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Good morning, unfortunately Wade’s (we call him Wes) transplanted kidney is slowly failing. The doctors figure he has less than 3 years before he needs a new transplant. So we have started a new fundraising campaign for him through HelpHOPELive again. HHL is incredible! Having gone through this once before, we know how difficult it is, we know how stressful it is, but we do it for the life and love of our son. Wes is such a special and wonderful guy we are blessed to have him in our lives. And therefore we are going through HelpHOPELive again, because they really do help our hope live.

Wade Edward Sparrowhawk Smith, known by family and friends as Wes, is a wonderful, happy 14-year-old boy. Wes was born in April 2007 with the genetic disorder Williams Syndrome and without his right hand. At the age of three months, Wes had open heart surgery to enlarge his pulmonary arteries and repair a valve in his heart, this is a common complication with Williams Syndrome. Over the years Wes has struggled with various developmental delays and did not walk until just before his fourth birthday. Despite all of his challenges he has remained a shining light of joy to everyone who knows him. His upbeat personality, ready smile and infectious laugh have captivated all who know him.

Updates (36)

February 22, 2017

Well everybody, I know this is pretty soon for another update, but Wes was admitted into Childrens Hospital of Pittsburgh today. His BUN, Creatinine, Potassium and Bp are all elevated, however, his Prograff levels are where they need to be (Prograff is the anti-rejection medication). Anyway, they aren't sure what is going on, because the Prograff levels have always been right because we have never missed a dose. He has to have a biopsy tomorrow on the new kidney. We are praying it is not the FSGS returning because that is what killed his kidneys in the first place. So, if you pray, then please say a prayer for Wes.

February 20, 2017

Hi everybody,

the latest on Wes is that he seems to be doing really well, except his BUN and Creatinin have been slightly elevated lately, so we are keeping a close eye on this, as it may indicate problems. However, no panic yet, just watchful eyes.

Wes has gained so much height and weight that he is upgrading to the next size of clothes faster than expected! However, this is so awesome that we really are NOT complaining.

As usual, I want to thank everyone for their kind, helping donations!

Mel

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Guestbook

October 8, 2015

Uncle Spence loves you and is so greatful to the Great Mystery that you are getting the kidney you need. Remind Mommy to call if there is anything we can do to help.

Uncle Spence PeaceMaker

August 13, 2015

Wes we are so privileged to have you come into our lives and inspire us to enjoy the life we are given. You are truly an amazing young man. We enjoyed having you along on the benefit ride and we hope the money we raised helped! We love you buddy!

All your riding buddies

August 9, 2015

My husband go his kidney in 2006. it is working good today. I have to say listen to the doctors. get you blood work done. keep all his meds on time every day. One hint please done run out of his meds. If the doctor went original meds for him that the doctor has to writ on the med original not name brand. If he has other med that is on time schedule might have to add the new pills to them. I am praying for him.

Chris Murdock-Burnside