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Dear Family and Friends,

As many of you know, our son Jon was born with a congenital heart defect called Transposition of the Great Arteries and had corrective open-heart surgery at four and a half months old. He had been followed closely throughout the years, and eventually, at the age of 13, needed a pacemaker implanted to control an irregular rhythm as a result of the worsening of his heart condition. By the time Jon was 16, it was determined that the only treatment for his failing heart was a heart transplant, which he bravely underwent in November 1997, on my birthday- what a wonderful gift!

Updates (1)

April 22, 2014

April, 2014
After experiencing relatively stable health over about a year and returning to work a few hours a week, Jon has now been going through a rough time with his condition in the last few months. He is doing ok but his health is beginning to decline once again, needing intensive medical intervention, to the point where he had to take a long term leave from work.
We remain optimistic that he will receive a new heart soon and he’ll be on his way to recovering and getting back to work and enjoying a normal life once again.

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Guestbook

April 23, 2014

Jon, we are all so proud of the courage and optimism you have shown during your illness -and throughout all of the challenges you've faced in your life. You truly are an inspiration-and no one is stronger or more determined than you. We love you and are with you every step of the way in this journey.

Love, Mom

October 8, 2013

Bud, your outlook on life is a true inspiration to so many people that I know and that I value everyday. The courage and determination that you have to go through this again overwelms me everyday. I can't tell you how many people I tell that you are the bravest guy I know. We will be there for you every step of the way and will conquer this bump in your life together. Luv ya Dad

Dad

October 8, 2013

My prayers are with you and your family with the love and support of others thru HelpHOPELive you will overcome this diffucult challenge and once again be blessed with a healthy happy life.

Ingrid M Ronca- East Norriton, PA

October 8, 2013

Jon, I have never met you but if yu are anything like your dad then I am sure you are a great person and I wish you great success in overcoming your medical challenges.

Gerald J. Kaytrosh