Kelly Whitten’s Story
Our daughter, Kelly, was born five years ago with an Atrioventrical (AV) Canal Defect in her heart. At 4 months of age, the hole in her heart was fixed. She will be facing another heart surgery later in life as her body and heart grow.
What we didn’t know is that Kelly was born with Autosomal Recessive Polycystic Kidney Disease (ARPKD). This disease can also affect the liver, and causes Congenital Hepatic Fibrosis (CHF). This means Kelly will need a double transplant; she will need both a kidney and a liver.
Since receiving the diagnosis three years ago, Kelly has developed severe ascites. This causes her abdomen to be extremely enlarged and causes discomfort and difficulty moving around. She is prone to infections, her immune system is very low and she becomes sick very easily. Kelly has spent most of this year in the hospital at All Children’s Hospital in St. Petersburg, Fl. Kelly is being evaluated to see when she will undergo a transplant.
Though she gets worn out very easily, through it all, Kelly has maintained her love and silliness. She continues to be brave and strong. Everyone is amazed by her cheerful spirit.
At times like these, the support of family, friends and the community is crucial to help ensure a successful outcome. Even with private health insurance, Kelly now faces significant transplant-related expenses. The out-of-pocket expenses include co-pays and deductibles, doctor visits, travel and relocation at the time of transplant, and the costly immunosuppressant medications she will need to take for the rest of her life.
In order to help defray these expenses, a fundraising campaign in Kelly’s honor has been established with HelpHOPELive (formerly NTAF), a nonprofit organization that has been assisting the transplant community for nearly 30 years. All donations are tax deductible, are held by HelpHOPELive in the Southeast Kidney/Liver Transplant Fund, and are administered by HelpHOPELive for transplant-related expenses only. If you wish to make a contribution to Kelly’s campaign:Your support is critical to the success of Kelly’s struggle. Your generosity is greatly appreciated. Please know that your contribution counts.
Thank you so much,
Stuart Whitten (Kelly’s Dad)
727-577-5158
[email protected]
Updates (28)
March 17, 2014
Thank you to all who supported our wonderful fundraiser last week: http://www.villages-news.com/tag/bennie-harter/
January 16, 2013
Win a Private Concert with the Deedle Deedle Dees
Raffle Opens on January 15th & Closes on April 15th
Download the event flyer for more details. View concert restrictions.
January 2, 2013
January 1, 2013 - Update on Kelly
We wanted to give a detailed update on Kelly's road to recovery. Unfortunately the last three months have been the hardest. Kelly was doing amazing after her transplant until Oct. 3rd. Kelly got a severe blood infection and went septic. The first ten days at All Childrens Hospital in St. Petersburg were touch and go. Connie and I (Stuart) both slept in her hospital room and didn't leave her side. We spent the next 38 days in the hospital, most in the PICU. Kelly had to go onto kidney dialysis and liver dialysis. The liver dialysis (MARS) is only available in two pediatric hospitals in the country. This definately saved her life. Looking back on it, after we thought she would be ok, we were worried about Kelly losing several toes, brain damage and a host of other worries. The amount of blood transfusions rivaled her kidney and liver transplant.
The worst was still to come. After 3-4 weeks intubated and sedated, Kelly woke up. After two days we found out that Kelly had lost her eye sight. The infection had spread to her eyes and she was not able to fight off the infection.
We just finished another two weeks in the hospital for another infection. This was not nearly as bad, but she is easily susceptible to infections.
We were able to get out of the hospital for Christmas and had a beautiful day.
On Dec. 26th we were back at the hospital for an eye surgery on Kelly's left eye. This was what we called her good eye. We hope that Kelly will be able to see again, but that keeps seeming unrealistic. Her surgery was postponed because the anesthesiologist was not comfortable putting Kelly under for the three hour surgery.
Kelly is doing the best she can, but her loss of vision has been very difficult.
We will do the surgery on January 2.
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August 28, 2012
August 28, 2012
Kelly is making tremendous progress. She continues with therapy four days a week, labs three days a week and doctor appointments once a week. Her medicines continue to be adjusted due to her prograf (immunosuppressant drug) level. This is to make sure her immune is suppressed enough not to reject her new organs. She is also being monitored for cytomegalovirus (CMV). Although Kelly had not been exposed to CMV her donor tested positive. Her kidney will continued to be monitored to make sure her Blood Urea Nitrogen (BUN) levels are good and that she is hydrated. We are optimistic that in time some of the drugs she is on will be eliminated.
Although Kelly never indicates or complains of being in pain she will not let your hand get near her stomach. Her sleeping is getting somewhat better and I feel her sleeping is connected to the sensitivity or pain in her stomach.
Kelly is scheduled for surgery on August 30th to remove the stint in her kidney, with an ultrasound the following week to insure the stint removal was successful before she can return home in St. Petersburg.
Once Kelly returns to St. Petersburg, she will continue to be monitored by the transplant team returning to Atlanta once a month. She will have weekly labs drawn at All Children’s Hospital that will be monitored with the nurse practitioner in Atlanta.
