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Help Hope Live for Charlotte Terrell

Charlee has a genetic disorder called Hypermobile Spectrum Disorder, or HSD.

HSD refers to a group of conditions characterized by excessively flexible joints that cause systemic symptoms throughout the entire body and is directly related to almost every co-morbidity Charlee is diagnosed with. (She currently has 14 diagnoses that all fall under the HSD umbrella.)

Updates (10)

December 23, 2025

Hello all! We didn’t have WiFi so it’s been very difficult to keep this updated! I hope many of you have seen my updates on Facebook. Charlee had her follow up today, and she is doing really well. She ate some frozen yogurt tonight without any pain at all. This is truly AMAZING!!!! Even 1 bite would have caused her debilitating pain for hours prior to this surgery. Dr. Alvear and Dr. Suntay are truly giving LIFE back. We are trying to get out once/day in Manila. I can’t believe tomorrow is Christmas Eve…it is hard to get in the Christmas spirit, I think because we aren’t home and the fact that it is 88 degrees today! I’m very excited to host Christmas at our little condo. We invited the other patients (2 Canadians, 1 Australian) and their caregivers. We also have 1 of our nurses coming. ❤️While Charlee is slowly introducing more foods, we have noticed her Nutcracker Syndrome is still causing pain/severe pelvic congestion. We are holding onto hope for a miracle that over time, it will resolve. Time will tell. One highlight was a group of teen boys who thought Charlee was a cutie…so much so, they SANG to her. She was so shy and socially awkward but also loved every second of it!!! It was truly adorable. Merry Christmas to everyone! We love you and thank you for continued support. -Misty

December 13, 2025

Good evening from Manila, Philippines! I haven’t been able to update on here as much as I hoped. We are mostly on cellular service and it’s spotty, plus I only have my phone so typing everything out takes time. And we have been busy!Charlee had her surgery Dec 11. The surgeons found her duodenum was kinked and twisted. They elongated her intestine and secured it properly. They also reinforced her colon. While we cannot guarantee this won’t happen again, we all hope now that it’s been discovered and fastened to the abdominal wall, the likelihood of reoccurrence is low. Charlee had 4 bites of a popsicle and is on liquid diet. Tomorrow we will introduce soft foods like yogurt and rice and see what she tolerates. We are still trying to manage her pain. As soon as I think we get it controlled, it will spike back up again, so tonight we tweaked the plan again to see how she does. I’m more than pleased with the care we have gotten. Dr. Alvear and his colleague, Dr. Suntay, are amazing! If you want daily updates, feel free to follow my personal Facebook page, Misty Carter Terrell. I will update on here as I’m able!

Photo Galleries (1)

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Guestbook

January 28, 2026

Praying for you!

Lisa LARSON

January 18, 2026

We love groovy fries too! Hope you the best.

Jackson Eberle

January 11, 2026

God bless. I hope your blessed with the strength and courage to keep fighting for a good life and happy time.

Tycjan Sickels