Fundraiser Details:

In August 2022 my daughter, Rylee, was diagnosed with nephronophthisis- a rare genetic disorder affecting her kidney function. Over the past 2 years, she has completed many tests and has been monitored closely by her nephrologist. Due to her kidney function being low, we were informed very early on that a kidney transplant would be needed in the near future. Shortly after we started the search for a kidney donor for Rylee, my niece, Hannah, was found to be a perfect match. This is so meaningful to our family because Rylee and Hannah have a relationship that is much closer to sisters than cousins and they have been attached at the hip since birth.

Once a donor was found for Rylee, we quickly needed to begin the process of getting the surgery scheduled due to Rylee’s declining kidney function. Her kidney function has been stable for approximately a month now at 12, but is expected to drop to 8-9 prior to receiving the transplant in June. Thankfully Rylee will not need to start dialysis prior to her surgery since this is scheduled for the near future.