Kelly’s journey is just beginning.
August 6, 2012
August 3, 2012
Two weeks to the day of a double transplant, Kelly is released from CHOA, Atlanta. She is still under the care of the transplant team and the family will remain in Atlanta at the Ronald McDonald House for Kelly's lab work three times a week and for therapy (OT, PT and speech).
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August 2, 2012
July 30, 2012
Kelly’s had a very busy day. First, the speech therapist came in to work with Kelly on eating and drinking. Kelly completely ignored the therapist so we obviously didn't get anywhere.
After therapy Kelly got her hair washed and a sponge bath. She was getting all pretty to go down to the voice room (radio station located at CHOA sponsored by Ryan Seacrest) to watch The Wiggles perform. The bath totally wiped her out and she fell asleep. She woke up in time to go down and have her picture taken with The Wiggles. This was a great motivation to get her out of bed for the first time in twenty-one days. She sat in her wheel chair and didn't complain once about sitting up straight. Thank you Wiggles for motivating my daughter. It was a great reward for her.
Kelly loves The Wiggles and it was the original cast members. They are on their Farewell Tour. (Murray is suppose to be starting a new group ;~)) I'm very happy she was able to see them. She had always been too sick before to go to any of their shows.
By the time we got back to Kelly’s room she had visitors. Her Aunt Kimberly, Uncle Kjell, and cousins Emilie, Allison and Jennifer were there. Kelly was very glad to see them but was quite worn out from all the excitement of the day.
It was sad to see them leave since it meant that Kai would be leaving also. Kai was the best medicine for Kelly. He encouraged and helped her with her therapy. I miss him already. The week went by too fast.
So, like all days, even good days must come to an end....Kelly's potassium spikes. Here we go again. Stu and I think...really?? This isn't suppose to happen. She has a brand new kidney!! But, like Dr. Ramero told us before...."Don't take your seatbelt off yet... The ride isn't over..."
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August 2, 2012
July 29, 2012
We have been in the hospital for over a month now. I can't believe the roller coaster we have been on. I'm waiting for it to stop so we can get off but as Dr. Ramero said, "Don't take off your seatbelts yet."
In case you haven't been updated, Kelly received her liver and kidney from a deceased donor. How generous and kind of the family who donated their child‘s organs, I will be forever grateful to this family. Unfortunately, I will never be able to express my gratitude to them. I can only hope that they truly know how many lives they have saved.
The following is a summary of what Kelly has gone through since arriving at CHOA in Atlanta on July 1, 2012.
Kelly was in PICU for twenty days, thirteen days prior to her transplant surgery and seven after her surgery. Prior to surgery, she was on the CVVH machine for ten days and intubated for fourteen days, eleven days prior to surgery and three days after surgery . Kelly had a right chest vascath, a left chest vascath, an arterial line in each wrist, an IV in one arm, an IV in her foot, and four JB drains. She had a chest X ray daily (sometimes up to 2x day), EKGs, echocardiograms, ultrasounds, and an EEG. She’s had forty-seven (47) blood transfusions to date, her second PICC line (the first one came out when the nurses did a dressing change. :( She has scars on her face from tape and was burned on her arm from a high flow oxygen tube.
Kelly also is given methadone and valium to help wean her off the sedation/pain medicine that she had been given. I never imagined watching my (five year old) child go through withdrawal. She didn't sleep for 48-60 hours.
Kelly is now on the transplant step down floor. The surgeons are very happy with their work and say she is doing great. Her internal organs are working well, but now, we have to get down to business and get Kelly back to where she was before she became so sick. This means lots and I mean lots of work. Kelly has low muscle tone and weighs about 14 kg which is around 32 lbs. She is very weak and PT, OT, and speech love to come at the same time or right after one another.
Kelly is not eating yet. Her lipids and TBN were turned off today so now she is receiving all of her nutrients through her NG tube (she’s on her seventh NG tube).
Kelly's spirits come and go. Her brother Kai has been here for a week and he has been the best medicine for her. He helps her participate in her therapies and makes her laugh. It is a great sight to see. I hate to see him go, because I know he can coax her into doing more than I can, but he needs to go have some more Kai time with family.
Over all I know Kelly is going to do well. It is going to be a long process but I know we'll overcome. Ask me if I would do it all over again and I would say, "If it would save my child's life, absolutely!"
Please continue the positive thoughts, wishes, and prayers. The support of our friends, family, and family's friends have been so unbelievable! Having so many people supporting us during this time has helped us to solely focus on our Kelly’s needs.
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July 25, 2012
July 24, 2014
Good news and bad news!
Kelly is no longer intubated. Even though she is on a low volume of oxygen at least she is breathing good on her own and does not need to be intubated any longer.
Kelly is going through withdrawal from all the pain and sedation medicines she has been on for three weeks now. She is not handling this well; not getting any sleep or rest. This is very hard to watch.
