Help Hope Live for Jill Ottow
Well, here I am at 6 months past my transplant. I am feeling good, better each week. I have less clinic appointments which frees me up to go out to art exhibits with friends, be with family more and more, provide child care to grandchildren, start some gardening activities, resume many home activities, and run for re-election to my Library Board of Trustees and win!
I have shared some photos in the gallery here that you might enjoy.
John and I adopted Mario, a senior shih tzu, a month ago and I am walking further and further with him and doing hills now that the snow has melted. We also have a trip to Florida planned for April and a trip to Wisconsin in May. Each time I ask ‘permission’ from my transplant team to engage in something new, they say, “Go for it. We gave you new lungs so you could live your life!”
I completed my pulmonary rehabilitation last week and I’m starting with a personal trainer next week. I am including a write-up done by the Rehab Hospital about my journey that I am hopeful will give information and courage to others. I will miss my two therapists, Eliza and Donna, and yet look forward to new endeavors.
John invented a remote control for my home oxygen concentrator a few months before I had my transplant. It’s a long story, but basically it allowed me to turn my 02 up and down with a fob as needed on a machine that was halfway across our home without having to call on him to do it for me. Doing it on my own involved walking that distance at a lower level of 02, which was dangerous. I only used it for a few months before the miracle happened. So he told some of my transplant team members about this primitive invention, hoping it could be made available to another patient, not feasible due to liability concerns.
Long story short, what went from a team of one guy in his basement is now fully backed by the Interstitial Lung Disease Collaborative at Mass General Hospital for FDA approval and a team of 9 engineers, app experts, a legal advisor, grant writer, project manager and marketing professional. They are on prototype 5 and continue working towards adding features such as detecting and warning of worn or kinked hoses, measuring oxygen levels and transmitting into the cloud for immediate access to medical providers.
My life today all sounds so ‘normal,’ doesn’t it?
I have spent a lot of time reflecting on what is normal. Many people say you reach a ‘new normal’ after such a journey as mine or surviving cancer as has John. I don’t care for the phrase but I understand what is meant by it. I fully understand that having undergone four years of progressive lung disease and the major procedure for double lung transplant, I am not the same person I was. Sure, I hope I still have my wacky sense of humor and irritating traits, but I feel like a different person. My journey continues and always will. I am still becoming. Aren’t we all?
Thank you for being with me on our walk home. I couldn’t have gotten this far without you!
Without any setbacks, I will update again at 9 months and then a year at the end of September. I would think you’d have had plenty of Team Jill info by then!
Updates (77)
January 18, 2025
December 4, 2024
We went for our now bi-monthly Lung Transplant Clinic appointments on Monday. The first appointment was for the 6 minute walk test. In the pulmonary world this measure of how much ground you can cover in that time is an indication of lung function. Jill did great, covering 1200 feet in 6 mins, nearly a quarter mile. All without stopping to rest or oxygen use. This was no surprise to me as this was our first visit to MGH where we did not use a wheelchair to get around the massive hospital. We walked 6 blocks back from a restaurant dinner the night before, then from the hotel to the hospital in the morning and then to 3 different locations within the hospital for tests and consults.The tenor of much of Jill’s questions with the doctor were different from previous clinics. Rather than only talking about her current health status, many questions were about the future. When can I drive? Can I be left alone? When can I travel? A side benefit to the clinic was meeting fellow lung transplant recipients and caregivers in the waiting area. There were two recipients who received their lungs shortly after Jill. Like many of you reading this update, they too were impressed and inspired by Jill’s progress. It is hard for me to fathom that all this took place exactly 10 weeks from the day she was wheeled into the operating room while new lungs were being flown in from Maryland. Amazing!
December 4, 2024
The simple sound of the words “double lung transplant” can spin your head around! As we approach Thanksgiving, I think we all need to be thankful that such a life saving procedure is even possible AND that it has been performed on our precious Jill. I, for one, feel honored to know Jill and to share in this journey with her. I also feel empowered by her story. I feel like no matter what life throws my way, I will think of Jill’s incredible strength and her ability to move past her fears and charge forward toward resolution. I will also remember the amazing medical team that has saved her life, allowing her to breathe again. The team that continues to provide guidance throughout her long bumpy road to recovery. ~ A Friend
November 20, 2024
Wednesday, November 20We are now in our second month since she came home and it appears that Jill is finally turning a corner in her recovery.The first month home involved nausea, weight loss, lack of appetite, weakness and many naps during the day. At our weekly Transplant Team Clinic appointments we have been told that:This is a marathon and not a sprintBe patient, progress is slowFor every day you were in the hospital it takes three to recoverEverything you are experiencing is very normalKeep up the good workThis has been a very frustrating time for Jill as she wanted to do more and feel better but her body was not cooperating. This past Sunday things changed. She went all day without taking a nap, went for a walk, watched the Packer game, played cards in the evening, did some cooking and ate three good meals. Monday and Tuesday showed similar progress. All the while her new lungs are working great; no shortness of breath and NO SUPPLEMENTAL OXYGEN and the debilitating cough that has shadowed her life for the past two years is GONE. We are seeing the Jill we have not seen for years. She is home. - John
October 25, 2024
Friday 6:00pm Jill's brother Chris and I took Jill to her first weekly clinic appointments yesterday. The news was good. We were told that her recovery is a bit above average. This was reassuring as she had experienced some shortness of breath, once we provided oxygen for a few minutes to help her recover. Her activities are limited. She hasn't tried making it up stairs yet. However we were reminded that "It has only been a month since she experienced a double lungs transplant." I still find that amazing. - John
October 21, 2024
Monday 10:30We are here at MGH, again. Nothing bad. Today was the first of quite a few scheduled bronchoscopies. It is a procedure where they look inside of her lungs and take some biopsies. They are checking for infection and signs of rejection. In about 10 days we will learn the results. They said she did well. As she is recovering from the anesthesia she is on a little oxygen. Today is the one-month bronchoscopy. The next is at 3 months. As I see her slowly wake up and we are given the instructions for a quiet day, I am realizing that this procedure is far more than I expected. It is part of our new normal. -John
October 20, 2024
Alyssa here, Jill's middle daughter. I've spent the past 24 hours with my mom. First my husband, Wendell, the registered nurse came to confirm that she's in fact doing amazing. I came in the afternoon for a girls night with my Aunt Rose and mom while Dad went to a Hope Lodge reunion in Portland. I had the best time. My mom is more 'herself' than I've seen in at least a year. We ordered Mexican food for dinner and split enchiladas and tacos. Her appetite is much better. We stayed up until 11pm watching a 'chick flick' - we decided on a Jackie Chan and Pierce Bronson movie, haha. We had delicious homemade cannoli that a friend dropped off. After all three of us had good nights sleep and feasted on bacon, omlets, and fried tomato for breakfast. Mom ate as much as Rose and I! We spent some time making a daily checklist, setting goals, making labels with her new label maker for all her meds, and telling old stories. I'm so grateful for this new chapter. She reads your cards and messages and continues to be overcome by the outpouring of love and support. We all do. -Alyssa
October 18, 2024
Friday 10:00amOct 18 Friday, 7:00amThe first 24 hours home have been interesting. Jill’s health has been good. She is getting around the house well with her walker, getting much more exercise than she was while in the hospital. Her appetite is improving and she is eating well. We are learning why they say getting through the surgery is only the beginning. Most of the lengthy checkout process at the hospital regarded her meds. It is super important to take them on time. If we miss a dose, we have to call the transplant team so they make adjustments. Setting up her meds in the pill boxes is a chore; 22 pills in the morning 17 in the evening. For the next month she needs 24/7 care. There is a list of things to look for that would cause us to call the transplant team. With all of that, we did go out for a ride in the country to see the beautiful New England fall colors and stop for an ice cream. Friends stopped by for a visit. It was a great day. Every day with Jill is a great day. - John
October 17, 2024
JILL IS HOME!
