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Dear Family, Friends and Generous Donors,
Matt and I need your help. His Pulmonary Fibrosis has advanced and is now developing in his right lung. Other than his lungs, he’s fairly healthy. He has to have a double lung transplant and soon. Otherwise, his other organs will start failing too. The doctors say it needs to be done in the next year to year and a half.
Many of you may know our family from our children’s school years, showing llamas, 4-H and/or the pet stores in Crawfordsville, IN. Matt and I met as teenagers while working together at Uncle Bill’s Pet Center in Greenwood, IN. Our entire lives have revolved around our family and our animals. Since Matt can no longer visit the farm, we have had to give up a lot of that lifestyle. It has been extremely painful and emotional. It hasn’t just been our way of life, the one we’ve always shared, but the animals have been our pets. We have already sold several and have a few more to sell. We can have our dogs and cats, but nothing else. Nothing else! Megan will keep the rest of the farm animals to breed, raise and sell. She will continue to show llamas. I will attend a few shows with her, but Matt will only be able to watch through the internet or FaceTime. It will continue to be a difficult adjustment, but Matt’s life, health and well-being are more than worth it all.
The IU Health Methodist Transplant Team requires us to have at least $8,000 in savings for expenses during the transplant recovery and rehab time. Realistically, it may have to be more. This will allow us to focus solely on Matt’s healing and well-being. He will be in the hospital for at least 2-4 weeks and then at least another 4-6 weeks of 5 rehab days per week. Since we are more than 40 miles from the IU Health Methodist Pulmonary Rehab facility, we must relocate to Indianapolis during that time. We have to have enough to be able to pay all expenses, not covered by insurance, during our time away from home. We are trying to save on our own, but it’s difficult to save that much in a somewhat limited amount of time. We are trying to sell some of our llamas, but it may not be enough.
This is what your thoughtful donations will help cover:
• Hospital and doctors’ fees not covered by insurance, including deductibles and copays; telephone and television rentals during hospitalizations.
• Dental care and other uninsured health care needs impacting Matt’s transplant.
• Transplant-related medications and medication co-pays.
• Transportation: local travel (one-day round trip) and long-distance travel (overnight or longer) for Matt to access treatment or for a caregiver to visit our home.
• Relocation expenses to access treatment and rehab.
• Meals during medical travel or temporary relocation to access treatment and rehab.
• Reasonable maintenance costs for a vehicle to access treatment (i.e., oil changes).
• Emergency assistance for living expenses (i.e., mortgage, rent, utilities).
• Home health care for client; hiring and paying caregivers if necessary.
• Medically recommended rehabilitation, including exercise-based rehab.
• Medically necessary exercise equipment.
• Treatments that are FDA approved or currently under FDA initial review and recommended by a medical professional (with some exceptions).
• Disposable medical equipment and supplies for the client and medically needed over-the-counter drug store items.
• Medically necessary home repairs (such as mold abatement).
• One telephone for Matt so he won’t miss “The Call”.
• Fundraising expenses, within reason.
Matt and I have been beyond blessed by the amazing family, friends, and many acquaintances in our lives. We thank you all for your love, support and unending prayers. We could not go through all of this without you.
Thank you also to anyone we do not know personally or who has helped and chosen to remain anonymous. We feel your kindness and we plan to pay it forward.
Many blessings to you all,
Matt & Erin
Dear Family & Friends!On April 1st, Matt and I met with his Pre-Transplant Coordinator, Mandy, and Dr. Patel. It was a great meeting. Matt left feeling pretty happy. Dr. Patel was impressed with all the requirements Matt had already met. Mandy seemed proud of Matt, too. Matt is down to needing to lose the last of the required weight and having a colonoscopy. Dr. Patel said that at the rate Matt has already lost weight, he could be on “The List” in as little as three months. Being in the Midwest is a plus in the transplant world because they can get organs from a much larger area than either coast. Once Matt is listed, he shouldn’t have to wait very long. We go back for Matt’s next appointment on July 2nd. Dr. Patel suggested Matt visit his Pulmonologist, since it had been a while.Dr. Jha had an opening last week. Matt went to see him and I listened in on speakerphone. Dr. Jha was thrilled with how much weight Matt had lost and that he had finished Pulmonary rehab and was attending the maintenance session. He won’t need to see Matt for another six months, unless Matt receives his double lung transplant before then. Hopefully, we won’t need that appointment. We cannot thank Dr. Jha enough for writing that letter to the transplant doctors at IU Health. Without him doing that, at Matt’s visit with him, who knows how long all of this would have taken? He has been a true blessing to us.Matt never ceases to amaze me! He never gives up. He has always been an incredibly hard worker and still gives his all to any honey-do item he’s given. He has been giving his all with his weight loss and rehab. He is watching his diet and we even went on a walk last week. I hope we can go on more of those. As of Thursday, April 9th, Matt has lost 100 pounds. I am so, so proud of him!This update is quite a bit shorter and I believe that is a great thing. It’s because Matt has fewer things to check off before getting listed. Once that happens, because I know it will, we will not be going anywhere. Not that we go very far anyway. It will be one of the most important reasons in our lives.Thank you all for your continuous love, support and prayers. We couldn’t face this without you.Matt & Erin
Hello Family & Friends!