July 23, 2012
July 20, 2012
Our morning began very early. Kelly was taken down to surgery at approximately 9AM. They performed Kelly’s liver transplant first and it was completed around 1:10PM then they started on Kelly’s kidney transplant. Surgery was complete by 7PM. All our prayers were answered, Kelly came through her double transplant fine.
We thank those that donate to save other's lives. The family that gave this most precious gift will forever be remembered by our family.
July 17, 2012
July 16, 2012
They said it would be two to five days after being upgraded to 1B on the donor list that Kelly would have her transplant surgery. It is now going on the eight day. There have been no changes in Kelly’s condition. All we can do is wait and pray that a donor will be available soon.
Thank you all for your continued support.
July 15, 2012
July 14, 2012
Thank you everyone for all the messages, cards, donations and prayers! They mean the world to our family.
The past few days have been very emotional. It has been six days since Kelly was upgraded to 1B on the donor list. The CVVH machine is doing all the work for Kelly’s kidneys but the only alternative for the liver is a transplant. At this time there is no donor.
Kelly is in critical condition. Still intubated and continues to receive blood transfusions and plasma to help maintain her blood pressure. They did an endoscopy on Thursday to determine where Kelly was bleeding from but could not find a source. Her platelet count continues to be low and she is getting fluid in the lungs.
Connie made the decision and started the process of donating to Kelly. This means two major surgeries for both Kelly and Connie; first a piece of her liver and about a month later one of her kidneys. It is possible but not feasible or advisable to take two organs from a living donor at once, especially when one of the organs involves a kidney. If she is accepted and if a donor is not available by Friday then they will proceed with this surgery. We should know Monday or Tuesday at the lastest if Connie is accepted.
Please continue your prayers for Kelly and pray that a donor will be available for both a liver and kidney.
Please remember to sign Kelly’s guestbook.
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July 11, 2012
July 11, 2012
So much has happened since my last update.
Kelly received her third blood transfusion last night and went through a second surgery yesterday for another permanent catheter, the first catheter was placed too high in the vein and kept clotting off. She is also on a Continuous Veno-venous Hemofiltration (CVVH) machine, a gentler form of dialysis, which she will remain on 24/7 until her creatinine numbers are better or until she receives her transplant. She is still intubated and heavily sedated with nine pumps along with two lines running in/out for the CVVH machine.
All I want to do is hold her and let her know everything is going to be alright.
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July 9, 2012
July 9, 2012
Kelly was up all night. It turns out her ammonia level was @ 150. They gave her medicine to help bring it down. The PICU team has decided to move ahead with Dr. Ramero's plan since Kelly's labs are not looking well at all. She is getting a blood transfusion and then she will go into the operating room to get a permanent catheter so they can start Kelly on dialysis. Kelly is upgraded to a 1b on the transplant list, because Kelly now needs dialysis. We are hoping to be transplanted in 2 to 5 days.
Please keep her in your prayers.
July 8, 2012
July 8, 2012
Kelly is being moved to ICU. Her potassium and ammonia are stable but her creatinine has gone up every day since we have been here. This is an indication of her kidney function. If her creatinine does not go down they may have to do a form of dialysis. According to the doctor this will be a bumpy ride. Since this will put Kelly higher on the transplant list, she could have surgery as soon as the next ten days to two weeks.
July 6, 2012
July 4, 2012
Today is the Forth of July and the hospital is very quiet compared to All Children’s Hospital in St. Petersburg. It is very sad and depressing here as there are no planned activities for the children.
Kelly is very sad being away from home and the faces she had gotten used to. Now, more than ever, she could use a sticker every time she has to take her medicines; nine different meds at a time, some up to three times a day.
In the last couple of days, Kelly has had a PICC line and NG tube placed and I realize what a difference giving a toy or bubbles to a child for being brave makes. When a child is sick, scared and doesn’t know anyone, a toy can add a smile on their face and help with distraction. This hospital does not have the stickers, toys or bubbles to give so it makes me sad to think it isn't just my beautiful Kelly going through all this but all the children in this unit as well. I'm not sure the nurses even know how much easier it would make their jobs if they had something as simple as a sticker to help “bribe” a child.
All Children’s Hospital in St. Petersburg has taught me so much but the most important thing I've learned is that you should do all you can to make a child comfortable and try to put a smile on their face.
With this thought in mind, I will continue to decorate her room, to make it her own and hope to put a smile on her face when she’s awake.
If you would like to send stickers, art supplies/craft supplies, stuffed animals, toys, bubbles, throws, pillow cases, or stuffed small pillows (all in fun kids themes) to share with other children in this unit, please send to:
CHOA Egleston
Attn: Kelly Whitten
PICU, Room 4116
1405 Clifton Road NE
Atlanta, GA 30322
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June 30, 2012
Kelly's Journey
Friday, June 29, 2012
Well I guess it's go time. Kelly will have an air ambulance to the ATL at 3 am from All Childrens in St. Pete. Connie will fly up with her and I will drive up on Monday. We will be in the ATL for at least a month or two for Kelly's kidney and liver transplant
July 25, 2012
July 23, 2012
We thought Kelly would be extubated today but it looks like it may be tomorrow. She is awake a lot today. She will shake her head yes or no if you ask her a question. She is sedated but not as much as before. To extubate her they need to have her less sedated and will wean her slowly to make sure she can breathe on her own.