October 16, 2024
Tuesday 8:40
What can be more awesome than getting a new pair of lungs? Well, nothing really!But coming in second is being able to go home tomorrow 3 weeks after surgery!!!
They tell me I'm doing really well. The biggest hurdle has been jumped but there is still a long and hard road in font of me. I will have visiting nurse, PT and OT services and then go back to the pulmonary rehab. I already had been going there before surgery, but now there will be an entirely new plan and goals.
I have been treated so well here but I can’t wait to be with John surrounded by family and friends. Local friends will be scheduling meals and rides to Boston clinic for the coming months. My brother and sister-in-law, Chris and Francine, are coming up from North Carolina, and my children are continuously circling with love. - Jill
October 15, 2024
Tuesday 7:00am
There were 100 hours after the surgery where Jill was not conscious. She has asked if we were afraid that she would not wake up. We were not.
Now we are waking up to a new Jill. It is much more than her regaining consciousness and being herself. It is waking up to the enormity of what has happened. Now we are waking up to the reality that she may soon be leaving MGH and going to a rehab facility and then home. I am mostly eager and excited by these developments. At the same time I am afraid to have Jill leave the nurturing and safe confines of the hospital. - John
October 14, 2024
7:30am
Each time I see Jill/Mom she looks healthier and healthier. It's amazing what these new lungs can do! The word that comes to mind is VIBRANT
She got the feeding tube out yesterday which is really big deal. See the pic in the MGH photo album below with Jill and Nurse Megan I took right afterwards. Megan says that Jill is ICON and a LIVING LEGEND and I couldn't agree more!Jill even did a little dance to celebrate this huge moment on her walk around the unit.
Trust me, folks, walking upright and confident in every step is a beautiful sight to see. Each day is a new journey and we celebrate every benchmark.-Sarah (Eldest)
October 14, 2024
Monday 6:44am
In several ways, yesterday was Jill's biggest day yet. First, they took out the feeding tube. See the picture of Jill in the at MGH photo album. She looks vibrant. The new lungs are really doing it for her.
Second, her son Josh visited with his wife Leah and their two children Reuben and Sarah. What a lift to be visited by her grandchildren. See photo album.
Third, they are starting to talk about the next step. Sending her to a rehab facility or home. I don't know when this might be but just talking about it is a big deal. - John
October 13, 2024
Sunday 7:00am
In a previous update I shared my thought of the doctors. We have also found the care of the nurses, therapists and other professionals is nothing short of amazing. For the nearly two weeks Jill was in the Intensive Care Unit, we rarely saw a doctor. The nurses were keenly aware of Jill’s condition and complications. They knew how to adjust treatments and were reassuring as they deftly changed her care.
This high level of nursing care continues now that Jill is out of ICU and in the transplant unit. They have been reassuring that these complications are common. We know that there are doctors behind the major decisions but the eyes, ears and hands of her care are the nurses and we are thankful for that.
For all of the nurses we have dealt with it is obvious that Jill’s lung transplant is not their ‘first rodeo.’ Mass General Hospital is a major lung transplant center. This is important as the success rate for transplants goes up when the hospital does more of them. I heard yesterday that there are currently 18 lung transplant patients at MGH. There may be more than 100 lung transplants at MGH this year. I see that as 100 lives saved.- John
October 13, 2024
Saturday 9:30pmJill had a pretty good day. She went for a walk and was in good spirits. The chest tube was removed. A good thing. However they found a small air pocket in the chest cavity near where the tube was inserted. It could be that some air came in as the tube came out. Before they do anything they will see if it resolves itself. They put her back on a small amount of oxygen to help the process. I don’t understand the physics of this but it is part of their process. Her blood pressure was high for part of the day and that was under control with some med adjustments. The blood clots in her arms are subsiding and they found minor blood clots in her legs. Meds are being adjusted to solve this. In the MGH lobby I ran into a gentleman that I first met in a support group whose wife had a lung transplant a few days after Jill. His wife is still in the ICU and undergoing similar issues as Jill. He talked about how he is also is learning all that a lung transplant means. - John
October 12, 2024
Saturday 6:35amWe are starting to learn more about why they prepared us for a stay of one month after the transplant surgery. It is so much more than her being able to walk a mile or get the feeding tube out. There may be a month of working through the medical issues of having her new lungs. Jill needs the new lungs and at the same time the doctors and nurses are suppressing the body’s natural reaction to reject them. One nurse described it as finding a new equilibrium. Even that does not describe it as that might only be seen as having the right doses of the right meds. Medical issues like feeding tubes staying in what seems way too long, re-inserting a chest tube, blood clots in her arms are just things that can happen when you get new lungs. This equilibrium is all that it will take for her body to get used to another person’s lungs and these lungs that have been supplying oxygen for another human being to acclimate to Jill’s body. Just think of the enormity of that sentence and what it takes to make that work. I know I am still coming to grips with what this new equilibrium means. - John
October 12, 2024
Friday 8:50pmJill’s daughter Alyssa reported to me that she has had a good but not great day. They have diagnosed blood clots in both arms. She is getting ultrasounds to track the clots and they have lessened in one of her arms. It is a matter of adjusting her meds to get rid of them which they will do. She had a big day yesterday with new efforts in walking. Perhaps today is a day of rest.
October 11, 2024
Friday 6:10am
As I think about all that Jill has been through regarding the lung transplant, the word Amazing keeps coming to mind. The teams of cardiac surgeons that perform lung transplants at Massachusetts General Hospital (MGH) fit the description of amazing.
We had met with one of these surgeons about two months ago and he described with some detail what would happen during the 6-14 hour operation. How Jill would be hooked up to an ECMO machine to supply oxygen when Jill was without lungs. How and why the left lung is replaced first. How the new lungs are connected and then inflated so they come back to life in Jill’s body. Amazing.
As it turned out, the surgeon we talked to did not perform Jill’s transplant. There are four lung transplant teams at MGH. One team is always at the ready for when lungs are available for a patient in need. Think of this. The surgeon that saved Jill’s life was doing his SECOND lung transplant of that day. Amazing!
