
MobilityWorks
Accessibility for all: Helping people connect with who and what matters most
Searching...
No results found. Please try modifying your search.
Let us tell you a little bit about our daughter and Diarrah’s twin sister, Estanna. She is 18-years-old and has been on Total Parenteral Nutrition (TPN) her entire life, along with additional nutrition via a G-Tube. After several Hickman catheter placements, infections and intestinal surgeries, her doctor’s informed us that her only chance at a healthy life would be to have an intestine transplant. Estanna has just been placed on the active transplant waiting list at the Georgetown University Medical Center.
Our daughter loves to read, listen to music and enjoy time with the family whom she loves very much. She also likes to watch old T.V. programs such as 7th Heaven, Fresh Prince and Saved by the Bell. When her health permits, Estanna is part of the liturgical dancers at our church and on June 21st she graduated from Schenectady High School.
Even with insurance there will be many uninsured, transplant-related expenses such as: co-pays and deductibles, doctor visits, travel and temporary relocation to the transplant center and the costly immunosuppressant medication that she will need to take for the rest of her life.
To help with this financial burden, a fundraising campaign in Estanna’s honor has been established with HelpHOPELive, a nonprofit organization that has been assisting the transplant community for 30 years. All donations are tax-deductible, are held by HelpHOPELive in the New York Intestine Transplant Fund, and are administered by HelpHOPELive for transplant-related expenses only. Your contribution is greatly appreciated.
Make checks payable to:
HelpHOPELive
Note in memo section:
In honor of Estanna Brewer
Please send to:
HelpHOPELive
Two Radnor Corporate Center
100 Matsonford Road, Suite 100
Radnor, PA 19087
For credit card contributions, please call 800.642.8399 or select the DONATE NOW butto.n
Everyone tells us that we have a strong little girl, so knowing that she will have a better quality-of-life after the transplant gives us hope. Please help us support our daughter during her journey in whatever way you can. Thank you.
John, Linda and Diarrah Brewer
Our latest news to share:
We wanted to keep all of our wonderful supporters up-to-date on Estanna's medical situation. Her transplant is on "hold" and she is now being seen by a medical team at Columbia/NY Presbyterian in New York. We will keep you posted on any medical updates, and thank you once again for your support and kindness.
CALL TO IMMEDIATE ACTION:
Estanna continues her wait on the active waiting transplant list for her gift-of-life -- her intestine transplant. As she moves closer to transplant, her family knows that their expenses will mount. PLEASE make an end-of-year tax-deductible donation to help Estanna receive her miracle. Please forward this post to your Facebook or Twitter friends today! << less
Nothing but prayers, love and positive energy coming your way Estanna!! Wishing you well and a safe and healthy journey. From Cousin Wendy's friend Mary
Mary, Ballston Spa
Estanna I known you since you were 8 years old, and I know you are a fighter!
I wish you the best and a speedy recovery, you are always in my prayers.
Franca Sangiovanni
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Estanna Brewer
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
Subscribe to this campaign to receive updates.
Accessibility for all: Helping people connect with who and what matters most
Building leading-edge mobility products
One of the largest mobility dealers in the U.S.
Consult with specially-trained pharmacists, get your medications for pickup or delivery and more
All news, and all that matters to you
Your first step to optimized communications
The event for the disability community
Born to connect, empower and inspire the rare disease community.
A mobility dealer for wheelchair accessible vehicles and adaptive equipment