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Help Emma's Home Become Wheelchair Accessible

Family and friends of Emma Nowell are raising money for the nonprofit Help Hope Live to fund uninsured medical expenses associated with a Catastrophic Illness. Emma has chosen to fundraise with Help Hope Live in part because donations are tax deductible for contributors and will only be used to cover medical and related expenses.

We are raising money to help with wheelchair-accessible home, educational, medical, and quality of life expenses. Emma has a genetic condition called SMA that affects nerve cells and causes muscle weakness. She is unable to walk and uses a motorized wheelchair. Her home is not set up to accommodate her needs, especially as she grows. Currently, her chair is not used inside, and she is carried by family and caregivers around the home. The bathroom and tub are too small and do not accommodate her assistive devices for bathing and toileting needs. Mom is homeschooling next year due to functional limitations, and there are expenses involved with that. Also, Emma wants an adapted trike so she can enjoy riding with her sister. Insurance will not cover this. Some of her medications are not covered by insurance either. Please consider helping Emma with these expenses so she can enjoy the best life possible. She is such a sweet, sassy, smart, creative, and beautiful little girl.

Updates (4)

September 24, 2026

We were on the news this morning!! Let me know if you saw us live!!

We are fundraising again!! Tee it up for Emma!

If you're interested in playing in the tournament or sponsoring a hole, go to the link below, click on the blue section that says fundraisers and you will be able to pre-register yourself/a team so that you will get lunch and a t-shirt.

https://www.wspa.com/your-carolina/tee-it-up-for-emma/

May 17, 2026

Hi, all! Thanks for supporting Emma. As always we appreciate your donations, thoughts and prayers! Emma was able to come off of long term antibiotics for the surgical wound infection and is healing nicely. Her back still hurts at times but seems to coincide with needing to lengthen the rods. It seems to get better after they've been adjusted. She is having some hip pain as she is sitting up a lot but Mom is stretching her and treating with ibuprofen.

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Guestbook

September 14, 2026

Sorry I couldn't make it to the Golf Tournament. We will continue to keep Emma in our prayers.

John Kull

December 3, 2025

Hi Emma, we’re praying for you and your family!

John Joyce

December 2, 2025

Love, hugs and prayers always, sweet Emma, and family!

Nona & Papa Sherbert