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Family and friends of Mica Walker-ONeil are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with Catastrophic Illness.Mica has chosen to fundraise for Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility for contributors. Contributors can be sure donations will be used to pay or reimburse medical and related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Give button.For more information, please contact Help Hope Live at 800.642.8399.Thank you for your supportThis is my story… In late April, after months of tests and treatments, I was diagnosed with ALS (Amyotrophic Lateral Sclerosis). ALS is a progressive neurodegenerative disease that affects motor neurons in the brain and spinal cord, leading to muscle weakness, atrophy, and ultimately paralysis. As motor neurons die, the brain loses its ability to initiate and control muscle movement, affecting activities such as movement, speaking, eating and breathing. The exact cause of ALS is largely unknown, though both genetic and environmental factors are believed to play a role. There is currently no cure, and the diagnosis is fatal. Medical treatment, from ALS clinics, focuses on monitoring the progression of the disease and providing resources and supports that are needed throughout the progression. There are also two medications that are currently FDA approved to help slow the progression that are generally prescribed.While I am relatively early in my diagnosis, I am experiencing generalized weakness in my muscles and some loss of function in my fine and gross motor skills. Despite the limited treatments from modern medicine, I have found, through many hours of research and meeting with other PALS(People with ALS), that there are alternative options that have helped to slow or stop the progression and in some cases people have even regained lost functioning.There is a list of medically documented cases of ALS reversals (see Dr. Richard Bedlack/alsuntangled.com and/or healingals.org). These are PALS that have stopped the progression of the disease and regained function that they had lost. ALL of these PALS utilized alternative/holistic/natural forms of healing and treatment. I am working now with a functional medicine doctor and a naturopathic doctor to incorporate alternative treatments into my healing protocol.I have also recently been connected to a new treatment facility in Canada created by a neuroscientist who has studied neurodegenerative diseases for 30 years. He has created a specific protocol that focuses on stopping the progression, restoring, repairing and rehabilitating the whole body. In its short time in existence, this program has proven successful for the PALS that he has treated there in his 18 bed facility. I have had 2 consults with a member of his team. I was told that on average his protocol stops the progression of the disease within the first 3 weeks. His program consists of a 3 month stay at the facility to immerse yourself into his protocol and learn to continue it once you leave. They work with you remotely the fourth month and ongoing as needed. While costly my hope is to be able travel to Canada and receive this specialized treatment protocol. If you find yourself moved to support my healing journey in anyway, I would be most grateful.No matter what organization, doctor or clinic I speak to they all say one thing….you need a support system to navigate this disease. I have been beyond blessed with the outpouring of love and support in so many ways from family, friends, acquaintances and even strangers. It has been an overwhelming experience in a good way and my heart is filled with love and gratitude for all!With love and kindness, Mica
Hi all,It's been a while since my last update. I want to start by again thanking everyone who has played a role in supporting me in this journey. I wouldn't be able to approach healing in this way without such tremendous support.My fundraiser was hugely successful and so much fun!!! The team that coordinated that did a top notch job!I have been able to spend time at Synergy Healing in Nevada 2 times and will be going back the first 2 weeks of February for a third visit. I continue to move forward with my functional medicine team making progress there. They have recommended a surgery for me so I am looking into that currently. I am feeling well and positive about the future!With love and peace,Mica
Good morning. Today I will finish up my first week and half of treatments at Synergy Healing in Nevada. This clinic has cutting edge technology that aids and encourages whole body healing through a variety of modalities. I will return in November and hopefully again in January (for a recommended one month stay). Synergy Healing is one tool in my toolbox for healing as I have learned that you need to take an all hands-on deck approach to fighting this disease. This is part of the reason I have found it necessary to take a STD medical leave of absence from work to focus completely on healing for a while.Canada (Dr. Goodenowe) has been put on hold for now due to the cost. I continue working with my functional medicine doctor to replicate Goodenowe’s protocol as closely as we can along with incorporating any other approaches we think would be advantageous. My team and I are continually researching/learning.Your generous donations are greatly appreciated as fighting and navigating this disease is ongoing and costly. I thank you all for the love and support that has been shown in so many ways!I can’t wait to see everyone at the party Saturday (11/2)! It is sure to be a FUN time!!!Love and peace to all,Mica
Hi all. I am blown away and so very grateful for each and everyone of you and your donations to my healthcare!!!!Update 10/8/24: After many conversations and gathering of more information , I have found a clinic in Nevada called Synergy Healing that offers a variety of alternative/complementary healing therapies/treatments. I have spoken with the owner and she has seen over 100 ALS clients in the last year. She also told me some of the success stories that she has seen in her clients. I am scheduled to go there 10/21-10/31 and 11/18-11/27. I have also spoken to someone who has been there and he recommended it and I have spoken to the founder of Healing ALS and she knows several people that have gone there and and made positive gains - she recommended it as well. I am looking forward to going and thanks to you all I am getting there!!As of now I am receiving PT and OT, strict nutrition plan to make sure I'm getting enough healthy fats and protein along with nutrients from a variety of fruits and vegetables, supplements to build up my body where it is laking nutrients and detox methods to help my body effectively rid itself of the toxic burden and weekly IV vitamin infusions(which once I started, I really noticed a increase in my energy level). I am also in a stage where I need certain ADA compliant tools to assist with my mobility and energy conservation. ***This is a marathon, not a sprint! Sending love and peace to all,Mica
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Stay strong Mica
Henry Kingi
Good luck on the 2nd round of treatment Mica!
Chad Knorr
From J B and Janice Landry
Prayers and Love
Kimberly Landry
J B and Janice Landry prayers
Kimberly Landry
Love you Mica! Sending much love & many prayers!
Ann & Steve Miller
We are praying for you, Mica.
Love,
Ellen & Markley Huey
Markley Huey
Prays for you my sweet friend!! - Love you!! Carrie :)
Carrie Genusa
Praying for you Mica
Kelly Rutz
Sending prayers Mica! Good luck in your fight!
Chad Knorr
Sent On behalf of the Northern California Turners.
We care.
David and Jenny Turner
Wishing you well, Mica. Thinking of you and hope to see you soon.
Tom & Debbie Lomis
Sending prayers of strength and healing
Margaret Barker
I am praying for you, Mica and that there is a cure found for this horrific disease.
Edna Block
Love and prayers to you and your family.
Jon and Heather Arthur
Mica, you and your family are in my heart and prayers
Caroline Blackman
For Micah
Tim Johnson
Love you my friend, keep smiling that amazing smile that the whole world loves!
Sean Braud
God bless you
Johnny and Debbie Martin
You have been in my prayers every day.
Mike and Stacy
Stacy Toomey
Praying for you Mica.
Blake
John Wilcox
Praying for you, Mica ❤️
Paul Whitlock
Mica, We are here to support you throughout your journey. You continue to be in our thoughts and prayers as well as your family.
Susan & Lew
Susan Love
Love you so much, Mica Rose! xoxo
Stacy Anderson
Love you, Mica!
Karen Ware
Mica- you are in my continual prayers. I’m praying for healing, strength & to know & feel God’s presence daily. Love you
Jennifer Kingery
Mica, you are continually in my prayers for healing, strength & God’s comfort & presence. We are all here for you! Love you- Jennifer
Jennifer Kingery
Daily Fervent prayers my dear friend, Mica! Hugs and Love you!
Cindy Wolff Barnes
Love you and keeping you in my daily prayers!
Audrey Malloy
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Mica Walker-ONeil
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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