October 10, 2024
Thursday 7:00pmI didn’t go into Boston today but Jill talked about her busy day by phone. First of all, she passed the swallow test. However she is still not eating enough for them to remove the feeding tube. “I just don’t have an appetite.” She walked 3 sets of two laps around the transplant unit, plus she was on the stair stepper. Both big ‘steps.’ The biggest deal for her was that she was visited by a hospital volunteer who had a double lung transplant in December of 2023. She described it as ‘so rich.’ If you have something singular about your life you will know the value of meeting someone with that shared unique experience. We can only guess how it must have felt for Jill. - John
October 10, 2024
Thursday 6:45Jill has had nurses and doctors who explain everything and it is fascinating to learn why things are happening as they are. For example we learned why Jill still has a feeding tube two weeks after the surgery. She has to have thickened liquids but she is eating soft foods fine. The reason is that during the transplant surgery many nerves were disrupted in the chest to make way for the lungs. Some of these nerves control her swallowing. In a sense, her body has to relearn how to move food down to her stomach. They have done several swallow studies and will do more before they remove the feeding tube. We hope that this is soon. Swallowing is important as she is taking 24 or more pills every morning and then additional pills during the day. On a side note. Last September I re-entered treatment for prostate cancer. My initial treatment was in 2019. Yesterday I had an appointment with my radiation oncologist. All signs point to my cancer being gone. More good news for the Ottows. - John
October 9, 2024
7:30 pmI'm settled into my new room (out of the ICU) where I have a lovely view of the Charles River. I can't say enough about the nursing care. I've been receiving a lot of cards and my family put up photos. (Please see a photo of the cards and a paper lilac bouquet in the MGH Photo Album below on this page.)The work of recovery is underway. I'm working with Physical Therapy and Occupational Therapy to make gains everyday. My family has been amazing in visiting me every day. If you'd like to visit me, visiting hours are 11-8. Please call or text me if you'd like to stop by.Thank you for all of the support and love,Jill
October 9, 2024
Wednesday 6:20Sunday when I was visiting Jill I noticed that her breathing was a bit shallow and more rapid. Her blood oxygen level was at 94%, down from 98% the previous day. Jenna took over for me about 3:00pm. She told me that before she left in the evening the oxygen level had dropped to under 90%. These are all signs that were confirmed by the chest x-ray that Jill lings were not working optimally. We then learned that she was undergoing a pneumothorax, an air space between her lungs and chest wall. The nurse reported that they had been tracking the pneumothorax by chest x-ray every day and it had grown to the point for them to insert the chest tube to eliminate it. It was preventing the lungs from properly adhering to the chest wall. After the procedure her blood oxygen was back to 98%.We have been told many times by many people that the surgery is not an end but just the beginning. Others have said that a lung transplant is a long road with many ups and downs. We are learning what this means. - John
October 8, 2024
Tuesday 5:30pmJill came back from the procedure and is doing fine. The tube is much smaller than the previous chest tubes she had. Maybe about the diameter of a shish-ca-bob skewer. (Maybe that isn't such a good image as the tube is coming out the center of her back.) Her oxygen is back up to 98%, great news. She finally found a food she likes. It is a thick soup with noodles, kale, other veggies and small meatballs. Her spirits are good and she is more worried about the people in Florida than she is herself. - John
October 8, 2024
Tuesday 9:35I have learned that this seems to be an 'expected' possible complication that was picked up on the regular chest X-rays, a known sequelae of the surgery, managed via the tube. But sure wish it hadn't happened! Love to you Jill - Chris (brother)
October 8, 2024
Tuesday 7:20amIt is NOT done under anesthesia, but a local. It is not a typical collapsed lung but the type of pneumothorax that is an air pocket so it drains the air out. Currently scheduled for 2pm - Jill
October 8, 2024
Tuesday 4:30amTwo weeks ago at this hour, Jill was coming out of surgery with two new lungs. Now she is awaiting surgery to have a chest tube re-inserted to alleviate pneumothorax (collapsed lung). Please keep her in your thoughts and prayers. - John
October 7, 2024
Monday 6:30pm
Jill called me today after I got home to Atkinson, NH. She had a chest x-ray and they found a collapsed lung, also known as pneumothorax This occurs when air leaks into the space between the lung and chest wall, preventing the lung from fully expanding when you inhale. They are planning on reinserting a chest tube tomorrow. It will be under anesthesia. It does not appear to be an emergency as they are waiting until tomorrow. More to come as I learn more. - John
October 7, 2024
Monday 1:30pm
The lessons for today are "One bad day is not a setback" and "Healing is not linear." This is what Jill's nurse has taught me. Jill is have a down day. GI issues and tiredness. This is a struggle for me as she was feeling so good yesterday. Before the transplant her body had been living with a lack of oxygen. Now with normal oxygen levels, her organs and tissues are adjusting. She has someone else's lungs in her body. Along with all the drugs (Jill took 16 different drugs this morning) her body is having trouble. Nobody is alarmed as most lung transplant patients go through similar episodes. On the lighter side, Jill told me she hopes the lungs came from a singer. She always wanted to sing. - John
October 7, 2024
Monday 6:30am
In the best of cases a person makes it through all the tests and interviews to get on the transplant list in several months. When you have terminal lung disease, time is precious and even one month is a long time. In April, Jill had a cardiac test that showed a growth in her heart. Jill was told by the transplant team that the growth might be cancer and she was no longer eligible for a lung transplant. To say this was disheartening is a huge understatement. She could have given up, I am sure many would. Instead, Jill sought the opinion of other cardiologists. One said, “Let’s wait 6 months to see what happens with the ‘growth’. To me, that also sounded like a death sentence as her lung condition was worsening. The second opinion at Brigham and Women's Hospital ordered more tests and determined the growth was not cancer. This doctor wrote a letter to the transplant team and Jill was able to get back in the evaluation process. Jill finished the evaluation process in September and was put on ‘The List’ for transplant. She received new lungs in a 7 ½ hour surgery that ended at 4:30am on September 24th. - John
October 7, 2024
Sunday 9:10pm
Jill and I had a discussion tonight about updates, like the one you are reading now. She remarked, "You don't have to be doing daily updates anymore." I strongly disagreed and read a few texts from people about how they are following. The good news is that Jill is back to good-ol' Jill. The other good news is that we will continue posting updates.
Jill had a good day. Two walks and she watched the Packers game with me. It will take her a while to get used to new digs but it is one more positive step in her recovery. - John
October 6, 2024
Sunday 3:20
Big day, Jill left the ICU for a single room on the transplant wing. She looks great and is feeling great. I missed it but she took a nice walk earlier today. She is down to just one tube, the feeding tube. Only two wires, the oxygen meter and the set of wires going to the monitor. (OK it is really a bunch of wires. )Josh was here to help move all the cards and photos to her new room. He also made the run to Whole Foods to get something edible. She has a nice view of the Charles River and fall colors. The only sad thing about the move is that her Waltham grandchildren cannot visit as they have to be at least 12 years old. - John
October 6, 2024
Jill was diagnosed with Interstitial Lung Disease (ILD) nearly three years ago. This past January, with tears in his eyes her doctor told Jill her only hope was for a transplant. After several hospital stays for “flare ups”, her family wondered if she would make it to Jenna’s wedding in May, much less survive long enough to go through the process to qualify for a transplant. This spring she was prescribed the drug Ofev. It is a new drug designed to slow the progress of ILD. It is terribly expensive but we were income eligible to receive it from the drug company for free. Many ILD patients cannot afford it. Her rate of decline slowed down, Although her supplemental oxygen needs were still increasing, it was not at the rate she experienced last winter. I believe that Ofev saved her life. She was strong enough to receive the transplant when it became available. In my eyes, Ofev is a true wonder drug. - John
October 6, 2024
Saturday 8:10 pmI had a nice day with Mom. She is working very hard during this new chapter. She’s still eating “real” food yet the feeding tube is still in. Mom walked a full lap around the ICU with only stopping 4 times! That is more than 150 steps. (see the pic in the at MGH album)I really enjoyed the day and our special relationship. - Sarah (daughter)
October 5, 2024
1:00 pm, Jill here.What is the most grateful thing one could say? The most poignant? The funniest?? As I’ve read through the many updates and well wishes on this website, I often think “are people putting me up on a pedestal? Am I really that extraordinary? Wouldn’t anyone fight for new lungs?" I also often think of the donor’s family who gave me these lungs. I may or may not ever be able to learn about who they are; it will be up to them and it won’t be for at least a year. So I think I’ll hang my hat on this poem sent to me this week by a very, very dear old friend. It resonates strongly with me.Borrowed Breath by Ullie-KayeI'm not brave.If anything, I'm still terrified most days.I'm just putting one foot in front of the other like everybody else and yes, there are things that I have overcome.Built out of nothing. Gone through theflames for.Sacrificed. Started over.Lost in the process. But that's life.That's what we do to survive and grow.And yes I've worked hard to get to whereI am today--incredibly hard but I don'ttake credit for that. I'm living on borrowedbreath. I'm just giving it back the best wayI know how.
