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Our son Max was welcomed into this world on September 1st, 2009. Our baby Max was born a perfectly happy, healthy and active baby. Ten days later on September 11th our lives were changed forever. Max was airlifted to Children’s Healthcare in Atlanta where it was discovered that his heart was failing him. After three days of grueling tests the doctors discovered that Max had caught a virus and the virus had attacked his heart. We were told that our sweet baby Max would have to undergo a heart transplant in order to survive.

Max had his first surgery when he was three weeks old. The surgeons inserted the Berlin Heart (a mechanical pump) into his tiny body. Max was the third baby to receive this ventricular assist device at Children’s and had been on it longer than the other two babies. Without this device, our sweet baby Max would not have been able to survive while waiting to receive his new heart. Great news—on November 8th, Max received his transplant! We were so excited that we could finally bring our baby home with us.

Updates (14)

June 24, 2011

It's been a long time!

It has been a long time since we have updated Max's page! This past year has been a very busy year for us. Max has officially been off of the vent for an entire year! He still has the trach but we are hoping that maybe in the next 6 months they will be able to pull it. Max continues to have many doctors appointments, he sees multiple specialists that include, cardiology, neurology, gastroenterology, and urology, along with multiple visits to his pediatrician anytime he shows signs of being sick. He has weekly therapy visits both physical and speech and he has been working VERY hard, while Max cannot walk or talk yet he has learned a few words and has learned to scoot on his bottom, these are both things that the doctors never expected him to do because of the brain damage from the strokes, he continues to amaze his doctors!!

Max became a big brother on 11/29/10 and it has made our family feel very complete, watching him with his baby brother is amazing!

We recently had a scare with Max he spent the end of April and most of the month May in the hospital, he was diagnosed with interstirial pneumonia, which for him can be very dangerous since his immune system is compromised with all of the medicines he takes to prevent rejection. Thankfully Max pulled thru and has been doing great since he came home, he continues makes us smile and laugh and remind us just how blessed we are to have him here with us


February 16, 2010

Back Home Again!:>)

Today, being February 16th, we are heading out to Children's to bring Max back home with us!!:>)

It was a short stay and hopefully his last for quite some time!

We have yet to receive the equipment necessary to travel with Max so it should be an interesting trip out of the hospital and home in the car for the first time!LOL

Erin, Rick, Emma, and Max

Photo Galleries (3)

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July 6, 2011

Mr.Max, you hang in there. You're a survivor. I think about you everyday.

Uncle B

September 15, 2010

I saw Max's 1st Birthday pics on wsbTV and I couldn't believe his smile!
God bless him!

M. Roman/Marietta, GA

April 16, 2010

Erin, you and your beautiful family are in my prayers.

Cathy Newton; Gardner, MA