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Accessibility for all: Helping people connect with who and what matters most
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On August 7, 2024, my life—and my family’s—changed in an instant.
At 50 years old, I suffered a rare spinal cord stroke. Just days before, I was mowing the lawn and playing golf. In a single moment, everything I understood about my body, my independence, and my future was rewritten.
I am grateful to be cognitively strong and to have full use of my arms and hands. That gives me some independence. But being paralyzed from the chest down has changed daily life in ways I never imagined.
What I miss most are the simplest things—the ability to care for myself and to fully show up for my family, especially my wife, Lauren, and my son, Ryan.
Our Goal
$61,000 per year for the next 3 years
This goal supports the ongoing care, rehabilitation, and resources needed to help me regain as much independence as possible.
What Life Looks Like Now
The past year has been filled with uncertainty—but also progress.
I spent nearly 100 days in hospitals and rehabilitation facilities, relearning basic skills most people never have to think about. That work continues today.
My spinal cord injury is classified as “incomplete,” which means recovery is possible. I have already regained some sensation in my legs and feet. Continued progress depends on consistent therapy, training, and support.
Daily life now includes challenges most people never have to consider—safe transfers, mobility, and adapting to a new way of living.
How Your Support Helps
Your generosity directly supports:
Physical Therapy Insurance covers only 30 sessions per year, but meaningful progress requires more
Caregiving Support Approximately $2,500 per month (not covered by insurance)
Home Modifications Creating an accessible bathroom with a roll-in shower
Transportation & Mobility Driver training and, ultimately, a wheelchair-accessible vehicle
Progress Made Possible So Far
Because of early support, real progress is already happening:
Bathroom renovation is underway to build a roll-in shower
A new shower chair has been ordered
Physical therapy has resumed
These are meaningful steps toward greater independence—and they would not be possible without your support.
Ongoing Challenges
Transportation remains one of the biggest barriers. I currently rely on a limited county service to attend medical appointments and therapy, which can be unreliable and restrictive.
An accessible vehicle would allow me to attend therapy consistently, regain flexibility in daily life, and restore a sense of freedom and dignity.
Caregiving and rehabilitation are also ongoing needs. These are not one-time expenses—they are part of a long-term reality.
Why This Matters
Despite everything, I am deeply grateful to be alive. I spent weeks in the ICU requiring intensive, lifesaving care.
This experience has changed my perspective and strengthened my commitment to rebuilding my life—step by step—toward greater independence.
How You Can Help
Funds are being raised through the nonprofit Help Hope Live to support critical, uninsured recovery expenses.
If you’re able to give, every contribution—no matter the size—makes a meaningful difference.
If you’re not able to donate, sharing this page is another powerful way to help.
With Gratitude
Thank you to everyone who has supported my family and me, prayed for my recovery, and stood by us since August 7, 2024.
Your generosity, encouragement, and support mean more than words can express.
Campaign Update
I would like to share an update on my progress and express my sincere gratitude for the support my family and I have received.
It has now been 20 months since I experienced a life-changing spinal cord stroke that resulted in paralysis from the chest down. While the challenges remain significant, meaningful progress continues to be made.
Thanks to the generosity of family, friends, and supporters, nearly $3,000 of the $61,000 annual fundraising goal has been raised to date. These contributions are already making a tangible impact.
Work has begun on modifying our bathroom to improve accessibility. The existing bathtub is being converted into a roll-in shower, and a new wheeled shower chair has been ordered. These improvements will significantly increase safety and independence in daily routines.
Physical therapy has also resumed. Insurance limits coverage to 30 sessions per year, so these sessions are being carefully scheduled and prioritized. The current focus is on improving transfers to and from the wheelchair. Spasticity and leg tone continue to present challenges, particularly with vehicle transfers, and therapy is focused on developing techniques to improve safety and consistency.
The need for caregiving support remains ongoing. At approximately $2,500 per month, this continues to be a significant expense not covered by insurance.
Transportation also remains a key challenge. While a county-provided service is available, it can be limited and unreliable. Options are being explored to increase independence, including driver training and, eventually, a wheelchair-accessible vehicle. These steps are important for maintaining consistency with therapy and improving overall quality of life.
I remain committed to continuing rehabilitation and working toward greater independence. Your support plays a critical role in making that possible.
Thank you again for your generosity and encouragement.
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Faith, Love and Perseverance always win!
John Zentmyer
Matt, wishing you all the best.
Anonymous
We wish you the best in your recovery.
Ethan Seltzer
You and your family are in our thoughts and prayers.
Anonymous
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Matthew Rokenbrod
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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