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Help Nicole Stay Independent and Active

My name is Nicole, and I was diagnosed with a rare form of muscular dystrophy in 2023. While this condition has caused muscle weakness and changed the way I do things, it hasn’t stopped me from living life to the fullest. I believe that if you can do something you love, you should do it—and that’s exactly what I strive for every day. I am passionate about my work with children, dancing, adaptive sports, being outdoors, and spending time with family and friends. This past year, despite my muscles weakening, I’ve continued finding ways to stay active, including performing in my first-ever dance recital with Move Inclusive Dance—a huge milestone that meant so much to me.

To support my mobility, I use braces and assistive devices, and I’m now in the process of training to drive using hand controls. However, my current vehicle does not meet my needs, and I need an accessible wheelchair van to maintain my independence and continue doing the things I love. I’ve been working with Mobility Works to find a van that can be adapted with the necessary features, but the cost of an accessible van is significant—averaging around **$50,000**. I am fundraising to help cover the cost of the van as well as ongoing medical expenses related to my mobility needs. Having this van will be life-changing for me. It will allow me to get to work, stay active in my community, and continue participating in the activities that bring me joy. It will also give me the freedom to go places without relying on others for transportation.

Updates (2)

October 7, 2025

I’m traveling to Iowa twice a year for medical care and my second trip this year is coming up soon.

July 30, 2025

I traveled in April to participate in a natural history study with the Muscular Dystrophy Clinic in Iowa. They’ve been studying the specific gene (GMPPB) responsible for the muscular dystrophy. It was a fantastic trip and I learned new information and started a medication to reduce the muscle fatigue.

Photo Galleries (6)

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Guestbook

August 19, 2025

Loved your fundraising videos!

Anonymous

February 2, 2025

Good luck! I hope this gets you a little bit closer to your goal! <3 Lindsey

Lindsey Becker