On April 24th this year I gave birth to twins. The pregnancy was high risk and my labor and delivery occurred smack in the middle of a pandemic. I ended up being blessed with a smooth pregnancy (as smooth as it can be for a person with spinal cord injury), but I did experience some dangers with the labor and delivery. Everything turned out for the best and my 34 weekers will be out of NICU this week. We can’t wait to bring them home. Our future challenges (besides adapting to life with twins and making everything accessible to mom) will be in our need for additional caregiver support to continue allowing me to parent independently. I am so grateful for all the help I’ve received over the years and hope to pay it forward. Please check out my blog for updates: Daniizzie.com
February 6, 2019
I am currently working on funding a “standing” power chair. Time is of the essence as I face ongoing bone loss from not bearing weight on my skeleton and bones. (Astronauts lose up to 2% per month due to lack of gravity.) I need to be upright again and get some of that good gravity to counteract the worsening osteoporosis and resulting pain in my spine, hips and femurs.
Due to lack of access to ongoing therapy and the inability to use my current standing equipment due to worsening muscle spasticity and contractures, I feel that the Permobil F5 VS Vertical Power Chair is my best solution to remedy the issues I am now facing as it would allow me to stand up very easily and safely whenever I felt like it. I have not had this “luxury” in 10 years!
Insurance does not cover standing wheelchairs and the cost of this chair brand new and out-of-pocket is a whopping $50,000. However, I have been able to negotiate a price range on a slightly used demonstration unit for $15-20k and this is the amount I hope to raise. The closer I can get to $20k, the better option I will have on a newer model.
Contributions are tax deductible and can be made by credit card, check, phone, or online. If writing a check, please make payable to: Help Hope Live, and in the memo write, “in honor of Daniela Schirmer” .
Thank you for caring, and thank you for your help!
February 21, 2018
Ramp-building begins! See new Album!
Photo Galleries (5)
November 21, 2019
With love from Robert and Sylvia
February 15, 2019
We love you, Dani. Love, The Finks
February 11, 2019
happy to respond to jenny turner's eloquent call
February 9, 2019
Jenny Turner shared the story of your journey and I’m so glad to help in any way. Hope you’re standing soon!