So sweet this evening when Stu and Kai came into the room. We told her Kai was there to see her and she cried.
July 21, 2012
June 19, 2012
Good news today! The transplant team indicated a possible donor. Before we can get excited and share the news, a member of the transplant team has to inspect the organs to make sure they are suitable for donation. We may not find out until just prior to Kelly going to surgery.
Kelly’s surgery could take place at midnight, then the time was moved to 2AM, now they say between 6 - 7AM on Friday. We understand this is typical since the retrieval process requires a lot of organization. All donated organs must be in place before the retrieval process begins. When organs are removed from a donor, there is a limited period of time in which they can be preserved before being transplanted.
Our hopes are for Kelly and our thoughts are for the family of the donor. Its going to be a long night.
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July 8, 2012
July 6, 2012
Kelly has been moved to number 30.
July 6, 2012
July 5, 2012 UPDATE
Good News!! Kelly has officially been listed for a transplant.
July 6, 2012
July 5, 2012
Kelly is beginning to look better than when we first arrived. The nutrients she’s receiving through her IV is making a difference. She will continue with the IV until her potassium is at a level where they can begin with the NG tube. She seems to tire easily and at times we see small moments of her being herself. At this time we are taking baby steps which seems to be working.
We met with “the team” this morning. Although we still have not met with the transplant financial counselor we were advised that they were going to proceed with listing Kelly on the donor list. Dr. Greenbaum, the Nephrologists, confirmed that Kelly will also be getting a kidney transplant as well, which Stu and I already expected.
Kelly has pretty much gone through all the testing needed prior to finding a donor. Now we are working on getting Kelly healthy and to lift her spirits.
We thank you for your donations and your thoughts and prayers. Please continue to post Kelly’s story on your face book page and tell your friends. I will continue to update Kelly’s progress on her website: www.helphopelive.org (patient: Kelly Whitten).
If you would like to make a tax deductible donation, please make it through the HelpHOPELive website. If you would like to organize or host a fundraiser for Kelly or need ideas for fundraising, please let me know.
July 6, 2012
July 2, 2012
The transplant team (“The Team”) came in and introduced themselves. I had no idea what all a transplant entailed and all the doctors involved. We have a transplant doctor, Dr. Romero; transplant surgeon, Dr. Knechtle; Nephrologists, Dr. Greenbaum; transplant coordinator, dietitian/nutritionist, transplant pharmacist, psychologist, two social workers (one for liver and one for kidney), and a transplant financial counselor.
The transplant surgeon said their first choice for Kelly is transplanting one kidney and one whole liver from a deceased donor within Kelly’s age range; this is the ideal choice. Their second choice is one kidney and a half liver from a deceased donor and last option is to receive one kidney and a half liver from a live donor. Both of Kelly’s kidneys and her liver will be removed. Normally they will leave the kidneys but since Kelly’s kidneys have a tendency to get infected often hers will be removed.
Even though Kelly has kidney disease, it is the liver that is deteriorating and needs replaced. At this time they are not positive if Kelly will or will not receive a kidney. Dr. Romero, the liver transplant doctor, has the final say.
I have been working on decorating Kelly's room to help cheer her up. The transition to a new hospital has made her very scared and sad. She won't look at anybody that comes in and isn't talking. I didn't realize the affect this would have on her. Kelly is a child that doesn't normally cry and if she does, she is very easy to console. She has broken down twice already.
Kelly will have a PICC line inserted, this is an IV that goes into one of her main veins that leads to an artery. It will keep her from being poked every time they need to draw labs. They can use it to place fluids through IV as well.
July 6, 2012
July 1, 2012
Arrived safely to All Children’s Hospital of Atlanta around 7:00 a.m. Lots of people in and out of the room all day. Kelly and I both are very tired. We have been up since 2:00 a.m.
Kelly's ammonia level is up. Very scary being in a new hospital dealing with this without Stu.
August 17, 2012
August 16, 2012
Kelly‘s progress is unbelievable! She has therapy four days a week, labs three days a week and doctor appointment once a week (liver one week, kidney the next).
Kelly begins each day either at 6AM or 6:30AM; depends on whether or not she has lab work done. We pretty much have a routine going; wake up, breakfast, medications (nine), dress, brush teeth, out the door. By the time Kelly is through with therapy for the day she is pretty much worn out and usually falls asleep before we get back to the Ronald McDonald house. She is eating well but not sleeping well at night. She is walking, still a little unsteady on her feet but she is progressing.
Continuing with fun therapy in the evenings with coloring, painting, signing and puzzles. One thing Kelly loves is watching Baby Signing Time and Caillou. These are her favorites.
