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Trini Wenninger and her family are confronting a challenge they cannot face alone. They need your help. Trini was diagnosed at the Cleveland Clinic with Pulmonary Veno-Occlusive Disease (PVOD), a rare condition that is destroying her lungs. The cause of PVOD is unknown and there is no cure. Eventually Trini will need to undergo a double-lung transplant in order to survive and to watch her daughter grow up.

Updates (4)

November 5, 2018

Trini is in Stage 4 Kidney Failure due to the transplant medications. This summer she had to endure some injections and infusions to help with her low Hemoglobin. Right now there’s not a whole lot we can do other than celebrate every blood test where her creatinine does not increase any more than it has.

November 28, 2016

November 2016: Our family continues to thank everyone for their help and support. Trini takes several life-saving medications and still deals with migraines. This year she had several procedures, including Gamma Knife radiation. Thankfully her lungs still show no sign of rejection. The trips to Cleveland and regular testing continue to cost way beyond what insurance helps with.


December 5, 2018

Sending lots of love, wish I could do more! <3

Holly Allen

November 29, 2016

Always thinking of you Trini! Sending much love your way!

Holly Allen

September 27, 2013 granddaughter Hannah is very close to Leia...wanted you to know I am praying for you and your family as you are going through this very difficult time...

Michelle Schmidt, Sylvania, OH

August 13, 2013

Trini We send love and prayers to your precious family. My daughter Avery was in american girl with Leia.

Janelle Nowowiejski

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