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Help Hope Live for Darci Meyer

In May of 2020, Darci experienced a cardiac arrest while hiking with her family and friends. She was diagnosed with ACM, Arrythmogenic Cardiomyopathy, a genetic condition that affects both of the lower chambers of her heart (the ventricles). An internal pacemaker/defibrillator were placed at that time. Darci has been followed regularly by cardiology teams in Bend, OR and at the Stanford Center for Inherited Cardiovascular Disease in Palo Alto, CA.

Updates (15)

November 3, 2024

Belated Update: We had our first in-person follow-up at Stanford since we came home in September on 10/21. I was able to go hiking without a mask & it was SO GREAT!!! (I'll still be wearing them indoors). My rejection labs were good so I was able to wean my prednisone dose further. My white & red blood cells are low, which is not uncommon. At this point we will continue to monitor. We continue to adjust medications to keep med levels in goal range. I started cardiac rehab a few weeks ago--it's very reassuring to increase the intensity level and know that I am being monitored. And the staff are all so amazing! I/we are SO GRATEFUL for all of your love, support & encouragement through our journey!

September 12, 2024

Hello! This is a much belated thank you! I am so deeply grateful for the outpouring of love and support that we have received during the whirlwind of the past few months. I have felt carried by your love during some of the roughest moments—it helped more than I can ever express with words. I know that Kelly, Keegan & Molly feel the same. We were able to return home last Friday after my visit with the transplant team on Thursday. I’ll continue to have monthly follow-ups at Stanford monthly until 6 months, then every 2 months until 1 year and then every 3 months during year 2. If at any time I start having trouble or experience rejection then I may visit sooner and/or be admitted for hospitalization. I’m doing my best to cherish the amazing grace of life. Sending out the BIGGEST hugs to all of you!!! You are forever in our hearts. Alll My Love, Darci

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