October 5, 2024
Why did Jill need new lungs? She had (past tense) Interstitial Lung Disease (ILD). In the US 650,000 people have ILD It is a condition that causes inflammation and/or scarring in the lungs In Jill’s case the scarring was progressive and terminal. Her only hope was for a transplant. In the IUS, less than 3,000 people receive lung transplants in a year. The average person waits as long as 3 years. The cut-off age for most transplant centers is 65 years old. Jill is 70 and she waited less than 3 weeks to get the call once she was approved to be on the list. What happened to her was a bit like winning the lottery. To us it was much more than that. - John
October 5, 2024
Friday 9:20 pmToday was a day of milestones. First, she got the last chest tube out. Jill reported that the tube was a source of great pain. She had her longest walk, she made a lap around the unit, that is about 150 steps. This may not seem like much to us but she swallowed a pill. She also had two small meals. Her spirits are good. She spent some time looking at this site, reading the well wishes and noting the generosity of those that have contributed to her well being.. Like me, Jill was awestruck by the outpouring of love and support. - John
October 4, 2024
Friday 1:00pmJill can eat soft foods but the hospital food is so bad that she has no desire to eat it. I can contest that the mac and cheese yesterday was so bad I may never eat mac and cheese again. Fortunately there is a Whole Foods about 2 blocks away with a very good food bar. (I can't believe I used the words Whole Foods and fortunately in the same sentence.) I got instructions from the dietitian for what soft foods she can eat. She got her last chest tube out this morning. She said the doc removed the stitches and told her to hum; then he yanked the tube out. I am glad I wasn't there to see that. - John
October 4, 2024
Friday 6:15 amJill now only has three tubes. A chest tube that is draining the site of the transplant, an IV and a feeding tube. She no longer has a cannula supplying oxygen for her breathing. This is the first time, in what seems to be forever, that she is not using supplemental oxygen. I can't stop looking at the monitor that shows her blood oxygen levels to be at 98%. The miracle is real. - John
October 4, 2024
9:15 PMJill had a good day in spite of the pain she is in. In the evening she asked to go for a walk even though she was in pain. The cardiac surgeon who performed the transplant met us at the door as we were walking. He confirmed that things are good and going in the right direction.
October 3, 2024
Jill had one of two remaining chest drainage tubes taken out this morning, only one more to go! She is transitioning from feeding tube to eating, takes a few days, but progressing. Colleen, Jill's fabulous PT, took her for a walk, she went 3/4 of the way around the circular ward! I got to push the chair behind her. Lots of nurses and staff cheering her on, it felt like an Olympic training session! Colleen says she is doing very well, she stands up to walk without using her hands to lift herself, a sign of strength. But we knew that I'm such a lucky guy to have a sister like Jill Brother Chris
October 2, 2024
Wednesday 7:15pmJill called me this evening. After just a minute she yelled FOOD!! and said she would have to call me back.After 10 days without eating, even hospital food must look good. - John
October 2, 2024
Wednesday 4:20 PMBIG NEWS!! She passed the swallow test, The feeding tube was removed. Sarah is bringing her a frappe. (For those of you not in New England, that is like a milk shake.) - Chris
October 2, 2024
Wednesday 6:15amI seem to be posting the early update later every day. As Jill is improving, I am sleeping better and waking later. When she moves from intensive care, I will discontinue my early call to the nurses and wait until I arrive at the hospital to post an update.She continues to improve. She slept well. Her pain is more in control and she is moving around better. They continue to remove tubes and wires. I think at one time she had more than 12 connections. Yesterday they removed the IV from her neck and replaced it with one on her arm. I am hoping she will start taking food or liquids by mouth today. Keep your fingers crossed that a room opens up today. - John
October 1, 2024
Tuesday 6:50 pmJill had a very good day. She is still weak and drowsy but still a good day. Her voice is very much back and she is lucid. She has talked on the phone to family members. I got a text from her wishing me a good morning. She is slowly getting tubes removed. We are waiting for the feeding tube to come out. She needs to pass a swallow study for that to happen. They can't have her aspirate into her lungs. She is ready to leave the ICU, waiting for a room to open up in the transplant wing.
October 1, 2024
Tuesday 12:05pmShe's looking good, talking with Jenna and me, after having walked to end of hall! Kim says she is virtually certain they will discharge to room today. Doctors coming to get ready to remove neck IV and switch to arm. - Chris Martin (brother)
October 1, 2024
Tuesday 5:40I got an update from Jill's nurse this morning. Jill had a good night and slept really well. This is important as she really needs the sleep. She was in pain and was given pain meds. It has been remarkable to me how little pain she has been in, in spite of the incision going across the bottom of her rib cage, side to side.The big news is that her oxygen needs have decreased. They had done a chest x-ray this norning but the result were not in yet. I will be seeing her later today. JohnPS - I posted pictures of Jill with her new Lung Pillow on the At MGH picture album
October 1, 2024
There are two updates posted this evening.Monday 9:15pm
Today was the first day Alyssa saw her mother since last Friday. Jill has come a long way since then. On Friday she was barely conscience. About the most we could hope for was a weak squeeze of the hand or a slight nod of the head, even that was not a sure thing when we asked a question. Now she is carrying on short conversations although she is still very weak. Alyssa was overjoyed to see her in this much improved state.
Her oxygen needs are still higher than they were on Saturday. She has her lungs “bronched” twice a day. This must be an awful experience to have lungs suctioned while awake. It helps remove the fluid that is in her lungs. The nurses are not alarmed and neither are we. However this is preventing her from going to the ‘floor’ in a regular (non ICU) room.
We share your well wishes, she continues to be overwhelmed by the support but we are not. Her children will tell you that they heard the phrase, “What goes around, comes around” perhaps a thousand times growing up. It is now her turn to be on the receiving end of the generosity and love she has shared her whole life. - John
October 1, 2024
Monday 9:10pmWhile visiting Mom/Jill today, the Occupational Therapist came by and gave a rundown of the therapies to expect. Subject to change: Pulmanology Therapy, OT, Phys. T, and speech therapy have begun and will come 3 times a week (1 or 2 per day). Each with goals depending on discipline. Alyssa (OT) asked Mom about interests, favorites and go to for relaxation. It sounds like they'll make a care plan incorporating the likes. - Jenna
September 30, 2024
Monday 11:50amI just saw Jill. She is progressing. She took 35 steps this morning and it wiped her out. He oxygen needs are still up a bit and the nurses are dealing with it. Her body is tired but her spirits are high. Progress is slow but it is still progress. John
September 30, 2024
Monday 7:30 amI just talked to Jill's nurse. She had a good night and "got some sleep." There is a concern that her oxygen requirements are increasing. They just took a chest x-ray to check for fluid in her lungs. They have adjusted her meds to try to help with this. It is unlikely she will be leaving the ICU today. She is in the best of hands.
September 30, 2024
Monday 5:55amI just got off the phone with the ICU receptionist. She said Jill is looking good and the nurses are busy getting Jill up! Her nurse will be calling me back and I will post again soon.
September 29, 2024
Sunday 5:10pmI just got off a video call with Jill. She is much more clear eyed and her voice is stronger. She took 7 steps today, a big accomplishment. We are still waiting for the word that she will move to the floor. A side note, I have been in contact with a man who's wife also was waiting for a transplant. I heard from him that she got her new lungs today. There is so much to be thankful for.
September 29, 2024
Sunday 11:40amI’ve just been in with Mom for a bit. Now in waiting area because Speech Therapy is in with her. Prior to my arrival, she took three guided steps with Physical Therapy. All on track and in line with prior updates. - Josh (son)
September 29, 2024
Sunday 5:40Yesterday I was consumed by concern for Jill condition, today I am overcome with joy and optimism. In talking with Jill's nurse this morning she had nothing to report, which is the best news. Jill had a quiet night, sleeping well. The Transplant Team came by and said she may leave the ICU in the next 24 hours. That means she will be getting her own room in the Transplant Wing. At that time she may have visitors. - John
September 28, 2024
Saturday 6:00pmWe have our Jill back 100 hours after surgery. I knew she was back when she asked me to straighten the crooked photos that were taped to the wall. Her talking is still in a whisper but it sounds like music to my ears.For those of you that sent strength to Jill, it worked. Many thanks. You are not here but she is surrounded by your love. - JohnOne more thing. There is a picture of her today on the at Mass General Hospital photo album.
