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UPDATE 4.21.2010

Wow, it has been well over a year and a lot has changed. Faybree is full spead ahead and running, galloping and being a normal 2 year old. We still face obsticles, but with out those life wouldn’t be right. We embrace them and get through them. We have moved to Richmond, VA since the last post and certainly miss our family and friends. We are embracing the nature that VA has to offer which is great because Faybree loves the outdoors. Faybree currently is seeing a speech therapist as she only says a few words (maybe 5) as well as an educator to make sure that big brain of hers is always working and getting smart. The educator and speech therapist work hand and hand. We are thrilled to say she has been off of her feeding tube for almost a year now. She eats and drinks all by mouth. However, she started taking a liking to a bottle on Feb. 28, 2009 for the first time and has not put it down. Funny how I remember that exact date. I guess I was so thrilled she finally took the bottle after only taking it for 2 weeks of her life. Now, we are having issues with her trasitioning to a cup, while trying not to drool. Who knew she wouldn’t want to give up her bottle after trying to get her to take it for so long. This has been a challenge for sure. We will get there though.


June 24, 2009

Pnut, Nicole and Faybree;My family''s thoughts and prayers are with all of you. May God bless your family and especially your beautiful little girl. Stay positive and everything will be all right.

Love, Charles, Amanda and Jordan Mushalko

May 4, 2008

Praise God for Faybree your presious gift. Faybree is a miracle and has touched so many lives with her love. My prayers are with Faybree and your entire family daily.

Those who Hope in the Lord will renew their strengh. They will soar on the wings like eagles. Isaiah 40:31.

Susan Oates Chuluota Fl

April 28, 2008

We were so happy to read Faybree has her new lungs. God Bless all of you during this most diffucult time. You are all in our thoughts and prayers!

Chuck and Sandy Manning, Chuluota, Fl