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After having a slip and fall incident in November of 2005, I had a sprained left arm, hand, and shoulder. Along with a right busted up knee and ankle. Which was then accompanied by swelling in my neck. It took many visits to find out I am diagnosed with a rare chronic neurological chronic pain disease named RSD (Reflex Sympathy Dystrophy) also known as CRPS (Chronic Regional Pain Syndrome).
RSD affects the nerves, muscles, skin, and bones. It sends messages to the brain that the body is in pain constantly. My body has been taken over by this rare chronic pain disorder. It has left my body in practically total dysfunction. My days are filled with such horrific pain everywhere due to atrophy, nerve damage and so much more complications. Due to all this, I am in a wheelchair that was designed specifically for my needs. We average going to the doctor twice a week and are in need of a wheelchair accessible vehicle.This is the reason we are asking for your help by a donation which goes directly into an account that can help me reach this goal of a wheelchair accessible vehicle. Followed by any other needs that are medically necessary as my limitations continue to develop.
I’m so grateful for my campaign to be a part of the Help Hope Live non profit organization.
Thank you for your time, consideration and support from me and my family.
Please share my campaign page with your co workers, family and/or friends and ask them to please share with all.
Stay blessed!

My plan is to put videos online with advice and education for understanding of what RSD CRPS is. Hopefully I can help at least one person, maybe even a thousand people, to live a happy life and have some understanding of this rare horrific disease.

Updates (4)

September 10, 2024

For the past 19 years my children, husband and myself have lived through some very difficult situations including loss of family members, friends our home etc etc etc.

However, the blessings which we have been given have brought us much closer over the last few years.

I have been taking approximately 19 different medications everyday which I take morning noon afternoon and at bedtime. My husband who is the best man in the world to me has been by my side every day no matter what was going on physically mentally and emotionally. He prepares all my medications once into a weekly medication dispenser and then splits them up daily into four separate medications bottle and then supervises giving me the correct medications throughout the day. He is so dedicated to getting and giving me the best care he can going to every appointment he possibly could and has done over the past 10 years. Unfortunately, he had his own medical emergency in 2015 were he lost use of both of his legs and he had a emergency operation where the lower nerve endings in the spine had been severely pressed on by some slipped disc.

I'm sorry if I didn't describe this correctly.

After surgery, the doctor said his condition has the name "cauda equina" my spelling may be incorrect. This condition is very serious. The doctor could not tell if Mike would ever walk again. After a year being in a wheelchair, he was getting around more and more after much physical therapy and his amazing determination. However, he lost his ability to work which is why we came back from Florida to Georgia.

Terrible times and unfortunately people could not destroy our love and vows we made to God and each other. He has a bad back filled with pain his left leg has nerve damage which has limited his ability to walk. His determination to care for me and give me all he can is the kind of Love I have never seen or known before. Because I am unable to do much of anything these days so he cooks, cleans, washes dishes and all the laundry etc etc etc along with being with me 24/7 except when he is running errands including grocery shopping.

Yes, he is wonderful to me since the day we got together. I'm more than grateful for him for who he is as a person along with God blessing me and the children who are really not children any longer..

Us being able to purchase a wheelchair accessible vehicle will greatly benefit both of us.

Thank you for your support. Please share this campaign with all you can. There is no cure for my pain condition which is the most horrific pain known to man nicknamed The Suicide Disease.

August 11, 2024

Well, after I began seeing so many medical professionals, I was blessed to have found a handful of medical professionals each in different medical fields. My body was ferociously taken over by burning stabbing deep into my bones muscles nerves and the skin outside my body. I was taking so many pain medications both orally and patches on my skin in fentanyl, morphine etc along so many different medications some for this and that as well as strong antidepressants including Ability 30 mg and so on

Forgive me please, sometimes my thinking gets all tangled up and I'm unsure what comes next so .

After closing and resting my mind and body, honestly I am really overwhelmed wanting to share with you how debilitating, how cruel, unexplainable the actual physical pain is throughout my entire body from the very tip of my head through my scalp, my face, my eyes, my ears, my nose, my lips, my gums, my tongue, my throat, my neck, my shoulders my arms, my hands, my fingers, oh yeah my nose my chest my armpits my stomach my back, my spine, my hips, butt even my groin and vagina, down my legs my knee caps on down to my ankles, feet and my toes. I'm now experiences issues with loss of muscle tissue in the back of my tongue along with swallowing issues.

Grateful I wake up every morning. Unfortunately my pain in my whole head explained up above is my first sensation.

Thankfully I have an intrathecal pain pump inside my body that is set to drip drops of fentanyl to my spine which lowers the amount of horrific pain down the lower part of my body..

I'm not able to do much physically due to of course this very mean relentless pain.

I lay either in my bed or recliner all day. The ability to hold my head up has become limited.

My husband gets me everything I need throughout my day while taken care of all the everyday chores inside and outside our home.

We really need to purchase a wheelchair accessible vehicle in order to get me back and forth to all my many Dr appointments. I'm having other different technology.

Thank you.

I hope that I am giving you some kind of idea how horrible RSD/CRPS is and how devastating and badly it affects the body both inside and out.

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