September 28, 2024
Sat 12:30pmAnother day, another miraculous moment. Rose and I arrived to find Jill sitting in a chair, eyes much more focused. Nurse Danielle very excitedly told us she had been doing some PT with Jill and she had been standing and marching in place! She was of course somewhat knackered, and yet she was then talking to us, looking at us clearly. Amazing! When the nurse asked her, do you know who these two are, she said--My siblings--with a shadow of a smile appearing. When John came in a few minutes later, she looked at him and said--i am shocked! Yes has started to move into full awareness of what has happened, and, yes, SHE is shocked! We assured her we are ALL shocked at her tenacity and strength. She smiled. We cried with joy.If, when we left her last night at 8pm, someone told me she would be speaking audibly and standing up this morning, I would have written that off as a wild imagination. But here we are, with another case of Jill exceeding expectations.They are removing more tubes and such things today as, with such determination, she keeps moving on her arduous journey. Chris and Rose (Bro and Sis)
September 28, 2024
Saturday 5:25amWhen I left MGH last evening I was concerned. Jill was not breathing deeply and was unable to cough. There was talk that they may have to re-intubate. The nurse this morning said that she is doing somewhat better and did not mention the putting the breathing tube back in.The nurse said that she had a good night, sleeping some. Jill needs to rest to build strength. She has a weak cough and she needs a stronger cough to help with the lung congestion that she has. They will be be doing a Bronchial Scope to look at the lungs from the inside. The nurses are getting her to sit up in a chair and doing chest PT to get her lungs moving.I know that you will send strength her way with your thoughts and prayers. She is still on an upward trend but she needs strength to recover from this major, major surgery. - John
September 27, 2024
Friday 2:50pmJill got the breathing tube out!! SHE IS BREATHING ON HER OWN WITH HER NEW LUNGS!! Progress is still slow but it is progress. Thank you all for your support in every way.John
September 27, 2024
Friday 12:30pmI saw Jill this morning. She didn't tell me this (as she can't speak) but I know she is VERY anxious to get the tube out. I was kicked out of her room as the pulmonologist had a some things to do. Keep your fingers crossed that one of these things will be to remove the breathing tube.
September 27, 2024
Friday 5:20amI just got off the phone with the nurse. She had just finished getting Jill washed up and ready for the day. She is stable and still has the breathing tube in and is a bit anxious. (I would be anxious too if I had a tube down my throat and my arms were tied down.) She is getting medication (Nitrix) through the breathing tube. Last night her Pulmonary Hypertension was a bit high, requiring the meds. This is something I learned that there is a separate blood pressure that exists between your heart and your lungs. I hope she gets the breathing tube out today. I don't expect her to be lucid enough to talk but I would like to give her a kiss. - John
September 26, 2024
5:30pm ThursdayNow that Jill is off most of the pain meds and sedation drugs she is getting antsy lying in bed. She is moving her legs and kicking off her blankets but she cannot raise her arms much. They are restrained so she does not remove the breathing tube. She is pretty much breathing on her own. She is still on the ventilator to deliver a drug to her new lungs. She may get the tube out tomorrow. She kept moving her arms as much as she could and I asked her if she wanted a hug. She nodded 'yes' and we hugged. - John
September 26, 2024
2:40pm Thursday Jill is coming around. It may not seem like much to you but she is now nodding and shaking her head slightly for yes and no to asked questions. I held up a picture of her grandchildren and she opened her eyes wide and raised her head. I had to leave the room for a medical procedure and I expect her to be more reactive when I return. She is amazing. - John
September 26, 2024
12:30pm
Jill is doing great. She is opening her eyes and reacting to talking. She squeezed my hand when the nurse asked her to "squeeze John's hand". She is off of sedation and is controlling her breathing with the support of the ventilator. She might get the breathing tube out today. She is right on track.
September 26, 2024
We saw Mom again last night and she had her eyes open and was moving her arms and legs! Her night nurse JoJo is a gem who gives her "spa time" with a bath and music and foot massage. JoJo says the night is special time to go beyond focusing on the medicine aspect and that she is forming a connection with Jill. Truly amazing. Also, the respirator has gone from "pressure control" to "pressure support" which means her new lungs are working! A true miracle. 10:15 am. Sarah (daughter) and Emil (son-in-law)
September 26, 2024
Hello Team Jill!We're grateful to be starting Day 2 with Jill's new lungs. We'll have an update on how Jill is doing a little later once we're able to get to the hospital, but I wanted to express our deepest gratitude for all the warm and positive words, thoughts, prayers, and rays of sunshine you all have been sending our way. We can feel it. We know my mom can feel it. She's working so hard right now, in her deeply resting state, to accept her new lungs and heal.As she begins to wake in the coming days, we know she'd welcome any notes or cards you want to send - it will be a while before she's able to text, call, or browse social media. Flowers are not allowed in the ICU, but if you'd like to send a card, note, poem, or any well-wishes, please send to my home and I will bring them in during my daily visits.Jill Ottowc/o Alyssa Jean16 Gregory St.Waltham, MA 02451We plan to tape photos and notes to the wall in the ICU in the coming weeks and know she'll feel your love and support.Love,Alyssa, Jill's Middle Daughter <3
September 26, 2024
Thursday 5:50amI called MGH and talked to Jill's nurse. She reported that Jill is doing "Great". She is at 30% room air and her blood oxygen saturation is at 95%. Today they will stop the sedation and Jill will wake up for the first time since Monday evening. I don't know about you but we all find this whole thing AMAZING. How she was called after just a short time on the "list." The police escort to MGH. Learning about how the lungs are tested and how she is a very good tissue match to the new lungs. The unbelievable surgery and how she is being cared for now by these special people. I see this as a miracle.John
September 25, 2024
Wednesday 6:20pmEmil, Alyssa and I just visited. My second visit today. Mom is deeply resting. A bronchial probe was done and everything looks good. She is now 21% on "room air" using her new lungs. They tell us she is right on schedule. Tomorrow they may take the intubation tube out.Sarah
September 25, 2024
4:02pmWe just visited her again and she is "slow and steady" as the NP tells us!-Sarah (daughter), Emil (son-in-law) and Alyssa (sister)
September 25, 2024
9:17am
It's a new day and we continue to have so much hope for our Jill/Mom.The nurses are lowering the pain meds and moving towards more oxygenation from the new lungs. She keeps opening her green eyes especially when we read your names with your beautiful notes of support. Please keep them coming!More later when we visit in a couple hours.Sarah (daughter) and Rose (sister)
September 25, 2024
7:07am
I called the hospital early this morning and talked to her nurse. Jill continues to do well.They are weaning her off the drugs that help the new lungs adjust to a new body. I am struggling with the concept that Jill's body has to accept another person's lung and the lungs have to accept Jill's body but I know modern medicine can make this happen. She is on a breathing tube that is helping to inflate her lungs. They will be weaning her off of that today also so her new lungs will be doing all the work. While she is intubated, she is kept under sedation so she doesn't fight having the tube in her throat. The nurse said she is very strong. We already knew that. John
September 24, 2024
7:04pm
We were very lucky to have her open her eyes when we visited later this afternoon! Her sister, Rose, and her 3 daughters got to witness that and reassure her that she did get her new lungs and she is resting up in the ICU. We can't say enough about the staff in making Jill feel safe and supported.The social worker wanted me to make sure to tell everyone that the surgery is the "easy part" of a long, rocky road ahead. We should expect challenges along the way. I'm going back for the final visit of the day soon. I will share everyone's beautiful messages of love and encouragement for the long road ahead with my mother.Sarah
September 24, 2024
11:50am
Sarah, her eldest here. My sisters and Aunt Rose just saw her. In my opinion, Jill looks better than I expected. She has so much color. She's peacefully sedated in the ICU. Her NP told us that her trajectory is "right on track". Immediate next steps include a probe into her lungs to see how the new lungs are doing and continued fluid drainage. Over the next 24 hours, she will still be unconscious as the new lungs have the chance to take over more and more oxygenation from the machines.
September 24, 2024
Tuesday 4:20am
I just talked to the transplant doctor. They successfully transplanted two lungs for Jill. Everything went well.
