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Dear Family and Friends,

Breathing is something most of us take for granted. I know I did. But when your lungs do not provide the air you need, you need to slow down and work at the pace your lungs dictate. I’ve been slowly losing lung function since I was diagnosed four years ago with Alpha-1 Antitrypsin Deficiency. I have followed the advice of my doctors to help make my situation better and it has helped.

Updates (2)

November 19, 2015

I just found out today that Cleveland Clinic has approved me for a double lung transplant at Monday’s committee meeting.
Now waiting for my insurance to give approval and a couple other formalities before getting listed.
I’m very excited about this. Can’t wait to be able to breathe easy.

February 23, 2015

The thought of being opened up and having a transplant is a little intimidating. I’ve let my health go a little while taking care of my wife during her battle with breast cancer (happy to say she won that battle) and I’ve been afraid I might be getting closer to being put on the list, although that is the ultimate goal.
I’m proud to report that I’ve gotten back on track and found the motivation to get back to my exercises and I’m feeling better everyday.
I’d also like to add, though I fear the invasive surgery that I inevitably have to have, I’m very confident in the experience and professionalism of my surgeons and transplant team at the Cleveland Clinic Foundation. They are definitely some of the best healthcare specialists in the business.


September 27, 2013

Hi Jerry, I'll see you Saturday. I hope it's a success and everyone has a great time in your honor. In your honor that you will be with us for many, many, many years to come. :) Rock on man! Love, Tina C.

Tina Conn Jamestown, OH

October 2, 2012

You got it, dude!