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Accessibility for all: Helping people connect with who and what matters most
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On August 7, 2024, my life—and my family’s—changed in an instant.
At 50 years old, I suffered a rare spinal cord stroke. Just days before, I was mowing the lawn and playing golf. In a single moment, everything I understood about my body, my independence, and my future was rewritten.
I am grateful to be cognitively strong and to have full use of my arms and hands. That gives me some independence. But being paralyzed from the chest down has changed daily life in ways I never imagined.
What I miss most are the simplest things—the ability to care for myself and to fully show up for my family, especially my wife, Lauren, and my son, Ryan.
Our Goal
$61,000 per year for the next 3 years
This goal supports the ongoing care, rehabilitation, and resources needed to help me regain as much independence as possible.
What Life Looks Like Now
The past year has been filled with uncertainty—but also progress.
I spent nearly 100 days in hospitals and rehabilitation facilities, relearning basic skills most people never have to think about. That work continues today.
My spinal cord injury is classified as “incomplete,” which means recovery is possible. I have already regained some sensation in my legs and feet. Continued progress depends on consistent therapy, training, and support.
Daily life now includes challenges most people never have to consider—safe transfers, mobility, and adapting to a new way of living.
How Your Support Helps
Your generosity directly supports:
Physical Therapy Insurance covers only 30 sessions per year, but meaningful progress requires more
Caregiving Support Approximately $2,500 per month (not covered by insurance)
Home Modifications Creating an accessible bathroom with a roll-in shower
Transportation & Mobility Driver training and, ultimately, a wheelchair-accessible vehicle
Progress Made Possible So Far
Because of early support, real progress is already happening:
Bathroom renovation is underway to build a roll-in shower
A new shower chair has been ordered
Physical therapy has resumed
These are meaningful steps toward greater independence—and they would not be possible without your support.
Ongoing Challenges
Transportation remains one of the biggest barriers. I currently rely on a limited county service to attend medical appointments and therapy, which can be unreliable and restrictive.
An accessible vehicle would allow me to attend therapy consistently, regain flexibility in daily life, and restore a sense of freedom and dignity.
Caregiving and rehabilitation are also ongoing needs. These are not one-time expenses—they are part of a long-term reality.
Why This Matters
Despite everything, I am deeply grateful to be alive. I spent weeks in the ICU requiring intensive, lifesaving care.
This experience has changed my perspective and strengthened my commitment to rebuilding my life—step by step—toward greater independence.
How You Can Help
Funds are being raised through the nonprofit Help Hope Live to support critical, uninsured recovery expenses.
If you’re able to give, every contribution—no matter the size—makes a meaningful difference.
If you’re not able to donate, sharing this page is another powerful way to help.
With Gratitude
Thank you to everyone who has supported my family and me, prayed for my recovery, and stood by us since August 7, 2024.
Your generosity, encouragement, and support mean more than words can express.
Campaign Update – September 2026
It has been several months since I've shared a detailed update here, although I've shared some of my progress along the way on Facebook. A lot has happened since May, and I wanted to take some time to share where things stand today.
First, I want to say thank you.
We have now raised more than $16,000 through my Help Hope Live campaign. The generosity of family, friends, coworkers, and even people we don't know personally continues to amaze me. Some people have donated once, some more than once, and others have chosen to provide ongoing support. My family and I are incredibly grateful.
Most importantly, I continue working toward greater independence.
Physical therapy remains an important part of my recovery. I continue working on transfers, strength, balance, flexibility, and techniques that will allow me to safely do more for myself. I've also spent time upright in a standing frame. The frame fully supports me and allows my body to be in a vertical position; it does not mean that I'm able to stand independently. It provides important benefits including circulation, bone health, and muscle flexibility.
In May, I shared one of my biggest milestones when I was able to transfer myself into bed independently for the first time. I continue working to build on that independence in other parts of my daily life.
Our accessible bathroom is now nearly complete.
When I last updated everyone here, work was just beginning. We're now close enough to completion that I can finally share pictures.
For me, these pictures represent much more than a remodeled bathroom. Since my spinal cord stroke, taking a shower has required assistance and specialized equipment. The centerpiece of this project is a new roll-in shower designed to allow me to safely enter with a wheeled shower chair.
I'm hopeful that I'm getting very close to being able to use it for the first time.
Taking a shower is something most of us rarely give much thought to. For me, being able to safely use an accessible shower in my own home will represent another meaningful step toward greater independence.
