Surgery for Mom!

My name is CrumbleBody and eight years ago, my life took an unexpected turn when I was diagnosed with Ehlers-Danlos Syndrome (EDS), a rare genetic condition that has profoundly impacted my health and well-being.
For those who know me, call me a fighter. Despite facing constant pain and numerous medical challenges, I’ve dedicated myself to supporting others with EDS, tirelessly advocating for myself during countless doctor’s appointments and hospital visits. However, the toll on my body has been immense as EDS affects your entire body.

One of the most debilitating aspects of my condition is my Tethered Spinal Cord, which has caused me to experience nine episodes of partial paralysis in the past few years alone. Each time, I lose the ability to stand and walk for days on end, enduring excruciating pain and fearing the next episode.

The only hope for me to regain my mobility and prevent further paralysis is through specialized surgeries. However, my state insurance doesn’t cover the procedure, deeming it non-essential. As a result, I have been unable to access the care I desperately need.

My medical team has stressed the urgency of these surgeries, emphasizing that delaying treatment further could have devastating consequences for my health. With each passing day, my condition worsens, and the window of opportunity for intervention narrows. I have already waited three years for surgery but considering the current physical damage, the urgency is ever so real and I refuse to let financial barriers stand in the way of my chance for a better life.

That’s why I am turning to you, my community, for support. I need to travel to another state, where two skilled EDS neurosurgeons will perform the necessary surgeries to release my Tethered Spinal Cord and address other spinal damage.

I know that $80,000 is a big ask and a goal that I need to make within a few short months but I wouldn’t be asking for your help to raise the funds needed for my surgeries and post-operative care, if I didn’t have faith in the goodness of your hearts. Your contribution, no matter the size, will make a tangible difference in my life and the lives of my two young children.

Even though I have struggled with this debilitating medical condition, I continue to be a caring and loving parent to my children. My local care team would vouch that I have never let my medical condition impair my ability to be a present mom who is involved in every aspect of their daily lives. These surgeries will help me be an even better parent!

Together, let’s hope for a brighter future—one where I can move without pain, walk without fear, and enjoy precious moments with my family. Your generosity will not only change my life but also remind me that I’m not alone in this journey.

Thank you from the bottom of my heart for your compassion and support.

With gratitude,

CrumbleBody G.

Family and friends of CrumbleBody G are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Illness.

CrumbleBody has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.

For more information, please contact Help Hope Live at 800.642.8399.

Thank you for your support!