Matt is checking things off of his "To Do" list, left and right. His determination and drive are just two of the many things that I love about him. Last time we talked with his Pre-Transplant Coordinator, Mandy, she was floored by all the progress Matt has made. I, personally, am not one bit surprised by it. I am watching "America's Sweethearts: Dallas Cowboys Cheerleaders" (Netflix). Yeah, yeah, I know. Anyway, there are so many rules and requirements for a person to be considered for the transplant list. Like the show, it's basically like an audition. Matt has to keep improving (practicing) so that the doctors and the committee will consider him (the audition) to make the list (the team). I'm sure he appreciates me comparing him to a cheerleader and his life to the show. Sorry, honey! But some of you may understand things a little more clearly now. Matt was required to make sure his mouth was as healthy as the rest of his body. He had a deep cleaning done. For that, he had to be fully numbed so that they could clean down to the roots. They did this one side per appointment. He had a few small fillings done. He also had to have some teeth pulled (ouch). One was a front tooth that had a crown put on while Matt was in high school. He had a weightlifting coach drop 295 lbs. on his mouth. Yikes! Thank God only one tooth had to be replaced then. We are grateful that Matt's insurance has covered all of his dental work. Dr. Chad Canal and his staff are amazing. He is accepting new patients in Crawfordsville, Indiana, if anyone is looking. Matt received a written release for his transplant doctors and is now free of dental problems. Matt wore a heart monitor for 10 days. Thank God, there was nothing negative in the results. The cardiologist said that Matt more than likely passed out due to a lack of oxygen. He will see him again in August. The infectious disease doctor wanted Matt to have some more bloodwork done. Matt was checked for a couple of things that he could have picked up in 29 Palms, CA, or Camp Lejeune, NC. His bloodwork was clear. Yay! We will handle the dormant Tuberculosis during transplant time. Matt's liver ultrasound didn't show anything that the transplant team is worried about. That was a huge weight off Matt's mind and mine. Matt has been working so hard at Pulmonary Rehab and is ticking things off his list. He has also been doing the treadmill and bike at Planet Fitness. He has lost another 10 lbs., which brings him to just 40 more to go. I am so, so proud of him. We read the labels on our food now. The foods we buy have drastically changed, for the better. That has made a difference in Matt's weight loss. Unfortunately, I believe I may be gaining what he's losing. Grrrr! The last medical "task" Matt has to complete is having a good old colonoscopy. Those of us who have had one know it's not as bad as we imagined. The prep is the worst part. If he has to drink the jug of the worst-tasting drink ever created, I will truly feel for him. That stuff literally made me cry. We're praying the results are good for this as well. I will be attending the Spring Showcase Llama Show with Megan. This one will be tough because Matt was normally there with us. We will miss him terribly. Thankfully, he will be able to watch it live, online. He will have to go back and forth between watching Megan show llamas and the NCAA Wrestling Finals. Not too bad for his birthday weekend. He is looking forward to spending his birthday with Isaac, Daylen and Emilia. He can't wait to play with Emi! If you are at the Spring Showcase next weekend and would like to make a donation to Matt's transplant fund, look for the attached picture. There will be boxes there, with this photo on them. Thank you to everyone who has contributed to the fundraiser! It has made such a big dent in what we need to raise. Thank you to all of you who have continued to keep us in your prayers. We can never have too many of those. Your tremendous support is keeping us going. Take care of yourselves and God bless you all.
Matt & Erin
Hello Family & Friends!
