August 5, 2024

Good news!! We are just over 3 weeks post transplant. Her second biopsy came back 0 rejection!! We are up to 5 miles a day walking, everyday we seem to gain more. Starting to get a little stir crazy her at the apartment but that’s well worth not having any complications.

August 1, 2024

She keeps getting better every day! We walked almost 3 miles yesterday and did 3 miles today.

July 30, 2024

Yesterday was a full day, we went on three walks , over 2 1/4 miles total. I colored her hair (yes I am opening a salon when we get back) she cut my hair and best of all Darci’s cousin Martin and his wife Karen from down here brought us an amazing home cooked meal. All that led to a very tired day today but we still got just over a mile walk in!!

July 28, 2024

Yesterday she went for a car ride to the store. First time out in the car for over 5 weeks. She waits in the car while I grab stuff. She still has quite a bit of pain in her upper chest and left shoulder. Still just treating it with Tylenol and ice. This morning we walked over to the hospital and did some blood work, afterwards we took a longer route back and is very tired and taking a nap.

Well till next time everyone have a great day!!!

July 27, 2024

Yesterday we had biopsy and bloodwork, today we got the results of mild rejection. We will adjust medication and retest next week. We went for 2 walks today a total of 59 minutes!!! Not fast walking but every step counts!

July 25, 2024

Monday we moved into our Stanford hospital apartments. Tuesday was a little rough, We did walk from hospital to apartment which felt good! Getting settled and being free was a lot to take in, definitely tiring. She had a good night sleep Tuesday night and felt great Wednesday. We had a friend stop by and drop off some things. It was so wonderful seeing a friend after being away from everyone for over 6 weeks. This morning we walked over to the hospital to do labs and our first follow-up appointment. Today they will put a catheter in her neck and do a biopsy of the heart to check for rejection. THANK YOU for all the love and support. We feel truly blessed

July 21, 2024

Well we were able to go down to the third floor garden by ourselves tonight! That felt so good and freeing for her. They are still adjusting the meds, trying to fine tune everything before we can get discharged hopefully Monday.

July 18, 2024

Top of the morning to you all. Today is even better, she slept good and woke up feeling good. Every day she gets better and better, of course she has some downs but over all every day is a new day. The Doctors came around again this morning they just say you are doing great and there is not much for them to do other than be happy for how well she is doing. Still having some draining out of the last chest tube but are hoping to pull it tomorrow. AS of now they are thinking of discharge on Mon or Tuesday. There is more water retention so they are upping the diuretic to shed off that swelling.

July 17, 2024

Today is a good day, She is feeling good which makes her antsy and wants to do stuff. she still has the chest tube in, they hope to pull it tomorrow. After the tube is pulled out she will be free to roam around. YAY!!!

July 16, 2024

Day 4 , She walked down the hall for the first time last night, she was trying to walk off some anxiety. Today she walked down the hall and got the swanganz lead out of her neck. We are currently waiting to move out of ICU.

July 15, 2024

Day 3, She had a little more sleep last night, getting better. One chest tube was removed today and she is down to one IV med, that should be weaned off today. One of the Dr’s was just in and are very pleased with how fast she is recovering. All the exercises and strengthening before the transplant has really payed off. We might be able to move out of ICU tomorrow

July 12, 2024

So today is 24 hrs after her new heart. She is loving her ice chips