April 10, 2017
Hello All,
Not a lot to report, other than I am now a Hemodialysis patient only. My PD tube was removed at the end of March. Then I had to have emergency surgery on my Graph as it clotted unexpectedly.
That's done, and I have had some 20+ treatments so far. I am on the Tues Thurs Sat rotation. Fitting in other appointments as I can.
One good thing my new dry weight is now 199lbs. Before Hemo started I weighed in at 233. So pulling nearly 35lbs off permanently sure makes life easier. We may push for a bit more slowly. As I have yet to cramp in the chair.
My chair time is at 4 hrs 30 min per session though. Still getting my numbers under control. But while this side of the treatment started sooner than predicted. I hope to be using an artificial kidney within 3 years. So hopefully my Dialysis time will go by very quickly.
Please feel free to ask me anything at any time. And thank you for your continued support.
April 27, 2016
Starting to feel better again. Not getting sick daily. Did some lawn work now awaiting a tune up to get done on the Mower.
Storm was impressive last night but mostly was wind and lightning. We were lucky.
If the nausea stays away like it is then things are looking up. We also got the new porch sealed up with stain, it did great in storm. I dont think it even needs a second coat. But definitely need to replace the front soon. Depends on the weather.
They may need to make sure they got all my scar tissue after the gallbladder removal. So waiting to hear on what my surgeon and Nephrologist come up with. I have gained 20 lbs all in water weight. Which makes walking fun. (I cant feel my feet as it is)
April 20, 2016
Well March was a bad month. I was in the hospital 4 times with severe Vomiting lasting almost 5 weeks. They ended up removing my Gall-Bladder. And I was given a diagnosis of Gastro-Paresis
Which means due to Diabetes, my stomach can just decide not to work.
Well the past weekend the meds they prescribed finally started to work. And I have actually been able to eat and not see feel or smell anything coming back. YAY
But makes getting a Pancreas as important as a new kidney.
I will post links for this charity weekly. We need 70k$ to get the transplant as they want anti Rejection drugs prepaid for two years. I now have a second insurer. But depending on the time needed I am hopeful by then that I may be up as a candidate for the new Artificial Kidney. So the anti drugs would just be needed for Pancreas.
Thats the plan, if you cant donate. And I do understand many cannot. If you cant. Please copy the links I will post. And put them as many places as you can. There are people who can donate. I have about 2 years left before we are getting to the point of no return. So long as current diagnosis cooperates with my body.
October 4, 2015
Had another setback last week. I had my Hemoglobin drop rapidly, so I had to have a blood transfusion. Feel a bit better now. So they re-tested me. And my numbers basically improved across all tests. Both lowering where needed and raising.
My A1c dropped quite a bit. So I am back dialed in on diabetes handling.
I did get three teeth pulled in September. I am to go back for re-evaluation to make sure I am ready to replace them. Unfortunately that requires a major amount of funds.
So if anyone can think of ways for me to raise more. I would appreciate it.
May 28, 2015
Making a slow recovery from My hospital stay at the end of April/Beginning of May. Had a friend come in from a few states over to help me out. Made a world of difference.
It was a belly infection which they are still trying to figure out exactly what bug it was. Ended up in the hospital for 5 days, and a 2 unit blood transfusion before I was discharged.
But feeling better now, and just going to take it real easy this summer. With all the rains not like I can do much.
Take a look at my facebook page for pictures of my yard during the downpours.
January 29, 2015
Well we are almost at our target for starting the testing. As soon as I know how well or poorlyu its going we will start looking at doing more. I have 1 offer I already accepted from Family friends to have a spaghetti feed later this year at a well known Alaskan Restaurant. Hoping we will be able to follow that up in Seard at my Moms former Church and or her school there. Possibly other fund drives sponsored by other friends. Please no idea will not be considered. Please hit me up on facebook if you are a friend there or leave a message here. Thanks.
December 5, 2014
Going to really push the last few weeks of 2014 for donations. Hoping I can talk a business owner in Alaska or two to consider having a spaghetti feed or similar? Ideas are welcome. Any help is appreciated.
November 23, 2014
Would like to be able to start the testing in early 2015. So we need to really find some fundraising opportunities between now and then.
Please remember all donations are tax deductible. So if you need a deduction for 2014, now is the time!
We have pre-printed fliers with a color picture of me if you need some. Even if to just tack onto bulletin boards.
October 11, 2014
I want to thank those of you donating part of your Alaska Dividend check. It is much appreciated. I sure miss getting mine since moving out of state for my medical treatments.
Relatives in Alaska plan to circulate my flier in the smaller newspapers for a few weeks. So if you would like an email version I can send it out for you to print. Or you can contact my Mom in Kenai she has extras already printed on nice card stock paper.
August 13, 2014
Fliers & Business cards are now going out and I can send you copies or pdf files to download yourself. For any of you who asked about helping with my charity.
I have relatives in Alaska hitting the various Fairs and Fishing Derbys. But any help is appreciated.
I hope to get good news tomorrow on my foot. If its good, then no more Wheelchair or Crutches. (Yay)
July 20, 2014
We seem to be stalled on donations right now. I hate to even ask one friend let alone stranger for help. But I do believe I have more to offer this world. The flat bottom line is I don't have much time left.
See what many don't realize is yes with a transplant you don't get worse But while waiting for a transplant. Any damage done. NEVER gets better. So that means nerve damage, loss of eyesight and Hand and foot coordination.
July 6, 2014
Well still slow goings here, However we have put fliers out now and they are getting distributed in Alaska. I apologize for the delay. Just still battling a foot issue, which has me in bed most of the time. My Mom came down from Alaska to help me with a few things, but she had to return at end of June. Also might be getting some more family help in August. More when I know.
Please feel free to ask anything here, or on facebook. I am an open book.
May 25, 2014
Happy Memorial Day/Weekend
May 1, 2014
Well since Easter we have raised nearly 1500. So we are on our way to getting testing paid for. That number is though $10,0000. So Now is where I ask for ideas, and or help in setting up events. We will have fliers shortly. Basically guiding people here. So any thoughts or ideas, please let us know. If you have questions regarding the charity. Just use the 1-800 # They have a great staff who know their stuff. Thanks Again.
April 20, 2014
So officially announced the creation of the charity drive on social media. Already getting positive responses. Hopefully it translates to donations.....
April 8, 2014
As we are just getting started, it may take a few days to iron out any bugs. Any with questions you can call their number or talk to me.
Many of you have asked about passing the word on at local events. You are more than welcome to do so. When you are forced to ask for help, you cant be shy to ask from anyone. Beggars cant be choosers, after all.
April 8, 2014
I know donations can be a hard thing these days, if you know me at all you know for me to ask for help is sort of rare. I hate being on disability or having to use food stamps. But the only way I get back to not having to depend on those is a transplant.
As the text indicates all donations are tax deductible. And it is up to you if you wish to sign the guest book or not. My goal for the short term is $10,000.00 This number must be met before the testing will even start. Once this number is met I can be tested to see if I am viable for transplant. If I pass then we will need to talk the big numbers. 6-figures is all they will tell me.
