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Friends, Family, and Community

We are writing to you today with a very special request. As many of you know, two of our three children, Reagan (3) and Casey (1) have a rare genetic condition called Spinal Muscular Atrophy (SMA) which affects their ability to move, eat and even breathe like normal children. SMA is the number one genetic killer of children under 2 years old in the US today, and unfortunately there is currently no cure and very little in the way of treatments or therapies to slow the degenerative process. Without a cure or effective treatment plan, Reagan and Casey will eventually lose the use of their muscles, effectively becoming paralyzed and require mechanical ventilation and feeding to stay alive.

Updates (7)

August 18, 2015

Check out Reagan’s video:
youtu.be

January 4, 2014

Sadly, on December 24th our little man, Casey has gone to get his angel wings. Casey was only here for a short time but he left a lifetime of love behind. If you would like to make a contribution in his memory or to support Reagan click on the Donate Now button or call
800-642-8399.

Guestbook

November 3, 2015

Reagan, it was great to see out on Halloween. We hope you enjoy the candy. We look forward to seeing you soon. Our love and prayers are always with you.

Ann Marie and Randy Brown

January 3, 2015

We love reading Reagan's updates! Sounds like an exciting trip for you two. We are praying for you guys daily!

Ken and Susan Murphy

December 15, 2014

I am wishing you all the very best on your trip to Thailand! Safe travels and I can't wait to see you all when you return. I love you all so much!

Auntie Sarah Astroth

April 28, 2014

I am sending continued prayers to your family. I have two special needs children of my own so I can understand your continued struggle with medical expenses. May your beautiful child get the treatment that is needed. God bless your family.

Jackie Reyes