July 24, 2012
news update July 23, 2012
News Update July 23, 2012
Its been a few weeks since I last updated my blog. During this time a lot has been happening.
I checked in the Emergency room on the on the 9th for severe pain in my abdomen. I spent a week and went home on the 14th. During my stay I found out that my blood scores were getting quite high, however the processed sodium level was to low. The doctors took many tests, and discovered that I still had a growth restricting the artery supplying fresh blood to my lower extremities and organs. I was taken off the active organ call listing until at which time cancer was ruled out. My colon was still inflamed and I was put on antibiotics.
2 liters of fluids were removed from my abdomen to also help with the pain. Because of the changes in my medications and the need to keep toxins drained, my kidney's are now being impacted to the point the damage will be non-reversible unless the medications can improve my condition.
Well after I went home, I received a call from my doctor. He gave me the somewhat distressing news that cancer cannot be ruled out without further tests. In 2 weeks I am scheduled for a bone marrow biopsy to determine and answer. I will also need to have a another scan of my colon, which is a separate issue, to see if there is any tumors present in my colon.
Well enough bad news, on the promising side, after being turned downed for a scholarship for my youngest son from BLOCKS, I was approved for a $2000.00 award to help with the tuition costs. For those that do not know Block scholarships are offered by the local business supporting Catholic education within the community.
I was also approved for a wave in premium for my life insurance for my first disability of 2012. Wow we really needed that, any bit counts when your trying to survive on a reduced income.
I have an update as soon as I hear some results from my up and coming tests
July 8, 2012
News Flash July 8, 2012
Its been 2 weeks since my last post. The 4th of July is now in the past. The day was spent here with family. As you may have guessed, I did most of the preparation and cooked the organic chickens. Memphis style homemade BBQ sauce on the side. By 4:00 PM I was ready to collapse and wasn't on my feet to greet our guests till about 6:00 PM.
Well the changes to my medications is taking its toll on me. Slowly coming off the steroids and the increase of laicics is keeping me in a lot of pain. My last blood score of this past week is confirming that my liver is stable, however, my kidneys are becoming increasingly damaged. I had somewhat of a choice, Hospital now to keep fluids off me or stay on my feet a little longer and replace a kidney down the road. I am not ready for for a hospitol room quite yet. I'm still retaining fluid and last night almost had my son take my to Jefferson emergency to get admitted to get drained. Looks like dehydration is beginning again and I'm going to try and have the doctor schedule the tap on Monday. I'll keep everyone updated later on this week.
Well the most heartbreaking for me was to finally hang up my van keys. No more driving for me for a while. Last week I was at the Dunkin Donuts getting my morning tea, when I got into someone else's car and attempted to try to start it. The owner was quite shocked. The funny thing was the car didn't even resemble my wife's ford.
Well I hope that the blog helps others, in my situation, see what may lie ahead for them. Because living it seems like a nightmare at times. Keep watch for my next post, and a big thank you for all of my guests that have contributed to my account. Its my prayers being answered.
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June 24, 2012
News Update 6/24/12
Its 4:00 am. Sunday morning, and I'm suffering from another sleepless night. The cramping in my legs are very painful. The only relief I can get is keeping weight on it. Its a little hard to stand and sleep but I'll get by. 3 hours sleep is all I'll get tonight.
Here is an update from appointment with my Doctor's on Friday. There is much concern about the amount of fluid I an retaining. I must reschedule a tap if my weight increased another 8 - 10 lbs. Seems like the toxin buildup is causing other complications. I'm scheduled for a Doppler scan of my major arteries on Monday so they can compare the restrictions to my organs.
I'm in the process of changing my medications again. I'll be coming off the steroids. Those will take 3 weeks.
The good/bad news is. Because of the fluid buildups, I will be increasing my diaretics. What does this mean you may ask. With the increased medication, the onset of nonreversible kidney damage is likely to occur. With my kidneys only functioning at about 60%, hospitalizing is only right around the corner. Given my condition, kidney dialysis my not be an option. Well the good news, if this is the path I must follow, my meld score will sky rocket. But I'll still be waiting on AB type organs.
Well that's enough to think about. Only time will tell. My goal is to be on my feet November 24, to dance with my daughter at her special day. This is my focus. The Sunday morning paper just arrived. Time to catch up on the world news.
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June 22, 2012
News Update 6/22/12
My home improvement projects have come almost to a standstill as I have been in much pain. My weight has increased to 246 lbs due to fluid retention. My lower back was in much pain as I look just like I'm in a full term pregnancy. I called the doctor on Monday and he had set me up for a ultra sound guided fluid tap. Well Anna Marie and I spent 5 hours on 6/20, having 8 liters of fluid drained (17 Lbs). They could not drain all the fluids as dehydration may have become an issue. Maybe next week they can remove an additional 6-8 liters
I felt a lot better on Thursday. I even dropped a tee shirt size, however, I must have retained all the liquids I drank as I gained 5 lbs during the course of 24 hours. Well back to the XXL tee.