Thank you all for your well wishes, thoughts and prayers.
September 24, 2024
Tuesday, September 24, 2:08am
All is well and the operation continues.
I couldn't sleep so I walked over to MGH from the hotel. Jill had left instruction with the OR staff that I should not be disturbed so I could sleep. That is just like Jill to look out for me even when she is undergoing the biggest surgery of her life, (or mine)
I just heard from the OR nurse. The operation is still going on and all is going well. It started at 9:30. The first lung went in about 10:30 and they are now putting in the second lung. The lungs are a good fit. They expect the surgery will be done about 5:00.
I will continue to post updates here.
The lungs are a good fit means something. First, she must have lungs from someone about her size. We were told that a smaller person has a better chance of getting lungs than an average size person. Second, she volunteered to be part of a study. They will be studying her old lungs and "trimmings" from the new lungs after they fit them to her chest cavity. Again, always thinking of how she can help others.
September 24, 2024
9:12pm
Jill was brought into surgery at about 7:00 tonight for what we were told will be an 8 hour operation. I will post on this site as soon as I know more. Likely in the middle of the night. If you want to know more detail, continue reading. The first part of the surgery consists of a complex General Anesthesiology. There will be a breathing tube inserted at this point and Jill will remain in general Anesthesiology and will have a breathing tube. She will not be able to communicate with anyone for several days. The second part of the surgery is to hook Jill to an extracorporeal membrane oxygenation (ECMO) machine that helps a patient's lungs and heart when they are too sick or weak to function on their own. This machine will serve to provide Jill with oxygen in her bloodstream while the surgery takes place. The lungs will be replaced, one at a time. There is a key step where the ECMO is dialed down for the first time and the new lungs are “accepted” by the body. This will occur at about the 7-9 hour mark of the surgery. The new lungs will start inflating and functioning on their own. The surgeons close the cavity and begin to transition to post-op with careful monitoring by both the pulmonologist and anesthesiologist. Jill will be brought directly to the intensive care unit. Where she will remain until stable, likely a number of days. Isn't this a wonder!
September 23, 2024
4:59pm
One of the pulmonary doctors came in and we learned so much about the lungs. (But they won’t tell me where they come from.) This is SO FASCINATING! The lungs have already been harvested from the donor. We have been told that they are a very good tissue match to Jill. They are currently in Maryland being tested. The lungs are put in a machine where they are inflated and tested for viability, to make sure that they work well. This process takes a few hours. The doctor showed us a video of someone else's lungs being tested. Amazing. This machine was developed in Toronto where they do more than 200 lung transplants a year, the largest lung transplant center in the world. Toronto may even consult on these donor lungs. About 6:00 they will know if they have good lungs. At that point they are transported to Boston. Once they arrive to MGH, this officially starts the process for pre-op. This may be 10:00 tonight or later. Stay tuned.
September 23, 2024
3:18pm
We just talked to the anesthesiology doctor. Everything is still a "go" for later tonight.
September 23, 2024
Monday September 23, 3:00pm
Jill and I are waiting. We just talked to a transplant doctor. We have been told that the donor lungs a very good match. The procedure is that the surgeons decide that the lungs are viable and we will not know if the transplant will happen until it happens. Jill may even be in the operating room and under anesthetic before the final decision is made. This may be happen today or later tonight.
Send your prayers and good thoughts Jill's way.
John
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Guestbook
November 21, 2024
Jill & John!!!! So glad to hear that the last few days have provided beautiful naps, meals and cards :) Jeremy and I are just back from CO and some busy months so now catching up and wanted to say we have been thinking about you, telling your story to others and gobsmacked by your continued strength, determination, and love of each day...inspirational. From a snowy East St in Fort, we both send our love to you and the fam and hope the coming days include more meals together, Packer wins, Jill winning at cards most days, and plenty of smiles and laughs. xo xo Cynthia & Jeremy
Cynthia & Jeremy
November 12, 2024
Always in our thoughts hoping you are doing well and getting ready for some cards and wine
Ronald Lepri
November 12, 2024
Ron
Ronald Lepri
November 1, 2024
Jill - nothing worth having is ever easy... While no one can make the struggle go away, know that you have an entire army behind you. Continue to live in the precious moment. We love you!
Chris Howe
October 31, 2024
Oh, Jill !!! such wonderful progress and success, one day at a time... it is wonderful to hear of your news, the photos, artwork of the living and breathing lungs that show so much love in them ! We are with you every step of the journey and I think of you and John and your family every day !!! cant wait to see you
much love and Happy Halloween !!
Jane Kowalski
October 26, 2024
Wow! Happened upon a picture of you and Sarah and saw the link to this page! Know that Charlie and I are sending our best wishes for a fantastic recovery. ♥️
Renee Barr
October 16, 2024
Wishing you the best in your recovery.
Mark Jenness
October 16, 2024
jilly bean in my thoughts and daily breath work.... i am humming a higher note in honor of your mending. keep doing the work required... your future jilly will thank you. still holding your hand and loving you. linda
dennis and linda geszvain
October 12, 2024
Happy Saturday to you Jill! I\'ve just been catching up on the last few days of your journey. Though the roller coaster is no surprise I\'m sure it is tough for you all to navigate. Thinking of you always and wishing you even more peaks, less valleys. You have made such remarkable progress so far! Sending strength and healing to you and your family.
Michelle Murphy
October 11, 2024
Good morning Ottows. Thinking of you and smiling and cheering as i get caught up on many missed pages. This health roller coaster is intense. I\'m grateful for science and family love and Facebook.
Beth Gehred
October 11, 2024
Wishing the absolute best in your recovery. Thinking of you and all the wonderful experiences we had together at JCLC. And I know that you have many more happy experiences ahead of you. Blessings to you, John & the family.
Bert Griffin
October 10, 2024
This is wonderful news!!!! I am so proud of you and your family as you move through this amazing, challenging, and life-giving journey! Sending our prayers and love,
All of the Mendoza Family
Gentle Hugs!
Kathy, Dana, James and Matt
October 7, 2024
Another miracle at MGH! Offering prayers for your recovery. Be well Jill
Kathleen Walsh
October 7, 2024
Moving out of ICU...yay! Prayers keep coming, Jill. I thought of you while in the garden today. The white chairs are waiting for you!
Love to you and John,
Barbie
Barbie Savacool
October 6, 2024
We love you Jill & John.
Mark Moede Mary White
October 6, 2024
What a Miracle! We are cheering you on!!
Kimberly Hearl
October 4, 2024
Jill, I am keeping you in my thoughts and prayers. What a Journey you have been on. Take care and God Bless!
Laura Sedlar
October 4, 2024
Continuing to hold Jill, her care team, and family in my thoughts and prayers. Prayers for continued strength and healing as your new lungs get settled in to their new home. What a gift!
Kristen Nordberg
October 4, 2024
Keep the good news coming!
Sue Hartwick
October 4, 2024
Daniel and Tiffany just shared the extraordinary news about your lung transplant. We would love to see you when we visit Daniel and Tiffany in 2025!
Pat and Kim Streater
Patrick Streater
October 4, 2024
Love you Ottows!
Daniel Streater
October 4, 2024
Dear Jill:
We are so happy and relieved to hear that you are up walking, eating food, and reaching other huge milestones. Always thinking of and praying for you, John and your family. Debbie and Tom
Debbie Kopps
October 4, 2024
Jill sending continued healing prayers, huge hugs and kisses and tons of love. I check updates numerous times a day as i cheer you on. There is so much gratitude for this experience, for John, your family and entire medical team! Much love from my family! ❤️
Linda Worden
Linda Worden
October 4, 2024
Jill,
We are thrilled to hear about all your progress. Donna and I were absolutely elated to hear you were awaiting your new lungs last week. We are rooting for you as you continue this journey of recovery and new beginnings.
