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In Memoriam
Robert Valdes

It is with great sadness we report that Robert Valdes passed away on January 26, 2024. Family and friends have been working with Help Hope Live to raise money to help finance uninsured medical expenses associated with transplantation and catastrophic illness.

Updates (13)

January 31, 2024

Update on Robert, Lung Transplant and Cancer

On January 12, 2024, Robert was diagnosed with metastatic squamous cell carcinoma (stage 4 skin cancer). This was after multiple ER visits and hospitalizations. Robert is a lung transplant recipient as documented previously in this campaign. Robert’s transplant was due to the Hermansky-Pudlak Syndrome (HPS) which is a rare genetic disorder characterized by a specific type of albinism and a bleeding disorder. Many individuals with this syndrome develop pulmonary fibrosis (scarring or hardening of the lungs) and their only recourse is a lung transplant to survive. Robert was blessed with a lung transplant in October 2013. He completed his 10th year anniversary as a survivor of a single lung transplant in October 2023.

Robert is no longer with us as of January 26, 2024. He enjoyed a good quality of life for eight years after his transplant. The last two years have introduced new and more challenging health issues (three strokes, cancer surgeries, extended hospitalizations). Robert was always the kind of person YOU or anyone would want to just sit down and talk with about anything… but don't forget the coffee ;)! His selfless approach to life helped him to enjoy a satisfying one in knowing that he could be counted on to help people (which is why he became a contract specialist). Robert was a remarkable man- full of love, compassion, and resilience. Of his many accomplishments, he would claim his greatest was simply being a father and grandfather.

Extended hospitalizations, a multi-discipline team of doctors and supporting staff, and the significant diagnostics which were involved with Robert’s medical care have been expansive and expensive. Even with insurance there are many out of pocket expenses, such as insurance deductibles, insurance co-pays, wheelchair transport, home and vehicle modifications for a wheelchair, rehabilitation support through each medical event, etc. Donations to HelpHopeLive can help ease the financial burden during this difficult time.

We thank you for your continued prayers and kindness!

July 20, 2014

To My Family, Friends, Colleagues, and Well-Wishers:

Hello to all! Its been a while since my last update and probably better that way I can actually report something noteworthy. I hope everyone is having a pleasant summer! Thanks be to God, the Valdes household is doing OK. I just came back from my 9-m0nth check up at Mayo Clinic. By the grace of God it went well!! Of course, the team did have a few choice words of advice for me: I have to watch my weight so maybe I look a little too good, LOL. Second, the dermatologist gave me a pretty stern warning about my high risk for skin cancer. To prove the point, she performed a biopsy on a spot above my upper lip. I should find out the results this week. If necessary, I may need to go back to Mayo for follow up treatment. Transplant patients are at high risk due to the use of immune-suppressant meds. Iam at extreme risk because on top of that I have the HP syndrome (albinism). Sunblock to the max and protective clothing always!!

My Maria had knee-replacement surgery in June. She is doing well with her rehab but she does have to work through the pain. Alannah is VERY close to giving birth to Baby Aaron! Cant wait!!What can you say about Francisco, high speed, low drag! As for myself, I decided to join a dance class! A welcomed break from the treadmill, a lot of fun, and something I had put off for years! A new lease on life has a way of changing ones outlook on life! The new pic I posted was taken at the school's masquerade ball, So the pic is not my imitation of the Green Hornet! I wanted to post a short video of the dance presentation my instructor and I performed but I was not able to. Take my word for it, not ready for prime time! LOL Also posted a few more pics of Maria and the grandkids, our pride and joy!I was also able to attend the DCMA Annual Office Picnic and had a great time seeing old friends and meeting new ones. Got together with my friends from the FAA and had a wonderful time as well. Again, I hope everyone is having a great summer and thanks for your continued support. Warmest regards always.


January 29, 2024

We join with all loving supporters of Robert to extend our heartfelt condolences to his family and friends. We wish you peace and comfort during this time of sorrow.

Help Hope Live Staff

May 20, 2014

Way to go Robert! Your first 5k. Congratulations!
Great picture.

Love, Cynthia

April 21, 2014

Hi Robert,
Thank you so much for the visit to Rehab. The patients were thrilled to meet you and fully appreciated the information you provided. Of course the 1pm and 3pm class would benefit from on of your education sessions. Hope you and your family had a blessed Easter!

Thank you again,

Jackie and Durlye