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Trini Wenninger and her family are confronting a challenge they cannot face alone. They need your help. Trini was diagnosed at the Cleveland Clinic with Pulmonary Veno-Occlusive Disease (PVOD), a rare condition that is destroying her lungs. The cause of PVOD is unknown and there is no cure. Eventually Trini will need to undergo a double-lung transplant in order to survive and to watch her daughter grow up.
Up until her health declined, Trini was a board member of the Sylvania Area Historical Society, and active in LEAD (Leaders in Education and Discovery) and her daughter’s Girl Scout troop. Now, Trini is on oxygen 24 hours a day, 7 days a week and takes numerous medications, including an intravenous drug that is on a continuous pump she wears around her waist.
Trini and her family face a financial burden because transplantation is a major surgery that is extremely expensive. There will be many costs associated that must be paid out-of-pocket: co-pays, deductibles, and travel expenses pre- and post-transplant. In addition, Trini will be on a lifetime of anti-rejection medications. This is where your help is desperately needed.
To help ease this financial burden, a fundraising campaign in Trini’s honor has been established with Help Hope Live, a nonprofit organization that has been assisting the transplant community for over 30 years. All donations are tax-deductible to the full extent allowed by law, are held by Help Hope Live in the Great Lakes Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. If you are able and wish to make a donation, select the Give button.
For more information, please contact Help Hope Live at 800.642.8399.
Your financial gifts will be greatly appreciated and will help Trini through this difficult time.
Trini celebrated her 10-year lung transplant anniversary! This is a HUGE milestone. In July 2020, she had a kidney transplant and has been relatively stable since. She grasped the opportunity to go back to school and started a new career part-time. She is still visiting doctors on a regular basis, keeping up with taking pills several times a day, and continuing lab-work as scheduled. She deals with aches and pains, migraines, and has osteoporosis in her lumbar spine but she knows how far she can push herself. She still has many out-of-pocket costs for medical needs, but is enjoying the routine of a somewhat-more-normal life. She appreciates life and all those who have helped her through this journey.
Trini is scheduled for a kidney transplant soon as long as Covid-19 doesn’t delay or mess up proposed plans. Her transplanted lungs have been doing well but her kidneys have not. Her husband has been approved as a donor. They have several out-of-pocket expenses that insurance doesn’t cover so anything helps.
Trini is in Stage 4 Kidney Failure due to the transplant medications. This summer she had to endure some injections and infusions to help with her low Hemoglobin. Right now there's not a whole lot we can do other than celebrate every blood test where her creatinine does not increase any more than it has.
November 2016: Our family continues to thank everyone for their help and support. Trini takes several life-saving medications and still deals with migraines. This year she had several procedures, including Gamma Knife radiation. Thankfully her lungs still show no sign of rejection. The trips to Cleveland and regular testing continue to cost way beyond what insurance helps with.
Trini received her transplant in January 2014. This year has not been the easiest but she is so grateful to be here with her friends and family. She wants to thank everyone for their continued support as the medical costs are still a burden. She is on a lot of medication, including a weekly injection. She deals with migraines and has had to have another small minor procedure. It's all a bit of a balancing act at this point. She has been back to Cleveland numerous times for continued testing and has been doing relatively well in the context of things--no rejection.
On January 20, 2014, Trini received her life-saving double-lung transplant. She is healing from surgery and on approximately twenty medications and supplements. Several of her medications are expensive and she will be on them for the rest of her life. She thanks everyone for their continued support and encouragement.
Sending lots of love, wish I could do more! <3
Holly Allen
Always thinking of you Trini! Sending much love your way!
Holly Allen
Trini..my granddaughter Hannah is very close to Leia...wanted you to know I am praying for you and your family as you are going through this very difficult time...
Michelle Schmidt, Sylvania, OH
Trini
We send love and prayers to your precious family. My daughter Avery was in american girl with Leia.
Janelle Nowowiejski
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Trini Wenninger
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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