Evening routine consist of bath time, brushing teeth, combing hair and oh, can’t forget the medicines. Each night she takes her medicines for her daddy, brother Kai, GG, Aunt Cece, Aunt Pat, Aunt Kimberly, and so on……..
What a joy it is to see how much progress Kelly has accomplished in such a short time.
July 23, 2012
July 21, 2012
Kelly is doing great after her double organ transplant. Her new liver started working right away as did her new kidney, she no longer requires being on the CVVH machine. She is somewhat pale so they may need to give her blood products. Since she is still intubated she is kept sedated. They are hoping to extubate her by Monday weaning her a little each day.
July 6, 2012
July 3, 2012
Stu arrived yesterday evening and Kelly, along with mommy was very happy to see him. Although Kelly is a mommy’s girl you would not have thought so once daddy arrived. She is perkier this morning having both mommy and daddy with her.
Today Stu met with three members of the transplant team and we both met with the transplant pharmacist. The transplant team reinforced what I was told the previous day and answered the questions that Stu had. The transplant pharmacist went over all of Kelly’s medications that she is on now and will educate us on medications that she will be on after her transplant surgery. She will continue to follow Kelly after the transplants and then annually.
We also had a very emotional meeting with the psychologist.
Dr. Romero confirmed that Kelly will be listed within 24 to 48 hours for a donor but prior to getting the ball rolling, there will be a meeting with a transplant financial counselor.
Kelly’s potassium level has been extremely low and she has not been eating. She has an NG tube but Dr. Romero is working on getting her potassium level up before he can start using the NG tube. In the meantime, she is getting all her nutrients through an IV.
To summarize, once Kelly is listed the waiting begins. This could take up to three months but we are hoping for sooner. Ideally we would love to go home and wait but unfortunately Kelly is not healthy enough to leave. In the meantime, we will work on correcting Kelly’s electrolytes and getting her stronger.
So until then, visitors are welcome!
July 23, 2012
July 22, 2012
Kelly is still kept sedated due to being intubated but she is more alert. She received blood yesterday along with albumin and platelets today.
Kai got to see his sister for the first time in three weeks. Connie prepared him before he went in so he would not be alarmed with all the tubes. He did great!
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August 2, 2012
August 1, 2012
Good news today. Kelly had the NG tube removed.
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Guestbook
March 29, 2013
Kelly, you are my sunshine!
Mormor
November 28, 2012
So glad ur feeling better..prayers and blessings from the Allgoods..freinds of Tammy and Dan Stephens?;)
jen..cleveland, ohio
October 19, 2012
Just up late and thinking about you all. My thoughts, prayers, and love are with sweetie pie Kelly every day. Love & hugs to you all! Love, Tammie
Tammie Schoenfeld/Orlando, Fl
October 9, 2012
Dear Kelly, i still pray night and day for you and that you feel better soon. With love, Sophia Hernandez
Sophia Hernandez
September 13, 2012
Hi Kelly,
We are so glad to hear all is well! Here at All Children's, we are so proud of you and rooting for your speedy, successful recovery! We Love U!
CiCi, Tina, and Rachael- Lab Support
September 11, 2012
Kelly, this is Brian's best friend, Clint. I just wanted to send a line to let you know that me and my family are thinking of you and praying for you, and sending you much Love from a distance.
Clint Canal/Framingham, MA
August 18, 2012
Kelly I am so proud of you
Aunt EE
August 17, 2012
Just letting you know that I am so proud of you Kelly!! Keep up the great work!! Sending you many hugs :)
Ms. Dawn St Pete Fl
August 15, 2012
Kelly, We are still sending well wishes your way! In our thoughts & prayers!!!Much love,
Brad , Kimberly , Shea & Liam Helton~ Coral Springs, Fl
August 15, 2012
Kelly, We are still sending well wishes your way! In our thoughts & prayers!!!Much love,
Brad , Kimberly , Shea & Liam Helton~ Coral Springs, Fl
August 7, 2012
Kelly, So nice to see that you are doing so good after your surgery. We have been watching all the posts and pictures being sent out on the web and just love watching your progress. Keep getting stronger!!! Mom, Dad and Kai keep Kelly smiling cause she is a ray of Sunshine!!!!!!!!!!!! You all are in our thoughts and prayers everyday.
Darlene and Gerry Brown , Port Charlotte, Fl.
August 4, 2012
What a wonderful miracle child you are! You are so brave and we are so impressed with the wonderful support you are receiving from your family and friends and the wonderful donor and doctors. You are very special and have earned the prayers and good wishes from everyone by showing us your wonderful will to live. We will continue to pray and keep you close in our thoughts.
Diana and Howard Hohman /The Villages
August 3, 2012
Kelly, Wow, I just heard you are headed to stay at the Ronald McDonald house. That is awesome news. I'm guessing there will be lots of action there. So glad you are improving. Keep working hard. Mom & Dad, you are doing wonderful. Keep up the great work!