We've also taken a major step forward with transportation.
We now have a wheelchair-accessible van, and I'm including pictures of it as well.
Earlier this year, I was able to drive during a driver evaluation for the first time since my stroke. Now the work begins to make driving independently a reality.
I have nine hours of specialized driver training scheduled in September at a cost of $200 per hour. If that goes well, I'm hoping to coordinate my driver's test with the DMV by the end of October.
There are still significant steps—and expenses—before I can drive independently.
The van still needs hand controls installed, which are estimated to cost approximately $3,000–$5,000. I also need additional physical therapy specifically focused on learning how to safely transfer between my wheelchair and the driver's seat.
Passing the driver's test would allow me to legally drive again with the appropriate restrictions. Being able to get myself into the van and drive to physical therapy, appointments, work, or simply go somewhere without depending on another person would restore a level of freedom I haven't had since my stroke.
While I'm grateful for all of this progress, the financial challenges remain significant.
Caregiving continues to be one of our largest ongoing expenses. I still require assistance every day, and that need is not expected to go away in the foreseeable future. The cost of caregiving has also increased with inflation, making an already significant monthly expense even greater.
Insurance provides only a limited number of physical therapy sessions each year. Rehabilitation, adaptive equipment, accessibility modifications, driver training, vehicle modifications, and other needs also continue to add up. Many of these expenses are either not covered by insurance or are only partially covered.
That is why your continued support matters so much.
If you've already contributed, thank you. I hope the progress I'm sharing—and the pictures of the bathroom and van—help show what we're working toward and why this campaign remains so important to my family and me.
If you're able to make a first donation or another contribution, I would be extremely grateful. Every contribution helps me continue pursuing the therapy, equipment, modifications, training, and caregiving support that make greater independence possible.
There is still a long road ahead, and I don't know exactly where this journey will ultimately take me. What I do know is that I will continue working hard, setting new goals, and doing everything I can to become as independent as possible.
I'm thankful to be alive. I'm thankful for this second chance at life. And I'm incredibly thankful for everyone who continues to walk alongside me.
More than $16,000 raised—and still moving forward, one milestone at a time.
Last night, I reached a milestone I've been working toward for quite some time. For the first time, I was able to get myself into bed independently. It's not a simple task, given all the variables involved and the items that need to remain within reach.Something that used to be automatic has taken months of therapy, setbacks, problem-solving, and determination to relearn. It may seem like a small thing from the outside, but to me it represents progress and a small piece of independence returning.Recovery sometimes feels slow, but days like this show that the hard work is moving things forward.Thank you to everyone who continues to support and encourage me through this journey. One step at a time.
Campaign Update
I would like to share an update on my progress and express my sincere gratitude for the support my family and I have received.
It has now been 20 months since I experienced a life-changing spinal cord stroke that resulted in paralysis from the chest down. While the challenges remain significant, meaningful progress continues to be made.
Thanks to the generosity of family, friends, and supporters, nearly $3,000 of the $61,000 annual fundraising goal has been raised to date. These contributions are already making a tangible impact.
Work has begun on modifying our bathroom to improve accessibility. The existing bathtub is being converted into a roll-in shower, and a new wheeled shower chair has been ordered. These improvements will significantly increase safety and independence in daily routines.
Physical therapy has also resumed. Insurance limits coverage to 30 sessions per year, so these sessions are being carefully scheduled and prioritized. The current focus is on improving transfers to and from the wheelchair. Spasticity and leg tone continue to present challenges, particularly with vehicle transfers, and therapy is focused on developing techniques to improve safety and consistency.
The need for caregiving support remains ongoing. At approximately $2,500 per month, this continues to be a significant expense not covered by insurance.
Transportation also remains a key challenge. While a county-provided service is available, it can be limited and unreliable. Options are being explored to increase independence, including driver training and, eventually, a wheelchair-accessible vehicle. These steps are important for maintaining consistency with therapy and improving overall quality of life.
I remain committed to continuing rehabilitation and working toward greater independence. Your support plays a critical role in making that possible.
Thank you again for your generosity and encouragement.
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Love you Matt!
Anonymous
Faith, Love and Perseverance always win!
John Zentmyer
Matt, wishing you all the best.
Anonymous
We wish you the best in your recovery.
Ethan Seltzer
You and your family are in our thoughts and prayers.
Anonymous
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Matthew Rokenbrod
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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