Help Hope Live for Charlotte Terrell
Charlee has a genetic disorder called Hypermobile Spectrum Disorder, or HSD.
HSD refers to a group of conditions characterized by excessively flexible joints that cause systemic symptoms throughout the entire body and is directly related to almost every co-morbidity Charlee is diagnosed with. (She currently has 14 diagnoses that all fall under the HSD umbrella.)
Updates (9)
December 13, 2025
Good evening from Manila, Philippines! I haven’t been able to update on here as much as I hoped. We are mostly on cellular service and it’s spotty, plus I only have my phone so typing everything out takes time. And we have been busy!Charlee had her surgery Dec 11. The surgeons found her duodenum was kinked and twisted. They elongated her intestine and secured it properly. They also reinforced her colon. While we cannot guarantee this won’t happen again, we all hope now that it’s been discovered and fastened to the abdominal wall, the likelihood of reoccurrence is low. Charlee had 4 bites of a popsicle and is on liquid diet. Tomorrow we will introduce soft foods like yogurt and rice and see what she tolerates. We are still trying to manage her pain. As soon as I think we get it controlled, it will spike back up again, so tonight we tweaked the plan again to see how she does. I’m more than pleased with the care we have gotten. Dr. Alvear and his colleague, Dr. Suntay, are amazing! If you want daily updates, feel free to follow my personal Facebook page, Misty Carter Terrell. I will update on here as I’m able!
November 30, 2025
I am THRILLED to report that CHARLEE'S PASSPORT CAME YESTERDAY!!!! What a HUGE sigh. of. relief!!!!!! Our bank loan has not yet gone through, so we have a meeting with them tomorrow. We need to send the funds for the surgery/hospital asap, and thankfully we had some generous donors cover that until we get this loan sorted out. The only other "obstacle" I have this week is getting one medication earlier than our normal scheduled pick up and with insurance approval. It is an expensive med, so hopefully tomorrow I can get that sorted out w/ insurance. I had some overwhelming flooding of panic last night. It's one thing to travel alone...I've done that- even to the country Ghana- and it didn't cause me severe anxiety. But traveling across the world with my medically complex kid who is in chronic pain, without full guarantees that this will help her eat without pain, makes me feel high anxiety. I told Jim my brain feels like an Olympic Game ping pong ball. Having been diagnosed with ADHD does NOT help matter! I'm trying to be very intentional to stay grounded, do my "box breathing", manage my executive functioning by setting alarms on my phone and making lists to check off each day. I'm simply riding the waves of panic when they hit, being extra gentle with myself, and working through it in a healthy way. That way, come a week from today, I'm a source of calm and strength and clarity for my girl. I can't believe we have raised $7,640! WOW! Thank you very very much. While we still have a ways to go, I wanted to remind everyone that if we exceed funding for this particular trip, which would be a miracle in and of itself, we will set any additional funding for more medical travel next year. She has to see a surgeon in Virginia in February, and we will at some point be traveling multiple times to either Utah or Wisconsin for her Nutcracker/Kidney Auto Transplant surgery. We also desperately need to find her a gently used car w/ appropriate Assisted Driving Safety features so she can start her life as a college student/young adult. While Charlee does have her drivers permit, she has not driven much because our older cars are not equipped with the accommodations she needs to do so safely. Help Hope Live will not approve reimbursement for the entire car, but they did approve helping with the higher trim options she needs. Surgery is scheduled for Dec. 11th. We do not yet have a time, and I think we are supposed to zoom with the surgeon(s) at some point this week, prior to our departure.I will do my best to update more regularly when we are in the Philippines. Right now, days are crazy as I get everything in order and all our extra medical equipment, formula, meds, etc needed for 4-7 weeks out of the country. We feel God's presence and even in the state of panic that sometimes hits, I also feel so much peace at the exact same time...so it's very very strange. But an "okay" kind of strange. Sending love. Thank you for continued support, thoughts, love, prayers, energy...we feel it.
Photo Galleries (1)
Guestbook
December 14, 2025
You will he in my prayers
Mary Clark
December 10, 2025
God Bless you and your family sweet girl!
Jeanne Bryant
December 3, 2025
Our family will be praying for you and Charlee on your journey over the next weeks. Stay strong and know that God is in control and loves your
Warrior spirit for your daughter.
“I can do all things through Christ who strengthens me.” Phillipians 4:13
Kim & Rick Coonce
Lone Jack, MO
Kimberly Coonce