I'm scheduled to see my Doctor today. I'll be using my newly issued reduced fare transit pass that SEPTA was so kind to approve for me. $5.00 roundtrip by train, takes 40 minutes station to station.
We did have a chance to visit my employer. Now my wife knows why I enjoyed my job. The staff, as always, treated me just like family. Everyone was helpful, courteous and concerned. I wish everyone my best of luck for a bright future.
Well got to go and pickup my morning tea. More updates to come
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June 17, 2012
News update Fathers Day 6/17/12
I want to thank those of you for visiting this blog. Here is the latest.
I have began to take another medication and adjusted one of my current med's in an effort to resolve some colon / pain issues. When I opened up the new pill bottle and saw the size of the pills, I had to double check wether or not to take them orally. So for its hard to tell if their having any effect.
I'm really retaining fluid now, gained over 45 lbs in the past 3 1/2 weeks. I almost took another trip to the ER this week end to get some pain relief and to have the fluid removed. I didn't want to ruin what could be my last fathers day with my wife and kids, so I held off. I'll see my Doctor on Friday.
I'm still having troubles with my memory. I was installing a new dining room light fixture on Saturday. When I got done I turned on the circuit breaker and then spent 1/2 hour putting the small utility closet back together. When I returned to the dining room to check out the light, I discovered that there was no power to it. The problem was there was no power. Don't know how this happend, however I had to empty the utility closet and turn on the circut breaker cause it was still off. Wow it really is frustrating.
I have been ramping down my home improvement projects and spending more time resting, cause I just can't keep up the pace. Looks like I'm on a downward trend with my health.
Well that's enough for now. Happy Fathers Day!
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June 10, 2012
New Update June 10, 2012
The Naylor's just had a photo sitting to have our family portrait updated, before my health condition changes my appearance.
Please take a look at the latest photo's.
On the health front My doctors are concerned about the inflammation to my colon & stomach. The pain is becoming harder to deal with. My doctor is consulting with the transplant team staff, to recommend a cource of action. In the mean time, a change in medication is on its way on Monday along with added pain medication.
Side effects of my current medications are causing severe leg and hand cramping when I try to get some bed rest at night. To the point that I find it harder and harder to sleep any longer that an hour or so. I'm getting exhausted, however what's keeps me going is the fact my daughter is getting married in November and I have numerous projects to get completed on the house before that wonderful day arrives. Hope I'll be able to attend!
June 8, 2012
News Update 06/08/2012
Update: Just wanted to thank everyone for visiting my news and events log. Our goal is to keep everyone informed on my personal news and planned events.
I'm will be starting an Email / media campaign over the next few weeks If my health condition allows.
Currently, Being out of work is very depressing however I am keeping as busy as possible. Over the past few weeks I have been going for tests to resolve some pain issues with in my colon. Biopsy's were taken and I'm just waiting for the results.
I have also experienced episodes of Hepatic Encephalopathy. http://www.xifaxan550.com/about-hepatic-encephalopathy/index.aspx (The lack of fresh blood to the brain causing, the temporary loss of memory, confusion and impaired motor skills.) Knowing that I will no longer be able to drive my auto within the next few months will make things very difficult for me as I wait for a transplant organ.
My Kidneys continue to suffer. This condition is caused from the same fresh blood flow restriction as above as both organs share the same major artery attached to the liver.
I'll keep my spirits high, think positive, and keep focused. DCN.06/08/2012
June 13, 2012
News Update June 13, 2012
Yesterday I spent a lot of time working on home repair projects in our master bedroom. I was completely exhausted by the end of the day. This time spent won't come unnoticed when my daughter has some of her wedding photo's taken in November. This one was for you Kristina.
On the health front. Dealing with the pain and discomfort from some colon issues has become one of 2 issues these days. My doctor added another medication and adjusted the dose of an existing medication in a first effort to counter act the effects of the unprocessed toxins are having in this area. I'm gaining a lot of weight over the past week and probably will need to be drained soon.
Sleeping is another issue. I have a few more episodes of severe hand and leg cramping around 1:00 am in the morning. This is preventing me from lying down. I have only been getting about 1 - 2 hours of sleep during these episodes. Its starting to take its toll on me.
I have continued to have trouble with my speech and memory skills. Last week after leaving a local home improvement center, I could not remember where I was to turn into my neighborhood. This issue lasted only about 15 minutes or so. I will make sure don't drive alone anymore.
Well until my next update.
Thanks for reading along. Don't forget to sign my guest book.
DCN 6/13/12
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