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Your Donations Will Help Matt Receive A Double Lung Transplant

Dear Family, Friends & Generous Donors,

Matt and I need your help.  His Interstitial Pulmonary Fibrosis has advanced and is now developing in his right lung.  Other than his lungs, he’s fairly healthy.  He has to have a double lung transplant and soon.  Otherwise, his other organs will start failing too.  The doctors say it needs to be done in the next year to year and a half.

Updates (4)

May 18, 2026

Dear Family, Friends & Generous Donors,Matt’s “To Do” list is down to its final 2 items!!  1) He has already lost an incredible 112 pounds!  He only has to lose 28 more.  This is very doable.  He walks, watches what he eats and is on Mounjaro.  2) We have to raise more funds for Matt’s aftercare.  The generosity and thoughtfulness of so many have been overwhelming.  We cannot thank you enough.  We are getting closer to the campaign goal. We can do this!Matt had his required colonoscopy last month.  He had to be a showoff, of course.  Everything looked perfect and healthy.  He didn’t have a single polyp or area of concern.  Don’t I wish we could all say that?  We are so thankful for more answered prayers.  Matt is just relieved that he won’t have to do it again for another 10 years.  Lucky duck!We met Matt’s Rheumatologist, Dr. Marcia Johnson.  We fell in with her right away.  She is such an amazing woman.  She came out of retirement to start giving scholarships to deserving college students.  She is incredibly sharp and knowledgeable.  She diagnosed Matt with very mild Rheumatoid Arthritis.  She was going to put him on a widely used medication, but, after consulting with Matt’s transplant team, has decided not to.  She will see him in October, if he isn’t recovering from a transplant.  We all hope he is.In the last month, we have been on a crazy rollercoaster ride, dealing with our insurance.  One minute we have it, the next we make too much.  We applied for a waiver, were approved, but it normally takes a year for it to kick in.  There is no reason for any American to have to worry about any of this.  How many people have and will have to die before the insurance companies don’t “control” our lives?  It’s heartbreaking when you think about it.  Well, thankfully, we finally found out tonight that our case has been reconsidered and we will have coverage.  No coverage would have been a death sentence for Matt.  Thanks Be To God!!  He Is So Good!!  We also found out that because Matt has been on disability for two years, he will start receiving Medicare Part A & B on September 1st.  This news certainly eases our worries.  Matt will have great coverage for his transplant, aftercare and medications.  We feel very blessed.We will continue to keep you all updated in the month ahead.  We truly appreciate all your prayers and support.  We couldn’t do all of this without you.  We feel and see your prayers being answered.  Take care of yourselves and your loved ones.  Hug them extra tight.Matt & Erin

April 12, 2026

Dear Family & Friends!On April 1st, Matt and I met with his Pre-Transplant Coordinator, Mandy, and Dr. Patel. It was a great meeting. Matt left feeling pretty happy. Dr. Patel was impressed with all the requirements Matt had already met. Mandy seemed proud of Matt, too.  Matt is down to needing to lose the last of the required weight and having a colonoscopy.  Dr. Patel said that at the rate Matt has already lost weight, he could be on “The List” in as little as three months.  Being in the Midwest is a plus in the transplant world because they can get organs from a much larger area than either coast.  Once Matt is listed, he shouldn’t have to wait very long.  We go back for Matt’s next appointment on July 2nd.  Dr. Patel suggested Matt visit his Pulmonologist, since it had been a while.Dr. Jha had an opening last week.  Matt went to see him and I listened in on speakerphone.  Dr. Jha was thrilled with how much weight Matt had lost and that he had finished Pulmonary rehab and was attending the maintenance session.  He won’t need to see Matt for another six months, unless Matt receives his double lung transplant before then.  Hopefully, we won’t need that appointment.  We cannot thank Dr. Jha enough for writing that letter to the transplant doctors at IU Health.  Without him doing that, at Matt’s visit with him, who knows how long all of this would have taken?  He has been a true blessing to us.Matt never ceases to amaze me!  He never gives up.  He has always been an incredibly hard worker and still gives his all to any honey-do item he’s given.  He has been giving his all with his weight loss and rehab.  He is watching his diet and we even went on a walk last week.  I hope we can go on more of those.  As of Thursday, April 9th, Matt has lost 100 pounds.  I am so, so proud of him!This update is quite a bit shorter and I believe that is a great thing.  It’s because Matt has fewer things to check off before getting listed.  Once that happens, because I know it will, we will not be going anywhere.  Not that we go very far anyway.  It will be one of the most important reasons in our lives.Thank you all for your continuous love, support and prayers.  We couldn’t face this without you.Matt & Erin

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Guestbook

May 28, 2026

Matt & Erin,
We wish you both the best!
Your family is in our prayers.
Scott & Wendy Feller

Wendy Feller

May 27, 2026

Best wishes from the Swafford family we will be praying for you

John Swafford

May 18, 2026

Praying for the best outcome Matt! You got this!!

Lori Wilson