December 27, 2021
December 26,2021
Janice has multiple and permanent health concerns as a result of the 2010.
Vestibular disorder
Nerve pain
Occipital damage - vision problems
Including
Severe Osteoporosis resulting in multiple fractures
Dystonia - progressive. Also causes chronic migraine Requires a cane or more. Braces, Botox ,Trigger point injections, several other injections.
Osteoarthritis
Painful Tendon conditions
Autoimmune diseases
Pernicious Anemia
Thyroid disease
Now, a senior citizen, these conditions are complicated with the aging progress.
February 9, 2021
Hi Folks, I haven’t added an update for years because quite frankly, things have been really tough these past couple of years. My mom became ill with congestive heart failure and she moved in with me. I took her of her. It caused my health to deteriorate. She passed in April 2020, at 91. I have been extremely depressed because I miss my mother so much. Now, I’m trying to rebuild the ability to care for myself again. It’s hard. With the pandemic, I’ve been alone in isolation because I can’t get covid! Money has been tight. My can’t afford my insurance or medical bills, so I’ve been going without the care I should be getting. Right now, I can’t get the Botox I need to keep me walking and moving. I wear braces and use a cane or crutch depending on how bad dystonia has got me. Botox every three months help me not give up. I need $1487 to get Botox for dystonia and migraine. Dystonia has fractured bones and put me in the ER. Botox is vital to my health. Please help. Thank you.
October 20, 2017
Janice has had a very difficult year. She only wrote two blog posts this year. This one just now, in October of 2017. janicetindle.com
April 14, 2017
The ebbs and flows of dystonia. Janice opted to increase her Botox injections because she was getting under the required amount for dystonia. However, as noted in clinical trials, it can have the desired effect on the overused muscles by calming them down, but subsequently cause the the weakened muscles to become overused thus causing pain and weakness. So she has a soft cervical neck collar until things improve, possibly three months. She made a video while coming home from dentist. You can watch it below. Medicine, has caused her jaw to need a bone graft and a tooth completely crumbled, thus needing an implant. This took a nine months and $7000.00. Osteoporosis is caused spinal fractures and injuries last year to her knee ligaments, toe, tensions and tears in the lower back showed up after an ambulance ride. She was told by a neurologist that she suffered two mini strokes in December of 2016.
February 10, 2017
Janice's piece, " What People Don't Understand," ( TBI Hope Magazine, Think! Newsletter) and the complete version, " 7 Ways To Support Someone With A Traumatic Brain Injury" ( TheMighty.com) have helped people worldwide understand what it's like to have a brain injury. It is even on a few brain injury websites and has been shared around the web. She received no money for this wonderful article, only praise. Janice does what she can as an advocate for dystonia and brain injury. Why not contribute to her ongoing care with a tax deductible donation?
February 10, 2017
Janice was featured as a Fearless Caregiver. Being a disabled caregiver is particularly difficult. Janice has had to endure a significant increase in pain due to the daily challenges of caregivering. However, she loves her mother dearly and views caregiving for her as the most important work of her life. www.caregiver.com
January 12, 2017
Janice has posted her first post of 2017 on her blog here: janicetindle.com
In it she includes a brain injury awareness video that she made to share her joy and encourage others to never give up!
December 5, 2016
Janice just completed the WEGOHEALTH Activist 30- Day Writing Challenge. She was nominated in five categories for her selflessness in helping others through social media. Her latest post tells you how you can help her and others with dystonia. janicetindle.com
July 15, 2016
Here is interview link that was done with Janice last year. In this 2-1/2 hour conversation with Kim Jefferson Justus, Janice explains how she got her TBI, the challenge it has been and how she's dealt with it. Towards the end of interview, Janice reads some of the things she's written and discusses her plans for the future. www.blogtalkradio.com
July 15, 2016
Janice found a local doctor who was willing to take her into a neuro plasticity training program. She doesn't have to travel to Canada or Florida at this time. The cost of treatment is $7,000.00 for the first four months. It is intense, hard work, but Janice is determined to follow the instructions and do her utmost to make progress. In just four appointments, Janice has seen an improvement in the number of repetitive spasms she endures on a daily basis. Videos are being taken of her appointments and they will be be available on her YouTube channel. When they become available, they will posted here. In so much as her Dystonia has progressed in recent months so that she use a crutch to work, she is hopeful that neuro plasticity will slow down the progression of this horrible disorder.
June 16, 2016
You listen to Janice talk about her life here: tobtr.com
December 21, 2015
Below is a link to a video of Janice having a Dystonic spasm while trying to complete the everyday task of filling out a form. She has found some relief in a device called the H-Wave, the cost of which is $2,000 - out of pocket. The second video shows how that device is assisting her.
youtu.be
www.youtube.com
December 21, 2015
Janice has been wrestling with Dystonia which is now affecting her hands and wrists. Injuries from Dystonia can happen and did in Janice's case. She was diagnosed with Tenosynovitis which is the inflammation of the tendon sheath where muscle connects to the bone. Hand therapy was prescribed by a surgeon along with custom made braces, of which she wears one set during the day and one set for sleeping, in order to keep her hands from curling. This replaces the store bought ones which she had been wearing since March. Dystonia has also injured her right knee, for which she wears a knee brace that she got from her physiatrist. Also, physical therapy was prescribed.
