Help HOPE Live for Janice Tindle
Dear Friends,
As you may know, my beloved wife, Janice Tindle, was a passenger in a car collision in July 2010, involving an under-insured motorist. This incident left her with both a traumatic brain injury, cervical spinal injury, a T1 compound wedge fracture, inner ear damage and neurological injury, later diagnosed as Dystonia and changed our lives forever. Janice was gracious enough to participate in two research programs, one for managing TBI fatigue and one that tested the first potential tool for concretely diagnosing traumatic brain injuries.
The pilot special MRI revealed difficulties with six areas of the brain that control speech, vision, spacial perceptions, ability to process new memory information, and balance, as well as the main pathway of the brain that connects all other areas. Janice has inner ear damage known as left unilaterial vestibular hypofunction and nystagmus. Based on this information, her doctors feel that ongoing therapy is warranted. At this point, half her therapy is out-of-pocket.
Despite all of these setbacks, Janice is a very determined woman who is working very hard to accept the new reality of her situation and to recover to a state of functionality. However, the road ahead is a very difficult one. Janice needs therapies such as: outpatient physical therapy, vision and vestibular therapy. Additionally, home modifications have been and will continue to be made to our house to make it safer and more functional which will allow Janice a higher level of independence.
Even with health insurance, Janice will continue to have many uninsured, injury-related expenses such as: co-pays and deductibles, doctor visits, rehabilitation services and home modifications — and some of her insurance coverage ended in September 2012. Even though Janice’s disability qualifies her for Social Security benefits, she lost her work credits because she took time off time to care for elderly loved ones in hospice.
To help with the cost of these uninsured, injury-related expenses, a fundraising campaign in Janice’s honor has been established with HelpHOPELive, a non-profit organization that has been assisting the transplant community for more than 30 years. In 2000, they expanded their mission to include those who have sustained a catastrophic injury. All contributions are tax-deductible, are held by HelpHOPELive in the Mid-Atlantic Catastrophic Injury Fund, and are administered by HelpHOPELive for injury-related expenses only. Please consider making a donation today by clicking the DONATE NOW bar.
It is estimated that a person with a traumatic brain injury will spend between 5-10 million dollars in their lifetime on care. Your donation need not be large. If everyone gives, a few dollars per person, it goes along way. Thank you so much for helping us work on “phase one” of the fundraising process. Your time and contributions are greatly appreciated.
Warm Regards,
Daniel E. Tindle
Updates (40)
May 3, 2025
It’s been a long recovery from knee replacement surgery. Janice is going well, but still is experiencing pain in her knee because she also needs a hip replacement surgery and possibly a back surgery. MRI is scheduled for May 12. We will keep you updated.Janice’s word apashia is still hindering her writing, but she is persistent about trying everyday. Her depression wanes and flows. This government situation has not been conducive to good mental health, that’s for sure!On the issue of Matt Fusco. Janice won’t receive her money back from his bankruptcy treasure until December 2026! And it will be only a portion of what he took from her and refused to return. As far as donations go, this this fund was started in 2012, two years after the car collision. At that time we had hoped for 10,000 for a new handicapped bathroom. Well, that never happened. There’s been 42 donations since. 2012. None for the last two years. Now, the cost of a handicapped bathroom is much much more than that, so we are moving up the goal. Her surgery is this year, so she will did that new bathroom soon. We are hoping an praying for a miracle! Thank you! Dan
December 13, 2024
October 2024. Janice had a successful total knee replacement surgery. She had suffered great pain for many years with an unstable knee. She’s having success in her physical therapy and hopes to be walking unassisted with minimal pain very soon. It’s a great relief to be out of that hopeless pain in a wheelchair. However, she’s is not able to her medical bills. She has 3 more surgeries to consider doing. One is deep brain stimulation. She only has a short time via her age to make her decision on that. Your support is greatly appreciated. Thank you.
September 5, 2024
Things have gone from bad to worse. 2024 has been a terrible year for Janice. A victim of identity theft and con men, she lost all her savings.
