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Accessibility for all: Helping people connect with who and what matters most
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To know Josh is truly to love Josh. I have loved him even before he was born, praying for his life, his healing, and his future. Over these 16 years, Josh has faced challenges most people never encounter in a lifetime… forty-nine surgeries, countless hospital stays, and daily obstacles that test his strength in ways that are hard to put into words.
And yet, through it all, Josh’s faith, courage, and joy continue to shine. Every day he faces battles that still need prayer and healing, and every day he keeps trying. As his mom, I see the parts no one else sees… how much effort it takes him just to do the simplest things, how hard he works, and how deeply he longs for more independence!
One tangible step we can take, with your help, is making key parts of our home accessible for Josh, beginning with his bathroom, his bedroom, and a safe ramp to our front porch.
Our Most Urgent Need
Right now, Josh cannot safely use our bathroom on his own. The doorway is not wide enough for his wheelchair. He cannot reach the sink to brush his teeth or wash his hands. He is unable to learn to use a roll-in shower that would allow him greater independence.
I currently have to carry Josh into the bathroom every time he needs to go. I do it with all my love, but it is physically exhausting and a constant reminder of how much help he needs for the most basic, everyday tasks most people never think twice about. We long for the day when Josh can enter the bathroom safely on his own and begin to experience the independence and dignity he deserves.
Brushing his teeth, washing his hands, taking a shower… simple moments many take for granted have become real challenges for Josh. Even here, he gives everything he has, even when it is exhausting and takes far more time and effort than it should.
In addition to the bathroom, Josh’s bedroom also needs to be made accessible. His next wheelchair will be larger, requiring the doorway to be widened. Because of medical equipment and the current layout, Josh cannot access his closet, dresser, or essential medical and personal care items. Many important things remain out of reach, requiring constant help with tasks he wants so badly to do on his own. Modifying his room would give Josh greater freedom and independence in his daily life.
We also hope to add a concrete ramp to our front porch to make entering and leaving our home safe and accessible. This change would allow Josh to come and go without fear or reliance on careful assistance, giving him confidence and freedom in his own home.
We are deeply thankful for every prayer lifted for Josh and our family… for meals shared, encouraging words spoken, and the many ways you have loved and supported us over the years. Through your prayers and kindness, God has carried us through so much.
Since Josh was little, I have dreamed of a fully accessible home for him, a place where he would not have to struggle or need help with every small task. After a season of financial strain and my husband being without work for over a year, that dream feels very far away. For now, these bathroom and bedroom modifications, along with the front porch ramp, are the first steps toward giving Josh more independence and dignity.
If you feel led to pray, share, or support this journey in any way, we would be so very grateful. Above all, we trust God to guide every step and to provide through His people’s kindness.
Thank you for loving Josh and our family, for praying for him and for us, and for standing with us through this journey. Your kindness means more than words can say, and we are grateful beyond measure.
This video shows a brief example of how Josh gets into the bathroom. For privacy, he is fully clothed, and it doesn’t capture the full routine, which takes over an hour. I’ve done this hundreds of times, so it may look easier than it really is. Because our doorway is too narrow for his wheelchair, I lift him from his chair and carry him in and out each time. Because of medical needs, Josh spends a long amount of time in the bathroom, and the current setup makes that time harder than it needs to be.Josh has endured so very much in his 16 years. He works incredibly hard for every bit of independence and never complains.Our hope is to make his bathroom and bedroom accessible so Josh can be safe, comfortable, and experience the dignity he deserves.Thank you for praying, sharing, and caring.🙏💙🥰
Josh’s Accessibility Project Update
Since sharing Josh’s story on January 1, many have asked for more details. We are so grateful for the care, prayers, and support surrounding our family. Below is a simple, practical breakdown of Josh’s most urgent accessibility needs, along with estimated costs.
The accessible bathroom is our greatest and most immediate need. Right now, I have to carry Josh every time he needs to use the bathroom. His wheelchair does not fit through the doorway, and the sink and shower are not accessible. A roll-in shower is essential for his safety, dignity, and growing independence. These changes will allow Josh to move through our home more safely and with less physical strain on both of us.
We are especially thankful for Kendra Orcutt, OT and owner of Home Mods, who came out on New Year’s Eve to assess our home and provide rough cost estimates. Thank you, Kendra, for her time, compassion, and expertise.Josh’s Accessibility Project – Simple Breakdown (in order of need)•
•Accessible Bathroom Remodel
Widen doorway to 36 inches, relocate switches, replace tub and shower with a zero-threshold roll-in shower with linear drain, handheld showerhead, and grab bars, replace vanity with wheelchair-accessible sink, add shower buddy and washlet bidet, improve lighting and ventilation. Estimated cost: $20,000–$30,000+
•Bedroom Modifications Rearrange furniture, replace dresser with an accessible option, add outlets for medical equipment, install a bed cane without legs, improve closet access. Estimated cost: about $5,000
•Accessible Adjustable Bed A bed that raises and lowers for safer positioning and transfers, reducing the need for full assistance with turning and repositioning. Estimated cost: about $3,400 https://www.spinlife.com/Golden-Technologies-Golden-Passport-Hi-Low-Adjustable-Bed-Adjustable-Bed/spec.cfm?productID=177772
•Ceiling Lift System Track system from bed to wall with a motorized remote option for safer transfers. Estimated cost: about $10,000 https://www.surehands.com/products/surehands-body-support
•Front Entry Ramp Remove and re-pour sidewalk sections to create a gradual concrete ramp to the porch. Estimated cost: about $1,000
•Threshold Ramp / Mat Ramp or mat to improve wheelchair access over the doorway threshold. Estimated cost: about $130 https://www.spinlife.com/EZ-ACCESS-TRANSITIONS-Angled-Entry-Mat-Threshold-Ramp/spec.cfm?t=116992
Total project Estimates
Low: approximately $39,530
High: : approximately $49,530
We are incredibly thankful for your prayers, encouragement, and support as we work to make our home safe and accessible for Josh.If you feel led to pray, share, or support in any way, we would be so grateful.Above all, we continue to trust God’s provision and believe He will provide in ways only He can. 💙
Sending prayers of support in Joshua's journey.
Michelle Bullis
In loving support of the Cumby’s goals from Josh
Linda Paxton-Averett
We are happy to contribute to such a worthwhile fund. Josh and his family have always been a blessing to our family. It has been so nice to have a fellow family to share the ups and downs of spina bifida with.
Scott and Dawn Hubbard
You are a blessing and inspiration.
Claude and Janet West
Your dedication and love for your son is inspiring!
Lisa Dionisio
Josh- This is in memory of Randy Mitchell, the pastor that married your mom and dad.
They make a pretty amazing Mom and Dad! Blessings to you all!
Sheryl Mitchell
Sheryl Mitchell
Jeremiah 1:5
Shyla Abraham
From one special needs mom and another, I hope Josh gets the accessibility he needs. We wish you all the best.
Brittany Bailey
Continuing to pray for Josh and your family and trusting the Lord that he will continue to provide wisdom, comfort, healing, and peace❤️
Mandi DeLano
Hope you soon have the accommodations made that will bring you joy and more freedom. God bless you and your family.
Martha Steger
God Bless!
Anonymous
Praying for your comfort.
Lyndell Shaw
Josh, we love you and your family so much! We are praying with you that you will get the independence you are hoping for through these home modifications. You are so faithful in trusting in God’s plan for your life and are a light to others!
Brenda Goolsby
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Joshua Cumby
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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