Pam Brown, The Villages
August 1, 2012
Kelly, you are in my thoughts and my prayers.
Uncle Charles, Tampa Fl
July 29, 2012
Glad to see each day a little better. You all our
in our thoughts and prayers.
Dianne Jones, The Villages
July 27, 2012
I'm so happy your feeling better Kelly! I can't wait to see you at school! Love you
Sophie Joiner
July 27, 2012
I am so happy to hear of the great strides you are making, Kelly! It will get easier everyday and before you know it you will be running around with your big brother.
Bridget & JP
July 27, 2012
You're a strong little girl, I am so proud of you,
Aunt CeCe
July 27, 2012
Kelly, We are so thrilled that you are doing so well and can sit up now. Can't wait until you are back home and on the way to getting back to normal. We love you and thinking of you all the time. Love, Aunt Joan and Uncle Paul
Paul & Joan Ft. Myers, FL
July 26, 2012
Saw a great picture of you today sitting in a wheelchair!!! Your Aunt Cece forwarded it to me. I am so happy for you, and know you are going to continue to get stronger everyday. :)
Your new friend, Marsha, John and Macy - New Albany, Ohio
July 25, 2012
God Bless You all for your courage and strength.
Kelly is a miracle!
Donna Sinicrope, Art Teacher, Shore Acres Elementary
July 25, 2012
I love you
Vece
July 24, 2012
HI Kelly,
This is Ajah I just wanted to say I hope you get well soon and come home!!!I miss you and love you and hope to see you soon!! Love Ajah!!!;)
Ajah Office Saint Petersburg,Fl.
July 23, 2012
Sending lots of love this morning, Kelly!
Sean, Jen, Finn, and Milo.
Jennifer Garrity
July 23, 2012
Kelly you are such a fighter, God is always with you. Connie please know that not one day goes by without us praying for your family. We are keeping you and your family in our thoughts. Be strong! God bless you
Piedad alvarez Tampa florida
July 22, 2012
Dear Stewart n Connie, You don,t know me, but my name is Doreen Gonnelly, I am a good friend of linda dehon. Iam so sorry the both of you are going through this, MY PRAYERS ARE WITH YOU AND KELLY> SHE IS SO BEAUTIFUL,GOD BLEES YOU ALL
Doreen Gonnelly
July 22, 2012
Praise the Lord, the transplant operation and wait is over. Now all our prayers are for recovery and bringing back Kelly stronger than ever. Can't wait for those smiles, hugs and kisses!! Mom, Dad, and Mormor, take good care of yourselves while all those doctors and nurses are handy. You'll be on your own with Kelly before you know it. Prayers and lots of love to keep you strong. We love you!!
Pam Brown, The Villages
July 22, 2012
Praying for you, any updates?
Cece
July 21, 2012
So happy to hear the transplant went well, we will continue to pray for a quick seamless recovery, want to have you back home with us
Aunt cc
July 21, 2012
Hi Kelly, Not a day goes by that you are not in the thoughts and prayers of many, many people. You are a very loved little girl and God will see you through this.
Stay strong.
Tony and Linda Arce
July 21, 2012
Kelly, You are such a strong little girl. Keep fighting. You are in our prayers daily. God Bless You.
Renee and Cooper Branum (Clermont, Fl)
July 20, 2012
Kelly, we are all praying for you, your family and the family of the donor. We love you
Aunt cc, the villages, fl
July 20, 2012
Mrs.Connie our family is praying for your family and I'm also making donations at my Barbershop for little Ms. Kelly. All donations made for Kelly will be sent to you as soon as possible.. We are hoping for a fast healing.. Hope to see you all soon..
Jose Medina, Domininck Gonzalez, Rebecca Medina
July 19, 2012
Ms. Connie our family is praying for Kelly to recuperate and get better soon!
Josyl Hernandez, Gian Medina & Fam.
July 19, 2012
Our prayers are with Kelly and all her family.
Jeanne & George Osborne, Ocala,Fl.
July 19, 2012
Kelly,
My prayers and love are with you daily.
Diane Jennings/Easley,SC
July 19, 2012
Good morning sweetheart, I love you. Today is GG's birthday, it's give her a Kelly hug for you
Aunt cc
July 19, 2012
Hi sweet Kelly. This is your cousin Shelia from Tennessee. You've been in our thoughts and prayers, each and everyday. We are sending you lots of hugs your way. Hang in there, the Drs. are going to fix you up, and you will be up and about soon.
Hi Connie, Stu, Bennie, Kimberly and families. All of you are in our thoughts and prayers as well. My heart aches for all of you. I want to wrap my arms around you each and everyone one of you, and let you know how much you are loved. Hang in there and take care of one another. Praying things will turn for the better real soon. Just know we love and you and are sending prayers your way. God Bless each of you. Love, Shelia and Stu
Shelia and Stu Reiter, TN
July 19, 2012
Hello little Sunshine,you and your family are in our prayers,God Bless.