Best Wishes from your Pulmonary Rehab friends,
Eliza and Donna
Eliza Dabney
October 3, 2024
Way to go Jill. So happy for you, your family and friends. Your positiveness is wonderful!
Love,
Jude
October 3, 2024
I look forward to the daily updates. 1% each day! (Atomic habit book by James Clear if she needs inspiration). I’ll keep Jill in my daily prayers.
Marie Torris
October 3, 2024
wow, such progress.... eating?!? keep working hard friends. so proud of you all. healing love coming strong at noon breathe in the love!
Linda Geszvain
October 3, 2024
Hi Aunt Jill,
You are so strong and amazing. Falyn and I think of you everyday.
We love you.
Sending you hugs and kisses.
Love you so much Melanie and Falyn
Melanie small
October 3, 2024
Hi Jill,
Our family is thrilled beyond words to hear of your incredible progress through this entire experience. We KNOW you are the most amazing and loved member of your family and community. Congratulations on your new chapter in life. Can not wait to see you ! Thank you to your family and all your medical team for the incredible support and care. Much love and prayers for each day to bring new strength and progress. ~~Jane, Michael, Abby and Emma Kowalski~
Jane Kowalski
October 3, 2024
Jill,
So exciting to hear about your progress every day. Your new lungs must be as happy as you are!
Love and prayers,
Barbie
Barbie Savacool
October 3, 2024
You are amazing, Jill!
Richard & Susan LaCamera
October 3, 2024
Hi Aunt Jill,
You are so strong and amazing. Falyn and I think of you everyday.
We love you.
Sending you hugs and kisses.
Love you so much Melanie and Falyn
Melanie small
October 2, 2024
Wishing you a speedy recovery!
Rob Thomas
October 1, 2024
Jilly Bean .... my heart is so full of love for you and your journey of breathing life in. you have been our beacon of hope and belief in finding joy again with a big breath. my hope for you has always been of healing....i take in life with perfect balance! cheers to you my friends. love heals..... and you are so loved! the geszvains.
dennis and linda geszvain
October 1, 2024
This all is really a miracle. Bob and I are praying for you all as you navigate this new journey. You are in our hearts. Sending big fluffy hugs.
Leslie and Bob LaMuro
October 1, 2024
Jill, you are a beautiful warrior! Prayers for your continued strength and recovery! Much love!! ❤️
Mary Lou Barian
October 1, 2024
All the best Jill! I'll never forget going to my first concert with you :)
Jon Brundage
October 1, 2024
Jill
You are doing a great job. We hope that you feel the love from all of us and it gives you reason to smile. Love you.
Jan Martin
September 30, 2024
Your friends at JCLC are thinking of you and praying for a full and speedy recovery.
Anonymous
September 29, 2024
Wishing for a speedy recovery. You are in my prayers .
Margaret Thompson
September 29, 2024
Wishing you a speedy recovery.
Pam Petch
September 29, 2024
This is a note to Jill\'s supporters from her husband John
We have been overwhelmed with the support we have received. Yesterday I read to Jill notes left on this guestbook and then the names of people that have contributed to the campaign. Many of those names we did not recognize. She was overcome by your love and support. Thank you Team Jill.
John Ottow
September 29, 2024
Mom, I am overjoyed with this set of milestones you reached today! To see your eyes, to hear your voice and to even smile with you is all a treasure. You are amazing! Keep the strength up. See you soon.
Sarah Bernadette Ottow
September 28, 2024
Sending love and healing thoughts to you Jill! You are one strong and determined gal, with a great team behind you. Wishing you a steady recovery. Love to you John and all the Ottows, as you support and walk with Jill on this difficult journey.
Sarah Jaicks
Sarah Jaicks
September 28, 2024
Dear Ottow Family: Steve and I are sending our love and best wishes for Jill\'s recovery. I am honored and humbled to be part of Team Jill. I am learning so much, and making new friends with Leslie and Kim. Thank you for all your loving care and detailed updates. Wisconsin is sending good vibes and lot of love!
Jill Kessenich and Steve Tesmer
September 28, 2024
Jill, I am so happy that you were able to get new lungs so soon after being put on the list. Truly a wonder! Reading through all of the updates, I am in awe of the miracle of medicine, the strength that you are showing, the progress you are making and the unwavering and incredible show of love for you from your family and friends. I think of you often and am praying that your progress continues on track. I know you\'ve got a long road ahead, but you couldn\'t be surrounded by more support! :)
Michelle Murphy
September 28, 2024
Mom,
You\'ve made such good progress so far. I\'m encouraged watching you hit your benchmarks and while the road will be long, you\'re off to a great start!
Love, Jenna and Nate
September 28, 2024
Dear Mom,
I’m sending you strength and healing. I know this is hard and there are a lot of twists and turns on the road here for you.
Know how much we all love you and are rooting for you.
Love,
Sarah
Sarah Bernadette
September 28, 2024
\"The [wo]man who removes a mountain begins by carrying away small stones..\" You are moving the mountain, lady! Continued healing to you. Sending love and hugs.
Chris H.
September 28, 2024
Sending love and strength!
Charles McDermott
September 27, 2024
Jill
So happy to hear your surgery and recovery are going well. You are a strong woman and you\'ve got this 100 percent. We are sending lots of hugs, strength, patience and love.
Sending love to John and your family.
Love Huck & Mary
Mary Sedgwick
September 27, 2024
Jill
So happy to hear your surgery and recovery are going well. You are a strong woman and you\'ve got this 100 percent. We are sending lots of hugs, strength, patience and love.
Sending love to John and your family.
Love Huck & Mary
Mary Sedgwick
September 27, 2024
Sending lots of prayers for a speedy recovery!
Yolanda Rios
September 27, 2024
Jill, you are, as always, an inspiration, we will support you in whatever you need. Love and, soon, hugs
Chris and Francine
Chris Martin
September 27, 2024
You\'ve got this Jill. You are amazing!
Amy Lutzke
September 26, 2024
Sending love and wishes for a smooth and speedy recovery.
Laura Flieder
September 26, 2024
Beyond overjoyed here!!!! Continue your road to recovery!!! Sending huge hugs, prayers and love!!!!! I never would have known about dolphins having a p in it., if it was not for you!!!! ❤️
Linda Worden
September 26, 2024
Prayers to you & your family, Jill. Love & positive energies from WI Ruby
Ruby Eileen Benson
September 26, 2024
Hi sweet Jill. We are so delighted to hear the updates from your family. We are not surprised at all about how wonderful they are and how strong you are. It’s a great combination. We are thinking of you all constantly. Love Dood &Ceil, Greg, Brad and Steve
Ceil Smith
September 26, 2024
Jill, we\'ve been thinking of you nonstop since you were wheeled into the ICU only 50 (!) hours ago with new life-giving lungs, savoring every update of how your beautiful and caring nurses have been slowly, gently bringing you back from your amazing journey through the land of modern medical miracles, so that very soon you can take the first tiny steps into your next adventures. And yes, that will include the joy of talking walks with your grandchildren!
I (Chris) am flying up tomorrow to be with you. I cannot wait to see those lovely (and mischievous) green eyes; maybe, if I\'m very lucky, even an impish smile or two.
Jill, I still remember the day 70 years ago, sitting in the big-old 1950s car with Dad as he brought you and Mom home from the hospital. Looking at that little bundle in Mom\'s arms (no child seats, no seat belts!), your sleeping newborn face barely visible in your wraps, I remember thinking--So just who is this little cherub face? Since that day, little sister, I have continued to learn what a remarkable human being you are: a fifty year (!) partner to your big, strong giant-of-a-man husband John, an non-stop extraordinary mother and grandmother, a talented organizer and leader in the worlds of business and non-profit enterprises, a craft wizard, and throughout these seven decades I have never stopped being amazed and enrapt at your unflagging vivacity, glowing energy, firm determination, multi-faceted creativity, big-hearted empathy, deep strength, and unrelenting perseverance in the face of the (many) challenges life has strewn in your path. So I have no doubt--none--that you will come out the other side of this biggest of obstacles with your usual aplomb.
