiyah had a follow up with her neurosurgeon in Houston last week. He said he is impressed with Acaiyah's strength, coordination, and mobility. However, he is concerned with the increasing frequency and severity of her symptoms. He also expressed concern about the muscle atrophy on the right side of her body.
Dr. ordered for a new round of imaging to be done, including full spine and brain MRIs, with and without contrast, and a full spine X-Ray. We were able to get the X-ray done the same day of the follow up. We added a photo that has a comparison of her Spine in 2022 (left) vs her spine now (right). She has "Convex Scoliosis."
2022 Scoliosis measurements:
Upper spine Cobb angle: 33 degrees
Lower spine Cobb angle: 11 degrees
Current measurements:
Upper spine Cobb angle: 30 degrees
Lower spine Cobb angle: 21 degrees
So, minimal change on the top end of her spine but a significant increase in the on the bottom of her spine.
The MRIs are scheduled for April 8th so we will definitely post more updates on that day.
Thank you all for your prayers and support!! Please consider sharing her fundraising page if you haven't already and/or making a donation! As a reminder, all donations are a 100% tax deduction on a personal and/or business level.
God bless
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From a friend at the Boerne Sunday night club… I wish you and your daughter the best.
Anonymous
1 John 4:19 "We love because he first loved us."
Anonymous
The Contact Mission Church of Christ is continuously praying for Acaiyahand the rest of the Dandridge family. May God bless you in this battle.
Contact Mission Church of Christ
Prayers for your sweet daughter. May the Lord bless her with perfect healing. Prayers for strength. In Jesus name.
~Mary Brown
Mary Brown
We love you, Acaiyah!
Rosemary Kriegel
Praying for you all. Keep the Faith and Keep it Strong!
Mandy Jones
Praying that God provides for this opportunity and for healing for Acaiyah!
Ashley Tran
Acaiyah, We are so thankful for you. You are so kind, humble, optimistic, encouraging, welcoming, beautiful, and intelligent. God is with you every step of the way on your path to healing. We are praying for you.
Amanda Stubblefield
Wishing you all the best in Spain. Prayers for your complete healing and for the drs to work masterfully on this for you. Prayers for peace and comfort for you and your family.
Lyndsey Knight
Prayers for God’s healing and grace. He will comfort you and not forsake you. Hugs to your sweet baby girl!
Mary Brown
I met Eric at the BISD Back to School Resource Rally. I spoke "truth" and stated that God has gone ahead and prepared the way for Acaiyah Dandridge successful surgery. Philippians 4:6-7 thanking God for His "perfect" provision, protection & healing for Acaiyah. BELIEVE and thank God daily!
Dawn Renee Bernhard
God bless you!!
Anonymous
As parents ourselves, our hearts hurt for this beautiful young girl. We pray that others will also donate what they can, like we have, to help reach the goal needed for this surgery. Our prayers are said for you Acaiyah, and your parents, and your whole care-team!
Ronald Murphy
Boerne is cheering for you, Acaiyah! What a beautiful name. I'll be praying for recovery for you, God's guidance for your surgeon, and peace for your parents and Beau.
Anonymous
Hi, Acaiyah! Four of my great-grandchildren go to Fabra with you, but you\'re a grade ahead of my oldest, Alex Dolan. I will be praying for your surgeon in Barcelona, for your complete recovery, and for your parents and Beau. You are beautiful, and I love your pic in cheerleading clothes!
Cindy Brockwell
Praying for Aciayah and her medical team.
Julie and Bob Slaughter
Praying for a complete healing for Acaiyah! The Tanners
David and Sarah Tanner
Acaiyah,
Our hearts and prayers go out to you for a total healing of your illness. Stay positive and know that hope is real and can definitely heal. Keep hope alive in your heart and the prayers of your parents will do the rest. Blessings to you.
Bob & Jeanne Stinziano
Bob Stinziano
Hey there Acaiyah! Chiari Malformation Type I just means your brain is special good, and that you have the best parents ever who will always be there to take good care of you.
Albert Ayala
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Acaiyah Dandridge
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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