Ms.Joan
July 19, 2012
Continuing to pray for your sweet family!!!
. Love u Alison, Erik, Courtney, Zach and Cody Chapa
July 18, 2012
How are you feeling today?xoxo
Aunt Cece
July 18, 2012
We are thinking about and praying for Kelly.
Bob & Sue Dunham - The Villages
July 18, 2012
Thinking about you all, I hope you get good news very soon. Praying.
Bridget & JP Gavino
July 18, 2012
You are in all of our thoughts and prayers. We pray for better days ahead and that a transplant will arrive in time. We look forward to you being able to visit your Grandparents in The Villages so we can meet you.
Diana and Howard Hohman /The Villages
July 18, 2012
Just got back from out of town and read Kim's e- mail re: Kelly. Kelly and the entire family are in my thoughts and prayers. Give her a hug for me and say hi.
Theresa Reinhart-Ho / St. Petersburg
July 18, 2012
We are praying for you in Tennessee. I hope the transplant happens very soon and you will be better in no time.
Amanda Rose & Jean Strange Clarksville, TN
July 18, 2012
Live you
Aunt CeCe
July 17, 2012
Our thoughts and our prayers are with all of you during this difficult time. We hope Kelly begins feeling better soon and that beautiful smile of her's returns.
Peter and Jill Browne, The Villages, FL
July 17, 2012
Kelly we continue to pray for you daily! I was so glad I got to finally see you and ready for the day we can see you up and running around, SOON! You are a beautiful little girl and have the best family and friends who love you! Claiming the best of results for you and your speedy recovery and healing!
Cousins~Doug, Susan, Shianna and Nathan Corley
July 17, 2012
We miss you so much Kelly Sage! We can't wait until we can all come visit with you! You are in our hearts and prayers- always thinking of you, Mommy and Daddy
ps- Kai misses you also, but we are keeping him busy with the girls!
Aunt Kimberly, Uncle Kjell, Emilie, Allison & Jennifer - Winter Garden,FL
July 17, 2012
Sending you prayers and wishes!
The Word Family and GaGa
The Wird Family and GaGa
July 17, 2012
Kelly and family, We're praying for a successful transplant and a speedy recovery!!
Love Riley, Lilliann, Amber & Robin Bridges, Pre-K Class
July 17, 2012
Kelly - Belly, Chris and I are praying for you. You are a very strong and brave girl. Happy thoughts to you, Mommy, Daddy and Kai.
Love, the Furlongs - St. Pete, FL
July 17, 2012
Kelly,
You are in my prayers.
Mrs. Sylvia Amaya, ESOL Teacher @ Shore Acres Elem.
July 17, 2012
Hi Kelly,
What a brave little girl you are for all you have been through. We are always thinking and praying for you, your mommy, daddy & Kai, we love you guys.
Cousins Tina, Joe, Nat, Linn & Jenn, Cape Coral, Fl
July 17, 2012
Hello Kelly! I hope that you are happy today. I send you hugs and kisses.
Love Hunter, Shore Acres Pre-K Class
July 17, 2012
im sorry that kellys going through all of that. Shes in my prayers. I hope she gets a donor very soon.
amber huling clinton iowa
July 17, 2012
Thinking of you all and praying for you daily. I mailed a card and some pictures to you today. Hope they lift your spirits a little. Hang in there and continue to be strong. You have so many friends and family who are sending love and positivity your way. We love you!
Tammie Schoenfeld/Orlando, Fl
July 17, 2012
WE are all pulling for you Kelly....
Midge Maddison, The Villages, FL
July 17, 2012
Kelly, I am a family friend of your Great Aunt Cece's. I live in Columbus, Ohio and am very happy you are in good hands at your new hospital. I am sorry you have not been feeling well recently, but I hope and pray all of that will change soon! I am sending a present I hope you will enjoy. I look forward to seeing pictures of you playing outside someday :) You have a very loving and supportive family. Hang in there!
Marsha, John, and Macy (our dog) Hinsch, New Albany, OH
July 17, 2012
Granny & I are praying for all of you & my small bible group and all my friends are praying for you.
Love you all
Aunt Linda
Cape Coral, FL
July 16, 2012
My heart and Prayers go out to you all.
Sarah Strange
July 16, 2012
Hi Kelly :)
I cannot wait to meet you! I have heard so many nice things about YOU and your family. You and your Mom, Dad and brother are in our prayers :)
Susan Charrette Palm City, FL
July 16, 2012
My family and I send our prayers to Kelly and her family. Good luck to all of you!
Dr. Shawn Mandel/Shore Acres Elementary
July 16, 2012
My thoughts and prayers are with you and Kelly. I know a loving spirit is watching over you and your family.
In peace and love,
Donna Sinicrope, Art Teacher, Shore Acres Elementary
July 16, 2012
Hi Everyone! Sending prayers to you and little Kelly. Connie, as a living donor myself, I know what you are going through and I will pray that you are a match for Kelly. Good Luck to both of you!
