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My Past, My Present, My Future… My Hope

I am 54 years old and I suffer from Idiopathic Pulmonary Fibrosis (IPF.) Without a lung transplant, I will not survive.

Updates (12)

July 29, 2014

To My Family, Friends, Colleagues, and Well-Wishers:
Hello to all! Its been a while since my last update and probably better that way I can actually report something noteworthy. I hope everyone is having a pleasant summer! Thanks be to God, the Valdes household is doing OK. I just came back from my 9-m0nth check up at Mayo Clinic. By the grace of God it went well!! Of course, the team did have a few choice words of advice for me: I have to watch my weight so maybe I look a little too good, LOL. Second, the dermatologist gave me a pretty stern warning about my high risk for skin cancer. To prove the point, she performed a biopsy on a spot above my upper lip. I should find out the results this week. If necessary, I may need to go back to Mayo for follow up treatment. Transplant patients are at high risk due to the use of immune-suppressant meds. Iam at extreme risk because on top of that I have the HP syndrome (albinism). Sunblock to the max and protective clothing always!!

My Maria had knee-replacement surgery in June. She is doing well with her rehab but she does have to work through the pain. Alannah is VERY close to giving birth to Baby Aaron! Cant wait!!What can you say about Francisco, high speed, low drag! As for myself, I decided to join a dance class! A welcomed break from the treadmill, a lot of fun, and something I had put off for years! A new lease on life has a way of changing ones outlook on life! The new pic I posted was taken at the school’s masquerade ball, So the pic is not my imitation of the Green Hornet! I wanted to post a short video of the dance presentation my instructor and I performed but I was not able to. Take my word for it, not ready for prime time! LOL Also posted a few more pics of Maria and the grandkids, our pride and joy!I was also able to attend the DCMA Annual Office Picnic and had a great time seeing old friends and meeting new ones. Got together with my friends from the FAA and had a wonderful time as well. Again, I hope everyone is having a great summer and thanks for your continued support. Warmest regards always.

May 20, 2014

To My Family, Friends, Colleagues and Well-Wishers:
Hello Everyone! I thank God for this day and for the opportunity to write to you. Health-wise, it has been an uneventful month, which is a good thing. The family is doing well. Maria is finishing her school year, Alannah is REALLY showing and we are all excited about the arrival of the baby in Aug, and Francisco is doing fine at work. Alannah and Adrian visited us a few weeks ago and that was WONDERFUL. We really miss them and Adrian is truly a joy to have around, although it took every bit of my breathing capacity to keep up with him! My second highlight for the month resulted in my updated campaign picture. A couple of weeks ago I participated in my first 5K race/walk event EVER! To be clear, I walked it but it was a great experience. My mentor and role-model, Paul Sheridan (aka Superman), suggested I post this pic. It is one more step on my journey to good health and recovery, and I am again reminded of how blessed I am! I hope all of you are taking care of yourselves and slowing down to enjoy life. Thank you all for your continued support and warmest regards.RV

Guestbook

May 21, 2014

Way to go Robert! Your first 5k. Congratulations! Great picture.

Love, Cynthia

April 23, 2014

Hi Robert, Thank you so much for the visit to Rehab. The patients were thrilled to meet you and fully appreciated the information you provided. Of course the 1pm and 3pm class would benefit from on of your education sessions. Hope you and your family had a blessed Easter! Thank you again,

Jackie and Durlye

March 5, 2014

Dear Robert, This is belated but heart felt thank you for the time we spent with you last month. Would like to have you come to CCF Rehab to speak to the pts. re: your journey whenever you may have time. Give us a call at your convenience.

Jackie and Durlye

February 13, 2014

Robert, You're missing the snow in DC. Glad to see you on the beach.

Dick Popp