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Trini Wenninger and her family are confronting a challenge they cannot face alone. They need your help. Trini was diagnosed at the Cleveland Clinic with Pulmonary Veno-Occlusive Disease (PVOD), a rare condition that is destroying her lungs. The cause of PVOD is unknown and there is no cure. Eventually Trini will need to undergo a double-lung transplant in order to survive and to watch her daughter grow up.

Updates (3)

January 18, 2017

November 2016: Our family continues to thank everyone for their help and support. Trini takes several life-saving medications and still deals with migraines. This year she had several procedures, including Gamma Knife radiation. Thankfully her lungs still show no sign of rejection. The trips to Cleveland and regular testing continue to cost way beyond what insurance helps with.

November 12, 2014

Trini received her transplant in January 2014. This year has not been the easiest but she is so grateful to be here with her friends and family. She wants to thank everyone for their continued support as the medical costs are still a burden. She is on a lot of medication, including a weekly injection. She deals with migraines and has had to have another small minor procedure. It’s all a bit of a balancing act at this point. She has been back to Cleveland numerous times for continued testing and has been doing relatively well in the context of things–no rejection.


January 21, 2017

Always thinking of you Trini! Sending much love your way!

Holly Allen

October 8, 2013 granddaughter Hannah is very close to Leia...wanted you to know I am praying for you and your family as you are going through this very difficult time...

Michelle Schmidt, Sylvania, OH

October 8, 2013

Trini We send love and prayers to your precious family. My daughter Avery was in american girl with Leia.

Janelle Nowowiejski

October 8, 2013

I am going to figure something out, just stay tuned.

Debbie Wines