Matthew Stephen Fusco of the now defunct Fusco Home Remodeling went bankrupt just as she was about to serve her judgement against him for $6400.00. She had to hire a lawyer to fight for her place in the bankruptcy, but she can’t pay him any further. It will be years before she even sees a penny. Of course, he’s not making it easy. He was to build a small deck with ramps for a wheelchair but was cited for making it unsafe. He fought her and she won, but had to get someone else to do it. Everything he did had to be removed and redone. He’s never apologized and in fact, was quite rude and argumentative to the judge in court.
Instead of working on her rehabilitation for her very bad concussion, she had to send that year chasing him down for repayment through the legal system, which never came. She’s now lost fault in the legal system, the Attorney General, the District Attorney and her own municipal government.
She has had increased pain from dystonia and osteoporosis, osteoporosis and fractures. Janice needs a total knee replacement but does not the support needed for aftercare. With the reluctance of doctors to prescribe opioids, her pain has lead to increased anxiety, depression and exhaustion. Because of her autoimmune disease and immobility, she hasn’t been able to recover in any way like she hoped.
At the end of August 2024, her beloved dog Morgan passed away at age 15 years. It’s an extreme loss as Morgan was with her 24/7 for 5 years. She got her a while rescue and saw her through many health crisis,, but age related kidney disease can not be cured.
The sadness is immense.
This campaign has gotten little attention since it’s formation because Janice doesn’t have many supporters who actually care enough to help with campaign and fight for her, so she has all but given up. A yard sale will be held at her home on Sept 14th in hopes gain some funds for her knee replacement. She will be doing it herself, painfully using her own items for the fundraiser.
The effects of her multiple brain injuries has left her with personality, emotional, cognitive and physical changes that make her feel like she’s unlovable, unwanted and unliked. Her husband and a few friends don’t feel that way about her, but she finds it hard to feel loved when she really doesn’t even know who she is. The person she was, is not the same person who she sees and feels like. That’s why Morgan’s love was so special. She was able to break through that as only a dog can.
December 5, 2023
Well, since 2010, we still haven’t met the initial goal. That’s probably because we don’t really advertise this fund too often. We’re not too savvy on that and don’t get many shares.
Janice’s 5th concussion in March has left her with memory loss, cognitive issues and more balance impairment. To make matters worse, She had to deal with an unfortunate situation with a contractor who was supposed to build her a wheelchair accessible deck but failed to do so and thus she has spent most of this year in the legal system which still hasn’t led to the return of her deposit and expenses due to it. The deck that was started had to be removed due to safety and code violations. It had to built by someone else, so that incurred more expenses. She still needs all her rehabilitation care, physical, cognitive, balance and help with depression, anxiety and trauma related stress. She’s a strong senior lady to be going all through this, but with the ongoing issues and my new diagnosis of arthritis in my hands, my care of her and making up the financial loss has been a struggle as well. Thank you for your kindness. - Dan
March 28, 2023
2023
Janice hit her head again. This time on the cape cod (attic) ceiling and sustained her 5th Traumatic Brian Injury. She has ahead of her, speech and cognitive therapy, physical and vestibular therapy and many visits to thr concussion doctor. Janice never fully recovered from her past concussions, especially with the one in 2019. She battles migraine, bodily pain, depression and anxiety.
She will need multiple weekly therapies for many weeks. She suffered from post concussion symptoms and has a balance and movement disorder.
In 2019, Janice feel down the stairs in her mothers home and hit her head on a steel door at the hinges and broke her lower back to the tailbone. She has a chronic burst compression fracture at L1-2. She has not recovered yet from the effects of this TBI. Neck and head injury causes daily pain.
December 27, 2021
December 26,2021
Janice has multiple and permanent health concerns as a result of the 2010.
Vestibular disorder
Nerve pain
Occipital damage - vision problems
Including
Severe Osteoporosis resulting in multiple fractures
Dystonia - progressive. Also causes chronic migraine Requires a cane or more. Braces, Botox ,Trigger point injections, several other injections.
Osteoarthritis
Painful Tendon conditions
Autoimmune diseases
Pernicious Anemia
Thyroid disease
Now, a senior citizen, these conditions are complicated with the aging progress.