You\'ve got this, sistah!
Big Brother, sending Big Love,
Chris
Chris and Francine
September 26, 2024
Wishing you the very best in your recovery! - friend of Patti Lynn
Tracy Cook
September 26, 2024
PS: Emil and I will back very soon!
Love you.
Sarah Bernadette
September 26, 2024
Dear Mom,
Even though I am leaving later today after three days being here, I am with you in spirit, continuing to send you healing energy and beautiful, clean oxygen to fuel your incredibly strong body and spirit. I\'ve treasured our time together in these early days and, more than anything, value the nurses (Eleni and JoJo) who treat you, calm you and root you on.
So many people are cheering for you
Sarah Bernadette Ottow
September 26, 2024
Jill, you are truly a warrior and a worthy canasta opponent.
You’re living proof that wishes do come true. Get better soon so we can resume our canasta and hiking in the white mountains.
Love you,
Lenny
Lenny Scherer
September 26, 2024
I continue to think of you, Jill, and am so happy to read the positive updates. You are such a strong women, keep up the good work. Sending love and big hugs.
Millie Thompson
September 26, 2024
As you told all of us at the Hope Lodge to keep strong, you keep going strong also Jill! We are all behind you.
Tim Kressler
September 25, 2024
You are in our prayers for a speedy recovery. Love to all, Mary & Mike Wichser
Mike &Mary Wichser
September 25, 2024
Jill is one of the most determined people I have ever met. At the same time she is such a positive, compassionate and giving person. Please share with her how much we love her and continue to pray for her continued healing.
Laura Flieder
September 25, 2024
We are keeping you in our thoughts and prayers throughout the days. Sending you our love and wishes for your healing and comfort with gentle hugs
Love Chris and Bruce
Christine Goodwin
September 25, 2024
Love to you both. Our prayers and deepest thoughts are with you. Looking forward to future times together
Ron and Donna
September 25, 2024
Sending lots of love and positive energy from Wisconsin!
Love,
TnT and the A-Team
Terry Grogan
September 25, 2024
Jilly
I am praying for your body to accept your new lungs. I am so hopeful for you and will keep you in my heart and thoughts. Keep fighting, girlfriend! You got this!!!
Love you
Leslie LaMuro
Leslie LaMuro
September 25, 2024
Sending love and prayers to you Jill, and love to the entire family. Modern medicine is a beautiful thing, and I have faith that you and your new lungs will pull through this with a newfound strength. You certainly have the best support system around! Love from all the Farrells
Katie Farrell
September 25, 2024
You’ve got this Jill!! Sending healing prayers from WI! Go pack go!
Molly Goetzinger
September 25, 2024
Sending you much love and hugs hoping for a speedy recovery!!
Huck and Mary
Mary Sedgwick
September 24, 2024
Rooting for you Jill!!
Robin Schectman
September 24, 2024
You got this Jill!
Anne Brenton
September 24, 2024
Go Jill! <3
Brynn Hausz
September 24, 2024
You go, girl! You've got the spirit and we've got the love to send your way. Hi to John. Karen Reinhardt and Jim Marousis
Karen Reinhardt
September 24, 2024
I am so very happy for this medical miracle for you and your family and friends!. Many tears of gratitude and prayers for all the healing you need . Big gentle hug. Love, kathy
kathy mendoza
September 24, 2024
We are so happy that Jill is doing well.
Robert Cooke
September 24, 2024
You are in our thoughts.
Do Yeong Shin
September 24, 2024
Such great news about Jill getting her gift of new lungs. Thoughts, love and prayers continue.
Debbie Kopps
September 24, 2024
Dear Jill and John. Am pleased to assist you in your long hoped for surgery and recovery. Bless you both as you meet this challenge
Kay Galloway
Helen K Galloway
September 24, 2024
We are thinking of you and sending lots of love and healing. ❤️Monica & James
Monica Ferrell
September 24, 2024
Best wishes for a continual success track. You are loved and admired!
Nadine Nesbitt
September 24, 2024
Dreams really do come true. I’m so happy for jill and john. Sending lots of love and hugs
Harriet Shafran
September 24, 2024
Happy to hear that everything went well.
Laura Flieder
September 24, 2024
Thank God! Wonderful❤️
Sending you all our love. Now the healing begins.
Thank you for the updates John.
Sandra Wagenpfeil
September 24, 2024
Sending big love and hope and strength for all you are going through. Keeping your steady, funny, thoughtful self in our lives is my goal. Happy to be cheering Team Jill!
Beth Gehred
September 24, 2024
So happy to hear that everything went well! You\'re in our thoughts and prayers and we are cheering you on for a speedy recovery!
Tricia Flahive
September 24, 2024
The best three words one could hear at the end of the longest 24 hours: \"Everything went well\", music to my ears.
Love to you both
Chris & Francine
September 24, 2024
We love you so much, can't wait to see you again.
Patti Bryce Lynn
September 24, 2024
Jill, you and John are in our thoughts and prayers. We know that you are receiving the best possible care and that you are both fighters. We hope you have an easy recovery.
with love,
Robert and Nancy Cooke
Nancy Cooke
September 24, 2024
Jill and John, you will be a constant on my mind as I send good energy your way. Science is amazing and you are in good hands. Peace to all.
Sheril Raymond
September 24, 2024
We are so happy to hear this is finally happening for you. We are thinking of you and your family. We send you love and prayers and hope for a tremendous success. We love you Jill. Give your sweetheart our love too. It is so hard to be the one that waits. Our prayers are with you both.
Love, Sandy and Uli
Sandra Wagenpfeil
September 23, 2024
Sending so much love and healing your way!!!
Much love Cynthia & Jeremy
Cynthia Holt
September 23, 2024
Love you all so much. Keep that big smile on your face, beautiful!
Kara Jackman
September 23, 2024
Here you go! Sending prayers for successful surgery and then on to a great recovery. Prayers for you and John and all the medical team. Much love, Barbie
Barbie Savacool
September 23, 2024
Sending you prayers for a successful transplant and an equally successful recovery.
Tom & Penny
Tom & Penny Kelley
September 23, 2024
Stay strong and hang on to John. You are in the hands of experts.
We love you,
Dood and Ceil
Cecilia Smith
September 23, 2024
Wishing you all the best Jill. I will make sure I make you a carrot cake when this is all done.
Keep strong. And John, I’m only a phone call away.
Tim
Tim Kressler
September 23, 2024
Praying! I hope you have a speedy recovery!
Taylor Haselton
September 23, 2024
Jill and John, We send loving hugs, we are with you every minute of these long hours of waiting to get the final decision.
Chris & Francine
September 22, 2024
Ottow love!
Kitty Welch
September 18, 2024
Love you Jill! I’m so glad you are on the transplant list now. I will be thinking of you and your family and hoping all goes smoothly.
Karina Wagenpfeil
September 16, 2024
I send hope, prayers, and love to you and the miracle of transplant that is before you. Wishing you and John the very best.
Janis Martin
September 13, 2024
We are saddened by the news of your condition. We hope and pray for the treatment you nee and that it will restore your good health.
Best wishes to John and your family.
Ann and Andy
Ann/Anders Engelman/Yocom
September 13, 2024
With Susan's and my best!
Sam Butler
September 12, 2024
Wishing you the best of luck. Hoping you have a quick recovery.
Michael Boucher
September 11, 2024
Jill & John - Sending our loving thoughts to you both, as you tackle the ups and downs associated with this health challenge. We\'re here for you. Come stay overnite whenever it helps, last minute is fine.
Ted Finch & Jeanne McDermott
September 11, 2024
Sending you love and healthy healing Jill!
Angela Barth
September 10, 2024
Praying hard, Love you both!
Thomas Tackman
September 10, 2024
Sending you love and positive energy, Jill!
Diane Doersch
Mail a Check
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Jill B Ottow
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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