Help Hope Live in Honor of Sophia Isler

Sophia was born with congenital Cytomegalovirus. We had no idea what the virus was or how it could affect our daughter. She was born full term and passed all newborn tests. At six weeks old, she had a snapshot MRI because her head was smaller than normal. at that appointment we found out about her brain damage. She was then tested and that’s how we found out about CMV. She had to cataract surgeries and a day before she turned three months old she had a seizure. Because of CMV she has been diagnosed with epilepsy, spastic, quad, cerebral palsy, congenital cataracts, hip dysplasia, Kidney and liver issues, gastronomy status (GJ Tube), acute lung failure among other things. She has had 10 surgeries in her eight years of life with one additional surgery to fix her 79° scoliosis curvature. And the last two years she has been hospitalized in the PICU 12 times. She spent has spent multiple Thanksgiving, Christmas, her birthday, Fourth of July, Halloween and New Year’s. Medical bills have been piling up and the need for a wheelchair accessible Van is needed. Everybody who has met her loves her. Her smile and laugh are contagious. She is also extremely smart and extremely sassy. She loves wearing dresses with comfortable shoes. #SophiastrongfundraiserSophia is an amazing, strong and capable eight-year-old. She loves people, music, anything water related and she’s a daredevil. If she could ride roller coasters she would. Her favorite color is yellow and is currently in love with everything dinosaurs. She still is a princess though and loves Disney. I truly believe she was a mermaid in the past life. She loves being outside, loves the wind and loves traveling places. And if that new place has a pool or a beach, she’s in heaven. The sounds of birds relax her and makes her smile, so mommy always whistles every time she says hello. Sophia communicates with her iPad, using head switches to scan and confirm what she wants, how she’s feeling or who she needs. She loves being up in her stander and playing silly games. She has switched adapted toys and games to help her be more independent. She loves bath time and will let you know when she wants to go in the bath. She loves holding people’s hands, especially her little boyfriend’s hand, Noah. She rocks at all her therapies but is super stubborn and sassy when she doesn’t want to. She will fake being asleep and will open her eyes every now and then to see if they’re still trying to do therapy. She loves everything scary, including haunted houses. She went through her first haunted house in Tennessee. It was Ripley’s believe it or not haunted house and they catered it just for her. She was laughing hysterically thru the whole house. She is our hero.Family and friends of Sophia Isler are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with a Catastrophic Illness. Sophia has chosen to fundraise with Help Hope Live in part because donations are tax deductible for contributors and will only be used to cover medical and related expenses.