February 9, 2021
Hi Folks, I haven’t added an update for years because quite frankly, things have been really tough these past couple of years. My mom became ill with congestive heart failure and she moved in with me. I took her of her. It caused my health to deteriorate. She passed in April 2020, at 91. I have been extremely depressed because I miss my mother so much. Now, I’m trying to rebuild the ability to care for myself again. It’s hard. With the pandemic, I’ve been alone in isolation because I can’t get covid! Money has been tight. My can’t afford my insurance or medical bills, so I’ve been going without the care I should be getting. Right now, I can’t get the Botox I need to keep me walking and moving. I wear braces and use a cane or crutch depending on how bad dystonia has got me. Botox every three months help me not give up. I need $1487 to get Botox for dystonia and migraine. Dystonia has fractured bones and put me in the ER. Botox is vital to my health. Please help. Thank you.
October 20, 2017
http://janicetindle.com/2017/10/20/the-man-who-works-for-something-greater-than-himself-by-janice-tindle/
October 20, 2017
Janice has had a very difficult year. She only wrote two blog posts this year. This one just now, in October of 2017. http://janicetindle.com/2017/10/20/the-man-who-works-for-something-greater-than-himself-by-janice-tindle/
April 14, 2017
The ebbs and flows of dystonia. Janice opted to increase her Botox injections because she was getting under the required amount for dystonia. However, as noted in clinical trials, it can have the desired effect on the overused muscles by calming them down, but subsequently cause the the weakened muscles to become overused thus causing pain and weakness. So she has a soft cervical neck collar until things improve, possibly three months. She made a video while coming home from dentist. You can watch it below. Medicine, has caused her jaw to need a bone graft and a tooth completely crumbled, thus needing an implant. This took a nine months and $7000.00. Osteoporosis is caused spinal fractures and injuries last year to her knee ligaments, toe, tensions and tears in the lower back showed up after an ambulance ride. She was told by a neurologist that she suffered two mini strokes in December of 2016.
February 10, 2017
Janice's piece, " What People Don't Understand," ( TBI Hope Magazine, Think! Newsletter) and the complete version, " 7 Ways To Support Someone With A Traumatic Brain Injury" ( TheMighty.com) have helped people worldwide understand what it's like to have a brain injury. It is even on a few brain injury websites and has been shared around the web. She received no money for this wonderful article, only praise. Janice does what she can as an advocate for dystonia and brain injury. Why not contribute to her ongoing care with a tax deductible donation?
February 10, 2017
Janice was featured as a Fearless Caregiver. Being a disabled caregiver is particularly difficult. Janice has had to endure a significant increase in pain due to the daily challenges of caregivering. However, she loves her mother dearly and views caregiving for her as the most important work of her life. http://www.caregiver.com/fearless_profile/archive_2016/janice_tindle.htm
January 12, 2017
Janice has posted her first post of 2017 on her blog here: https://janicetindle.com/
In it she includes a brain injury awareness video that she made to share her joy and encourage others to never give up!
December 5, 2016
Janice just completed the WEGOHEALTH Activist 30- Day Writing Challenge. She was nominated in five categories for her selflessness in helping others through social media. Her latest post tells you how you can help her and others with dystonia. https://janicetindle.com/2016/12/02/how-to-love-someone-with-dystonia-by-janice-tindle/
July 15, 2016
Here is interview link that was done with Janice last year. In this 2-1/2 hour conversation with Kim Jefferson Justus, Janice explains how she got her TBI, the challenge it has been and how she's dealt with it. Towards the end of interview, Janice reads some of the things she's written and discusses her plans for the future. http://www.blogtalkradio.com/braininjuryradio/2015/10/29/messages-of-hope-on-recovery-now-with-kim-justus
July 15, 2016
Janice found a local doctor who was willing to take her into a neuro plasticity training program. She doesn't have to travel to Canada or Florida at this time. The cost of treatment is $7,000.00 for the first four months. It is intense, hard work, but Janice is determined to follow the instructions and do her utmost to make progress. In just four appointments, Janice has seen an improvement in the number of repetitive spasms she endures on a daily basis. Videos are being taken of her appointments and they will be be available on her YouTube channel. When they become available, they will posted here. In so much as her Dystonia has progressed in recent months so that she use a crutch to work, she is hopeful that neuro plasticity will slow down the progression of this horrible disorder.
