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In December 2020 Tricia suffered a severe allergic reaction to azithromycin. Unbeknownst to her, she had an underlying condition of COPD. The doctors had a difficult time getting the allergic reaction under control. She suffered respiratory failure. After speaking to her family, the doctors decided to put her in a medically induced coma. She was in the coma for 4 days. It took doctors 2 attempts to pull her out of the coma. Once cognizant, she learned her lungs were failing her and she was end stage. Since then she has been on oxygen 24/7. She was told she needed a double lung transplant. Once released from the hospital early 2021, she began the process and underwent a battery of tests for the transplant. Upon speaking with the doctors, and in an effort to try and postpone the transplant, Tricia received 2 zephyr valves in her upper left lobe at PennMed/ HUP in April, 2022. She suffered a painful pneumothorax upon waking and needed a drainage tube inserted for a few days. We were all hopeful that when the right lung was ready, she could get the valves in the right lung as well. As her health started declining further and after more tests, it was determined that her right lung was not ready. And it is time to go back into the transplant program. She is now undergoing all of the tests for the double lung transplant again. Meanwhile, her health is continuing to decline. It is a huge task to get these tests done. She will have to rely heavily on her family. In April 2024 her sister and mother took her and stayed a week in Philadelphia to have many of the tests done at PennMed. The day she was to leave for Philly she ended up in the E.R. again! Not deterred by this, once her breathing was stabilized and vitals were good, the understanding doctors released her, she got her prescriptions, and they drove her overnight to Philly. She is currently finishing the last remaining local tests requested by the doctors. Once her last few tests are finished her case will be presented to a multidisciplinary team of doctors and she will be listed. Post surgery she will have to stay in a transplant recovery house (or a local hotel if housing is not available) for up to 6 months in Philadelphia while recovering. This is a requirement of the hospital. The first months are critical. She is required to have a 24/7 family caregiver for the entire recovery period. Not only will there be a cost for housing, food, parking, gas, copays, medications, scans, rehab,etc… but also,Tricia is very concerned with the financial impact on her family having to take off work to care for her. Insurance will not cover all of these costs, so we are relying on the kindness of others to help. This fundraiser is to help alleviate the financial burdens on her and her family during an already extremely stressful time. We thank you for your time, your donation and for your prayers.Family and friends of Patricia Lader are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with transplantation.Patricia has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.For more information, please contact Help Hope Live at 800.642.8399.Thank you for your support!
Tricia was released to the lung transplant house (Gift of Life Howie's House) on Monday, 11/11. She is adjusting well. Today she walked for 25 minutes on the treadmill without oxygen! It was at a slow pace, but we are very excited for her. Every PT in the room was impressed (no one does that on the first day). The staples across her chest look really good. They usually start removing them at 6 weeks. But they are going to start removing every other staple next week. That's how they do it to be sure it's closed properly. Then they'll do the remaining based on how it looks. It'll be a month in 2 days. So that's getting done early.But the staples in her thigh, where they pulled two veins to do bypasses is taking longer to heal. She is going in to see the doctor about those on Wednesday.
10/26/24. Tricia fell last night. So when she fell she ripped out her feeding tube. So with her help in removing tubes she's down to the jp drain ( which looks like a grenade shape object that is squeezed and allows drainage to be removed by suction. ) The jp drain is in her right leg from the graft for her heart. And she has one chest tube still in which was supposed to come out today but still has too much drainage to be removed. Her blood pressure drops low so they're working on that still. Most of her medicine is now in pill form. Only three are still iv. She gets check ins everyday from doctors, surgeons, phlebotomist, xray techs, speech specialists, ot and pt and has her vitals checked multiple times everyday. She had lunch at the window on the couch today! It’s been a lot just to get up to be weighed or try to walk to the chair, She felt some improvement and took advantage of it by getting some movement in today. For the first time she used the bathroom and did it 3x! She also walked 250 feet today and is intermittently Back on 1L of oxygen, when her oxygen gets below 95. The pharmacist came in and gave her a book to go over about diabetes due to her being on prednisone for a long period of time as it causes high blood sugar.. She learned today she has over 130 staples in her between the cut for the transplant, cut in groin, and the cut down her thigh for the CABG graft (coronary artery bypass graft surgery). Some days are better than others. But, doctors are pleased with her progress. She loves her care team. And she’s usually in great spirits joking with them when she’s feeling ok. Today was a great day for her, but she did a lot of PT and wore herself out. Which doesn’t take much.please see the new photos of her in Philly
10/22/2024 - Tricia is still in the ICU. After the heart surgery on top of the double lung transplant, she is on heavy meds, which is causing hallucinations. They are trying to wean her from high flow oxygen to a regular nasal cannula. We are hoping they will transfer her to a step down unit today or tomorrow. She is on a feeding tube and not allowed water. See receives a swab of water every 4-5 hours to keep her mouth wet if she wants it. Doctors check if she can grip their hand, squeeze, push her feet and such. They ask her regularly if she knows her name, dob, where she is. They truly are keeping her in good care.
We are very grateful to her team of doctors. Please consider donating. Any amount is helpful. Thank you
On Tuesday, 10/15 Tricia got the call. They had possible donor lungs for her. She arrived at the hospital that night and by 10:20 am on Wednesday, October 16th, Tricia was in surgery for a double lung transplant! The surgery was long and did not go as smoothly as we hoped. First, both of her lungs collapsed. Then she coded. A blood clot had formed at a previous stent. They ended up having to perform CPR and use a defibrillator on her. She was down for 8-10 minutes. The doctor used his hands to keep the heart pumping and she was on bypass for her heart. They preformed Coronary Artery Bypass Graft Surgery (CABG) It took much longer and she needed several units of blood. By around 10:15 pm, she was finally out of surgery. With her surgeon leading her team they saved her life twice during surgery. He also saved her in the fact that if she was not in surgery at that time the blood clot that made it in the stent during surgery would have killed her because she would have been at home at that time.. She would definitely say she was in Gods hands, She is currently stable and in the ICU. We will update as we get more news.
Any donation will help. And no donation is too small. Please keep Tricia in your prayers. Also, please keep the donor and their family in your prayers as well.
I got the call today that I am officially listed for bilateral lung transplant.
Tricia here! So, while my case was being presented to the multidisciplinary board the surgeon thought that something wasn’t matching up in the report regarding the blockage in my LAD. Previously, during the heart catheterization preforming doc said they didn’t expect to find anything since my last heart cath was clear 2 yrs ago. He jinxed me lol. He found a 60% blockage (that rate is unusual) in LAD. After a stress test he was less concerned and told me it wouldn’t hold up transplant and I’d probably be on lifelong meds to prevent it from growing and it may even shrink a little. Fast forward to now, and surgeon is thinking I’ll need a stent. So they quickly got me in for an appointment to have the procedure done. It’s scheduled for Thursday 6/27/24. I’ve been told I’ll need to be on blood thinners for 1-3 months. Which means I can’t be listed for lung transplant until I’m off the blood thinners. This journey certainly has been a long one. But, I trust my team and I’ll keep moving forward towards that goal!
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Hi, Tricia! I work with your mom at Simon. I'm sending up lots of prayers for you and your family!
Stacy Howell
Trisha, you are in my thoughts and prayers. I’ll come visit when you get home and ready for company. Love you little cuz. ❤️
Kathleen Horan
Tricia,
I'm hoping and praying for the very best for you, Godspeed
Thomas Griffin
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Patricia Lynn Lader
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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