I know it has been a while since my last post about Matt. I apologize for the wait. So, here goes (I pray I can remember everything). The last day of Matt's 3-day testing, he had two pretty easy tests, compared to the two days before. The same day, we met with Matt's Pre-Transplant Coordinator. She went over his vaccines and informed him that he will have to be vaccinated for Hep B and will have to receive an annual Covid vaccine with his Flu shot. He also needed to start taking vitamin D. She said she would be calling us after the transplant committee met, the following Thursday. After meeting with her, we met with an incredibly kind, soft-spoken and caring social worker. It was wonderful having both Isaac and Megan there. We learned quite a bit from her. One thing she told us that we didn't know is that we are required to have at least $5000 in savings for Matt to be added to the waiting list. We have to provide proof of it. We can do it with fundraising or by selling things. Hence, our trailer and a few llamas, Megan and I had hoped to keep, being for sale. She suggested an organization called Help Hope Love. I am waiting to hear back from them. Some of you have asked about donating. I will let you know as soon as I know more. Matt received the call at the beginning of the week, following the committee meeting. He was told that he had a few things to have checked out, but he has not been excluded. This was a step in the right direction. She said that Matt tested positive for Tuberculosis and would have to meet with an Infectious Disease doctor. He would have to meet with a Cardiologist and wear a heart monitor for 10 days. This is because Matt passed out on the treadmill at Pulmonary Rehab. The Cardiologist who did his Cardiac Catheterization said that everything looked great, he saw nothing that concerned him and that he was saying Yes to transplant. (Yay!) The Endoscope test showed that Matt has a slow esophagus and that if transplanted, he may have to have a feeding tube for recovery. The doctors won't know for sure until he is in surgery. On his full body scan, Matt had possible signs of cirrhosis of the liver. We said he rarely drank alcohol. Unbeknownst to us, there is a cirrhosis Wawa that is not alcohol related. He would need an ultrasound to confirm or dismiss the possibility. If he has it, he can be put on medication. There is also a need to continue losing weight. We are working on that. He has already lost 83 lbs., but he has another 60 lbs. to lose. He is taking it seriously. Matt and I met with the Cardiologist and the Infectious Disease doctor this past Monday. We really liked them both a lot. The heart doctor believes, like we do, that Matt's passing out was due to asphyxiation, not a heart issue. He had a heart monitor put on Matt for the 10 days that the transplant doctors requested. He is wearing it as I am typing this. It is adhered to his newly shaven chest. The Infectious Disease doctor is a silly woman. She actually chose to move up here because she missed the snow she experienced growing up in Pennsylvania. She had been living in Nashville, TN. Indiana certainly welcomed her with a good amount of snowfall. We informed her that she was crazy and that we would have loved to trade places with her. LOL! She said that Matt could have contracted TB as a child or during his time in Marine Corps boot camp, in 29 Palms, CA, or schooling, in Camp Lejeune, NC and that it has been and still is dormant. Matt is not contagious in any way. To prevent it from "rearing its ugly head," he would be started on medication just before or just after transplant. He will go ahead and have bloodwork done to make sure it is not another issue that can cause a false positive. Matt has his liver ultrasound this coming Friday. The Pre-Transplant Coordinator also informed us that the committee is now requiring that we have $8,000 in savings before they will add us to the list. This is because I am self-employed and plan on not working during Matt's recovery. This basically means that if Matt ends up being cleared medically, it could be money keeping him from a transplant. So...does anyone need a trailer or any llamas? Thank you all for your continued love, support and prayers. This would all be so much harder if it were not for every one of you. We can never have too many prayers. I will continue to keep you all updated. I will do my best to do it sooner next time. Take care of yourselves and God Bless you all.
Matt & Erin
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Thinking of you and praying for strengh and peace. Grateful for this opportunity to support you and your family.
Mary Atkins
Sending love and prayers
Kristen (Beatty) Groh
Prayers for you and your family Matt.
Barb Parsons
Dear Matt & Erin,
I hope you receive the monetary assistance needed to help you through this difficult time. I’ll be praying for your health and healing. I thank you for allowing me to have Cooper for the few months he was with us. You do amazing work!
God Bless you both. I’m sorry I don’t have more to share.
Becky Sullivan
Rebecca Sullivan
Keeping y'all in my prayers!
Cathie Kindler
Holding you all fast in prayer - you got this!!!
Anonymous
Positive wishes for a successful surgery!
Dawn Bergren
May the Lord multiply all these gifts and provide for you!
Ashlee Vitz
We will be praying for you!
Steven Richardson
Sending prayers and positive energy.
Dave McClain
Sending love and hugs!
Hannah Mueller
Prayers for you all!
Andrea Munn
Praying for you
The Runyan Family
Angie Runyan
Prayers!
Shelley Clouser
Praying for you and your family, Erin ❤️❤️
Shelly Albertson
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Matthew E Fruits
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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