June 16, 2016
June 16, 2016
June 16, 2016
June 16, 2016
June 16, 2016
June 16, 2016
June 16, 2016
June 16, 2016
You listen to Janice talk about her life here: http://tobtr.com/7902069
April 9, 2016
The cost of Botox not covered by insurance https://helphopelive.org/media/campaign_pictures/orig/image_500.jpeg
December 22, 2015
https://youtu.be/q4Q_s5_E5nw
https://youtu.be/xrmtXok7aMo
December 21, 2015
Below is a link to a video of Janice having a Dystonic spasm while trying to complete the everyday task of filling out a form. She has found some relief in a device called the H-Wave, the cost of which is $2,000 - out of pocket. The second video shows how that device is assisting her.
https://youtu.be/q4Q_s5_E5nw
https://www.youtube.com/watch?v=xrmtXok7aMo
December 21, 2015
Janice has been wrestling with Dystonia which is now affecting her hands and wrists. Injuries from Dystonia can happen and did in Janice's case. She was diagnosed with Tenosynovitis which is the inflammation of the tendon sheath where muscle connects to the bone. Hand therapy was prescribed by a surgeon along with custom made braces, of which she wears one set during the day and one set for sleeping, in order to keep her hands from curling. This replaces the store bought ones which she had been wearing since March. Dystonia has also injured her right knee, for which she wears a knee brace that she got from her physiatrist. Also, physical therapy was prescribed.
During this time Janice has become a caregiver for her mother, who has moved into her home. She also actively volunteers in the online TBI and Dystonia community and in a faith-based ministry.
The pain that she endures is continual and oppressive so medication is required along with as much rest as possible. She also uses every modality available such as the H-Wave device and infired sauna.
It's worthy to note that Janice does not receive any disability from Social Security because she gave up her job in order to care for her father who had a brain tumor, and as a result she lost her work credits. Her father died in 2007. Janice had her neck surgery in 2008 and just as she was beginning her life again, she was involved in the car collision in which she incurred the cervical spine injury and subsequent Dystonia. She is still actively writing, with the help of an assistant. You can find her writing at JaniceTindle.com.
Please share this post with anyone who may be interested in a tax deductible donation for 2015. It will benefit a very determined and positive individual who is not letting disability interfere with her goals.
June 9, 2015
This see an example of my Dystonia, please click on these links: http://youtu.be/-oUZATXQQTk and http://youtu.be/4oN5BpENiv8. It is a very painful and rare neurological disorder. Sometimes my muscles twist and contorts my body. Sometimes I shake. Sometimes it's just an intense unrelenting pain that feels like barbed wire being pushed into my body. It is always exhausting.
May 28, 2015
Sadly, Janice's great aunt passed away on April 19, 2015. A few days later, her cousin was In the hospital fighting for her life. So while planning a funeral service, Janice had to extend herself once again in the hospital. Fortunately, her cousin is now recovering at home, but this all took a toll on Janice's health. She is now trying to assist her aged mother transition into a new lifestyle. Janice's Dystonia had a huge flare up recently. The pain and disability of Dystonia has put a hold on finishing her upcoming book, "Get Back Up!" It's purpose is to inspire and encourage those living with chronic illness, pain and disability. Janice needs regular and specific therapy in order to function. All of this is out of pocket. Your kind donation is greatly appreciated. Thank you.
April 11, 2015
Janice has been working really hard since last fall. After hitting rock bottom on pain management medicine, even having severe adverse reactions, she went on a detox cleanse. She roughed it with tremors, spasms and parkinsonism. She went on an anti inflammatory diet and researched pain relieving supplements and foods. Except for the Botox for her Dystonia, Janice successfully eliminated pain meds. In the process, she lost 37 lbs! In order to continue making progress she needs to be able to afford her supplements, diet and therapies. Janice has had several recent published articles from the past and wants to continue to write. She is currently being a support to a great aunt who is now on hospice.
