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Breathing is something most of us take for granted. I know I did. But when your lungs do not provide the air you need, you need to slow down and work at the pace your lungs dictate. I’ve been slowly losing lung function since I was diagnosed four years ago with Alpha-1 Antitrypsin Deficiency. I have followed the advice of my doctors to help make my situation better and it has helped.
I have been told that while I do not need an immediate lung transplant, it will eventually be unavoidable. The medical team at the Cleveland Clinic will keep a close eye on my condition, and when the time is right, we will be ready to move on this.
This brings me to the purpose of my letter. Organ transplantation is life-saving, but very expensive. Even with insurance I will have many uninsured, transplant-related expenses such as: co-pays and deductibles, doctor visits and the costly immunosuppressant medications that I will need to take for the rest of my life. As a result, Cleveland Clinic’s transplant department has recommended fundraising.
To help ease this financial burden, a fundraising campaign in my honor has been established with HelpHOPELive (formerly NTAF), a nonprofit organization that has been assisting the transplant community for nearly 30 years. All donations are tax-deductible, are held by HelpHOPELive in the Great Lakes Lung Transplant Fund, and are administered by HelpHOPELive for transplant-related expenses only. Thank you for considering making a contribution.Your financial gifts will be greatly appreciated and will help me make it through this difficult time.
With sincere gratitude,
Jeremy White
(937)325-6651
[email protected]
I just found out today that Cleveland Clinic has approved me for a double lung transplant at Monday’s committee meeting.
Now waiting for my insurance to give approval and a couple other formalities before getting listed.
I’m very excited about this. Can’t wait to be able to breathe easy.
11-18-15
The thought of being opened up and having a transplant is a little intimidating. I’ve let my health go a little while taking care of my wife during her battle with breast cancer (happy to say she won that battle) and I’ve been afraid I might be getting closer to being put on the list, although that is the ultimate goal.
I’m proud to report that I’ve gotten back on track and found the motivation to get back to my exercises and I’m feeling better everyday.
I’d also like to add, though I fear the invasive surgery that I inevitably have to have, I’m very confident in the experience and professionalism of my surgeons and transplant team at the Cleveland Clinic Foundation. They are definitely some of the best healthcare specialists in the business.
Hi Jerry, I'll see you Saturday. I hope it's a success and everyone has a great time in your honor. In your honor that you will be with us for many, many, many years to come. :) Rock on man! Love, Tina C.
Tina Conn Jamestown, OH
You got it, dude!
Chrissy
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Jeremy White
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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