MobilityWorks
Accessibility for all: Helping people connect with who and what matters most
Searching...
No results found. Please try modifying your search.
Suzanne inherited this disease from her mother who had six children of whom four were diagnosed. Sadly, Suzanne’s brother died from polycystic kidney disease at the age of 20, but Suzanne states it has made her stronger. Suzanne has had two heart surgeries, a kidney transplant from her sister that lasted for 13 years and a multitude of other health care issues relating to her illness. Suzanne is always optimistic despite her condition and has had to deal with the choice to not have children for fear that she will too pass on her trait as her siblings have experienced. Her nephew wanted to give his kidney and during the workup he was also found to have the polycystic kidney disease.
Medical costs for Suzanne have been astronomical and although she has been on the transplant list for four years, she cannot proceed due to financial circumstances and no secondary coverage. To help with this financial burden, a fundraising campaign in Suzanne’s honor has been established with HelpHOPELive, a nonprofit organization that has been assisting the transplant community for 30 years. All donations are tax-deductible, are held by HelpHOPELive in the Southeast Kidney Transplant Fund, and are administered by HelpHOPELive for transplant-related expenses only. Your contribution is greatly appreciated.
To make a tax-deductible donation to this fundraising campaign, click on the Donate Now button.
For more information, please contact HelpHOPELive at 800.642.8399.
Thank you for your support!
Great news! Suzanne received the gift of life, a kidney transplant on November 9!
I want to thank you all for the kind and supportive thoughts and wishes. Knowing there are friends and family who are backing me helps me remain strong and determined to see this through. Having done this once before I feel prepared mentally. My five years on dialysis is draining and boring, hard to do or go anywhere. Excited to start a new life. Thank you all for making that happen for me.
Hi Suzanne, I work with your sister Melissa and she told us your story. I am praying and sending well wishes
Kim Hager
Hey Sly! Just wanted to let you know that you were in our prayers! Love, Joe and Bob
Joseph and Robert Persicketti
Oh Sue, I had no idea. As you know we lost Mom to PKD too and, thus far, only one of my six siblings has been diagnosed, thank God. We all know, painfully well, the misery of dialysis, heart troubles, and all the other associated woes of this bitch of a disease. I am so happy to help you out. My husband, Danny, is out of state working this week but, when he gets home, I will tell him about this opportunity to help a family member and we'll go from there. I am in deep prayer for you and the success of this fund raising effort -- for one of the BEST causes I can think of -- the health and future of a wonderful daughter of my Mama's sweet sister -- (God rest both their souls.) Sue, I applaud you for reaching out to others in your time of need with a humble spirit - and an inspiring will to live! There should be more of this kind of thing amongst us -- Good people helping good people. My very best to you. I'll be in touch. I'm so glad to know you again and have this contact. Love, Cousin Mel
Melanie Layne Hylton
May God continue to bless you and may your dream come reality very soon. From the Palomino family.
Celestino Palomino
We wish you the best and are glad we could help.
Cardiovascular & Vein Center of Florida
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Suzanne Nelson
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
Subscribe to this campaign to receive updates.
Accessibility for all: Helping people connect with who and what matters most
Building leading-edge mobility products
One of the largest mobility dealers in the U.S.
Consult with specially-trained pharmacists, get your medications for pickup or delivery and more
All news, and all that matters to you
Your first step to optimized communications
The event for the disability community
Born to connect, empower and inspire the rare disease community.
A mobility dealer for wheelchair accessible vehicles and adaptive equipment