October 31, 2014
Janice has segemental dystonia. It is excruciating and has recently put a halt to her writing. She currently has contorting cramping when she speaks or uses her arms and fingers. We hope this will improve.
January 7, 2014
You can find Janice's writing at janicetindle.com
September 14, 2012
Memory of our Cats
This is a video of our cats, the last one I lost in Aug 2012, my little nurse, who appears at the end and on my bed in my photos. She was my constant companion for 23 yrs. I miss her. She was a great girl. The song was sung in 1991.
http://www.youtube.com/watch?v=3a8Ifjbq8nc
September 14, 2012
Janice Tindle and Friends
This was a video that was taken in 2008 before I knew that I neeeded cervical spinal surgery, which was done in August of 2008 and relieved my migraines. In 2010, a car accident caused another spinal injury and TBI which at that time the migraines returned. I did the singing as a way to manage my pain, however due to the nature of my injuries I can no longer sing nor speak or perform as I once did. Hopefully, therapy and time will regain that joy again into my life.
http://www.youtube.com/watch?v=Zi852HN44Vc
January 21, 2013
You can find Janice on LinkedIn. Please connect with her!
http://www.linkedin.com
June 27, 2012
Volunteers Needed
We need a walk in tub. We also need sound proofing materials and awnings,as Janice is sensitive to light and sound. We also need candy bars donated for sale that will have special wrappers with Janice's info.
We are looking for volunteers to help with weeding Janice's garden and organizing used items for an upcoming sale.
If you would like to volunteer for a fundraising event, please contact this website contact Joni Henderson.
We are currenting looking into several events.Thank you for your support.
June 27, 2012
High-Definition Fiber Tracking Could Help Diagnose Traumatic Brain Injury
http://www.huffingtonpost.com/2012/03/02/traumatic-brain-injury-high-definition-fiber-tracking_n_1316156.html
June 28, 2012
Three Is All You Need
Published in Mainline Rehab March newsletter 2012, Fearless Caregiver 2012 #88 and blogged about by Steve of Upland - Ducks in a Row. Also published in Today's Caregiver magazine p. 24 Nov/Dec 2012.
http://www.caregiver.com/articles/print/three_is_all_you_need.htm
September 5, 2012
Cyber Candy Bar Fundraiser Sale
Zero Cal. Zero carbs. 100% fulfilling and satisfying. Suggested donation $1.00 per bar. Real candy can be purchased via offline TBA. This Fall.
Photo Galleries (4)
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Guestbook
December 8, 2023
I saw your name under the long list of Matt Fusco's debtors. I was also a victim of his gross incompetence earlier this year. I am guessing we will get our money back. Sending blessings to you that 2024 will be a better year :)
Anonymous
May 25, 2015
Always stand strong and do the best you can do. Never give up! each for the stars and keep giving it your all.
Debra Goodrich another tbi survivor
July 10, 2013
Hello,
I'm so sorry to hear about your situation !
Agape,
Rich Sokol
Pittsburgh, PA
January 22, 2013
Keep up the good work. I see that you are loved well, that will help you on your road to recovery.
Gerri Siegfried
January 22, 2013
Stay strong and believe!
Don Weiss
January 21, 2013
Janice, I didn't know about your accident! So sorry. I will try to keep in touch and monitor your progress. You do have determination and, of course, Jehovah to stay
the course. Please take care of yourself. Hi to Danny
Laura Nizankiewicz Hollen
January 21, 2013
Hey Cuz
Your going to do great. I see the difference from the first time we wrote till now. I'll be seeing you on Facebook. Look forward to IM ing.
Deborah K Ft. Collins, Colorado
June 27, 2012
Dear janice, Your are more like a daughter to me thsn and niece. I love you and pray for your recovery.
Great Aunt Sophia
June 21, 2012
My dear daughter, you are the light of my life. Always qin my prayers. I love with all my heart.
Mom
June 21, 2012
I love you, and I hope this program will help with your recovery,my darling wife.
Dan
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Help Hope Live
Note in memo:
In honor of Janice Tindle
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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