During this time Janice has become a caregiver for her mother, who has moved into her home. She also actively volunteers in the online TBI and Dystonia community and in a faith-based ministry.
The pain that she endures is continual and oppressive so medication is required along with as much rest as possible. She also uses every modality available such as the H-Wave device and infired sauna.
It's worthy to note that Janice does not receive any disability from Social Security because she gave up her job in order to care for her father who had a brain tumor, and as a result she lost her work credits. Her father died in 2007. Janice had her neck surgery in 2008 and just as she was beginning her life again, she was involved in the car collision in which she incurred the cervical spine injury and subsequent Dystonia. She is still actively writing, with the help of an assistant. You can find her writing at JaniceTindle.com.
Please share this post with anyone who may be interested in a tax deductible donation for 2015. It will benefit a very determined and positive individual who is not letting disability interfere with her goals.
June 9, 2015
This see an example of my Dystonia, please click on these links: youtu.be and youtu.be It is a very painful and rare neurological disorder. Sometimes my muscles twist and contorts my body. Sometimes I shake. Sometimes it's just an intense unrelenting pain that feels like barbed wire being pushed into my body. It is always exhausting.
May 28, 2015
Sadly, Janice's great aunt passed away on April 19, 2015. A few days later, her cousin was In the hospital fighting for her life. So while planning a funeral service, Janice had to extend herself once again in the hospital. Fortunately, her cousin is now recovering at home, but this all took a toll on Janice's health. She is now trying to assist her aged mother transition into a new lifestyle. Janice's Dystonia had a huge flare up recently. The pain and disability of Dystonia has put a hold on finishing her upcoming book, "Get Back Up!" It's purpose is to inspire and encourage those living with chronic illness, pain and disability. Janice needs regular and specific therapy in order to function. All of this is out of pocket. Your kind donation is greatly appreciated. Thank you.
April 11, 2015
Janice has been working really hard since last fall. After hitting rock bottom on pain management medicine, even having severe adverse reactions, she went on a detox cleanse. She roughed it with tremors, spasms and parkinsonism. She went on an anti inflammatory diet and researched pain relieving supplements and foods. Except for the Botox for her Dystonia, Janice successfully eliminated pain meds. In the process, she lost 37 lbs! In order to continue making progress she needs to be able to afford her supplements, diet and therapies. Janice has had several recent published articles from the past and wants to continue to write. She is currently being a support to a great aunt who is now on hospice.
October 31, 2014
Janice has segemental dystonia. It is excruciating and has recently put a halt to her writing. She currently has contorting cramping when she speaks or uses her arms and fingers. We hope this will improve.
January 7, 2014
You can find Janice's writing at janicetindle.com
September 14, 2012
Memory of our Cats
This is a video of our cats, the last one I lost in Aug 2012, my little nurse, who appears at the end and on my bed in my photos. She was my constant companion for 23 yrs. I miss her. She was a great girl. The song was sung in 1991.
www.youtube.com
September 14, 2012
Janice Tindle and Friends
This was a video that was taken in 2008 before I knew that I neeeded cervical spinal surgery, which was done in August of 2008 and relieved my migraines. In 2010, a car accident caused another spinal injury and TBI which at that time the migraines returned. I did the singing as a way to manage my pain, however due to the nature of my injuries I can no longer sing nor speak or perform as I once did. Hopefully, therapy and time will regain that joy again into my life.
www.youtube.com
January 21, 2013
LinkedIn
You can find Janice on LinkedIn. Please connect with her!
www.linkedin.com
June 27, 2012
Volunteers Needed
We need a walk in tub. We also need sound proofing materials and awnings,as Janice is sensitive to light and sound. We also need candy bars donated for sale that will have special wrappers with Janice's info.
We are looking for volunteers to help with weeding Janice's garden and organizing used items for an upcoming sale.
If you would like to volunteer for a fundraising event, please contact this website contact Joni Henderson.
We are currenting looking into several events.Thank you for your support.
June 27, 2012
High-Definition Fiber Tracking Could Help Diagnose Traumatic Brain Injury
www.huffingtonpost.com
June 28, 2012
Three Is All You Need
Published in Mainline Rehab March newsletter 2012, Fearless Caregiver 2012 #88 and blogged about by Steve of Upland - Ducks in a Row. Also published in Today's Caregiver magazine p. 24 Nov/Dec 2012.
www.caregiver.com
September 5, 2012
Cyber Candy Bar Fundraiser Sale
Zero Cal. Zero carbs. 100% fulfilling and satisfying. Suggested donation $1.00 per bar. Real candy can be purchased via offline TBA. This Fall.