Jody Clement/ Shore Acres Elementary
July 16, 2012
We love you, Kelly! Thinking about you all the time.
oxox
Rachel, Jeff, and Zach Massey
July 16, 2012
Praying for all of you
Jen Driscoll, Destin, FL
July 16, 2012
Love you all
Cece
July 16, 2012
Sending healing energy and love to you, Kelly!
Thea Galenes, Germany
July 16, 2012
Hi Kelly. I miss seeing that beautiful smile of yours. You have so many that are thinking of you and love you so much. Many kisses.
Aunt Pat Ocala
July 16, 2012
Stu, Connie and family know you are all in my prayers. What a difficult time for all of you, know you are not alone.
Chris Sargent, the Villages
July 15, 2012
Hi Kelly, You have so many people praying for you and sending you well wishes. You have blessed so many lives, many that have yet to actually meet you in person. God Bless You!
Linda Bullen,
July 15, 2012
H Kelly, Diva told me I HAVE to post on your wall, because Mor Mor may forget to tell you I miss you I love you and "Diva" wants you to come home and take her for a walk. We love you,
Aunt CeCe, Diva, Angle and Woody
Aunt CeCe, The Vilages, Fl
July 15, 2012
Hi Kelly-Belly!! Ms. Dawn misses you. I will be up to visit you in about 16 days! I can't wait to see you. Stay strong sweet girl xoxo
Dawn Trayer- St Petersburg Fl
July 15, 2012
God Bless and look after you Kelly, and all of your beautiful family.
Sandy Brantly, Maggie Valley, NC
July 15, 2012
Kelly,
You are a very brave little girl. My prayers are with you and your family. I know your will get better.
Irene Lennon - Clermont, FL
July 14, 2012
We love love love you sweet Kelly! We can't wait until we can visit you!!
Love, Heather, Pat, and Cadence
July 13, 2012
We have been thinking and praying for u sweet Kelly!!! Keep fighting to get well
. Love u Alison, Erik, Courtney, Zach and Cody Chapa
July 13, 2012
Kelly, you are in everyones thoughts and prayers. I know you can make it through this your such a strong beautiful little girl.
Joshua Creque, Fort Myers, FL
July 13, 2012
We are all thinking about you and your family. Our prayers are with you. Keep fighting to get better Kelly!
Dana, Craig, Savannah & Vanessah Bobik, Tampa, FL
July 12, 2012
"I can do all things through Christ who strengthens me". Philippians 4:13 We are praying for all of you.
Ms. Evelyn,Emil and Camille. Tampa,Fl
July 11, 2012
Uncle Paul and I are on your team little sweetie. We are praying for you and can't wait to see you better and see that sweet smile of yours. We are asking everyone to pray with us. If anyone can do it God can!
Aunt Joan Whitten, Fort Myers, FL
July 10, 2012
Our prayers are with Kelly....We got a message from Joan this morning...I am ASKING my bible class at First Assembly Ministries, FT Myers to pray for her on Thursday and to continue to pray for her until she receives her transplant....God Bless Kelly and her family.
Gerane Beckler. Ft Myers Fla
July 9, 2012
I'm praying for you. I cut grandma Bennie and Great Aunt Cecilias hair. I'm going to share your story so others can help you. Stay strong. :)
Shelly Cox @ Cal's Barbershop in The Villages
July 9, 2012
Dearest Lil Angel, this note of encouragement from your Great Aunt Frances, Be a brave young lady and lift your head and heart high. Jesus is watching over you in your young life. Be a sweet lady for Mom and Dad. Love to all. Great Aunt Frances
Frances Strange Price-Moultrie Ga.
July 8, 2012
Kelly, We wanted to send you a big hug. We are always happy to see the pictures that your mom, dad, and Grandmother post online. You have such a beautiful smile and pretty face. We are praying for the day you can get out and play with you brother and friends. Love Ya.
Cousin Terry, Diana, and Brittany
July 7, 2012
Kelly, we are been thinking about you every day, we know you are going to get better, we also are praying for your whole family, we care for you. Love the Montessori staff of Tampa Bay
Ms Marie
July 7, 2012
Kelly though i have never been able to get down and meet you i have been able to watch you grow and pray for you through out the years thanks to our family keeping up with each other through email and Facebook. you have grown to be a precious little girl and i pray to God you grow to be a beautiful young woman. We love you very much. Give your Mommy and Daddy a big hug for me and hope to get to see you and meet you in Florida some day soon. Sincerely, your second cousin Dan
Dan Stephens, Fayetteville, NC
June 29, 2012
Kelly we love you and we will do anything we can to help you and your family!
Sam, Mike Garran and Elliot, Gainesville, FL
June 25, 2012
Kelly, you are a gorgeous, happy little girl, I will pray for you to get better, you are god's gift.
Carole A. Castagnaro
June 25, 2012
Grandma and Grandpa love you little girl.
Mary Whitten, San Antonio, FL
