I was born & raised in Fairbanks. I graduated from Lathrop High School. I was security at the Carlson Center when it opened. I spent several years in Seward, followed by a few more in Kenai.
When I was diagnosed with kidney failure, I was told warmer was better. So I ended up in the South Central USA. I have found great care here. But in order to ever make a return to Alaska I need to pursue the transplant option.
April 11, 2017
Not a lot to report, other than I am now a Hemodialysis patient only. My PD tube was removed at the end of March. Then I had to have emergency surgery on my Graph as it clotted unexpectedly.
That’s done, and I have had some 20+ treatments so far. I am on the Tues Thurs Sat rotation. Fitting in other appointments as I can.
One good thing my new dry weight is now 199lbs. Before Hemo started I weighed in at 233. So pulling nearly 35lbs off permanently sure makes life easier. We may push for a bit more slowly. As I have yet to cramp in the chair.
My chair time is at 4 hrs 30 min per session though. Still getting my numbers under control. But while this side of the treatment started sooner than predicted. I hope to be using an artificial kidney within 3 years. So hopefully my Dialysis time will go by very quickly.
Please feel free to ask me anything at any time. And thank you for your continued support.
June 28, 2016
Just more of the same for this update. Other than to say I feel 1000% better since I was in the hospital. So it encourages me to not give up. Though my strategy may change, I think my better bet is to try for the artificial kidney that should be available within 2 years. I know how I react to some of the drugs. But the cost of those drugs in combination to the side effects leads me to believe I would be better off with artificial, even if it is an experiment. Still unsure if I want to try for the Pancreas. Now that my drugs are realigned for the stomach issues, if I can avoid anti rejection drugs altogether I may elect to just go for the Artificial Kidney.
January 3, 2015
Patrick, I can only give so much, but it's from the heart. I will look into a spaghetti feed at Indian House this summer while it's open. My step daughter runs it now, and I'm sure she will want to help. Good luck, and God bless!
October 14, 2014
We don't know each other but I am hoping and praying for your successful transplant. PS you have a beautiful smile!
anonymous donor in soldotna
April 23, 2014
Thinking of you and your family, Patrick, and wishing you all the best!