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Prior to my diagnosis I was working as a sales supervisor for a tech support company. I had taken a break from college because I realized that I wanted to become a respiratory therapist and my plan was to finish getting my AA and then continue schooling to become a Respiratory Therapist. However, I needed to save money for school so I worked 10 hour days and took open shifts. My goal was to use my savings, along with grants, scholarships, or loans to pay for my schooling. Unfortunately, I suffered my first attack in July, 2012 and ended up having to use all of my savings to pay my bills, insurance premiums, and for the travel to and from UCLA.
Prior to my attack I loved to compose, write, and perform music. I also loved school and learning. What saddens me most is not being able to go to school, work, or have children due to lesions on my brain and my susceptibility to another attack from stress or infection.My fiancé was unable to handle my multiple medical issues and broke off our engagement. With the intensive With the intensive innovative rehab therapy that Project Walk provides, I feel that if I can regain function in my upper body, walk on the parallel bars with braces, and my right arm/hand that I can do anything. However, I need your help so that I can be cured and continue my healing and progress.
Even with insurance, I have many uninsured illness-related expenses such as: rehab therapy at Project Walk, monthly infusions of IVIG (donated human antibodies), medications, medical supplies and equipment. My ULTIMATE goal is to travel to Chicago, IL and consult with Dr. Richard Burt at Northwestern Memorial Hospital for a possible stem cell transplant. He has the proven autologous stem cell treatments to stop my rare disease (like he has already done for others).
To help with this financial burden, a fundraising campaign in my honor has been established with HelpHOPELive, a nonprofit organization that has been assisting the transplant/catastrophic illness community for more 30 years. All donations are tax-deductible, are held by HelpHOPELive in the Southwest Catastrophic Illness Fund, and are administered by HelpHOPELive for illness-related expenses only. To donate now, please click the DONATE NOW button.
Please help me and my family to finally live our lives in peace and for me to be able to accomplish the dreams I know God has in store for me. God bless you all for your help and empathy for my suffering and goals to get well.
Ria
Sorry I haven't kept you guys posted this past week I had my infusion for IVIG (donated human anti-bodies) and that went off on the last day I had a reaction to the steroid given with the IVIG. I got hives and felt really high luckily I didn't have to use my shock kit or EPI Pen. I just took more Benadryl. This past Friday I had Speech Therapy. Aaron, the speech therapist, is making me feel more confident I can manage my short term memory loss. So it was a bit comforting to hear. On Saturday I went to a place called the "Garage" I was a bit hesitant to go based on the name lol. However, one of my favorite local bands was playing so I think I needed the positive energy after such a trying week.
I had therapy at rehab on my elbows and forearms the day before yesterday. Paige, my OT, put steroid patches on my inner elbows. The patches have steroids that help relieve the pain and strengthen the elbows. Although I know it's helping, I worry because our visits are limited. 4th of July was ok but I missed most the fireworks. My family bbqed and as always my mom out-did herself the food was delicious. :-)
Today I had a speech therapy eval for my short term memory loss. This was caused by the lesions in my brain from the second attack I had in August 2012. The therapist, Aaron gave me a series of mentally draining tests, and sadly I have to do speech therapy twice a week. It's not really a bad thing, but I'm upset that it's another thing taken away from me because of this disease. :/
I hope I get some therapy for my elbows this week it's been a daunting task to try and get on the same schedule as my OT and she is leaving soon for a month so I was told she had some replacements but she is really good so I would rather wait. I have a speech evaluation this coming week at the therapy center the lesions on my brain have left me with memory issues and sometimes even random words that I used to be able to spell. Today I still feel lathargic from my trip so I am hoping all the resting I did helped. :-)
So I got back from UCLA on Friday. I saw my neurologist and her nurse practitioner. Then the infectious disease Doctor because I have been feeling so crappy that we thought I might have blood poisoning again. I had a blood bacterium test, which suck by the way lol. No word on my MRI but the one image of my spine shows that the lesions are going down. Now the concern is the lesions on my brain. I also had to see My urologist and have to get a scope of my bladder next month. I found out I have scaring on my left kidney but it hopefully won't turn into anything and the scarring can't turn into stones. Lastly, I saw my Botox doctor and got 400 units of Botox in my inner thighs and hip. Needless to say, I'm still recovering from the trip they are so much more exhausting then you would think. I also have symptoms of fatigue from my disease so I think that really plays into it. However, for now I have taken care of my concerns and I am glad I went. I am grateful I have such a strong mom to help me get through all of the stuff I have to deal with there. :-)
Yesterday I didn't feel well but when a random person donated to me it cheered me up. It made me realize that people can still be human and have empathy for others. :-)
Today at OT my OT Paige put the electrode looking patches on filled with dexamethazone (some type of dermal steroid) and hooked them up to a machine on the inner part of my elbows. Now I know I have damage to my arms from my attack and over usage but this felt like little bee stings attacking you too fast to run. I felt great relief in the ice packs she gave me but then she dug her bony, little, talented fingers into my elbows and forearms and I wanted to scream but she told me to just keep talking so I did (because I can do that a lot lol). But man the after effects ice and braces for me tonight. I might even toss in some bio freeze lol.
Ria you are one of my most close and best friends I pledge to donate my entire 5th paycheck I make with the Marriott in Oxnard in order to reach your goals!! I love you so much as I said before we are all in this together and we will c u well again and walking before you know it!!! Talk to you soon my love!!!!
Scott Christopher Hylton
Keep fighting! My daughter told me about your struggle. I will share your plight and encourage my friends to help too. Bless you,
Tracie Neyman
Healing prayers for you along with joy, peace & comfort!
Yvonne Quillin
Hey, Ria my love. I miss you so much and I pray for you. If there is anything you need let me know.
Ralph
Hi Sugar, we pray for you every single day!! We will try to get the Village to help!! We love you
Thomas & Stacey Gleason
Hi Ria, I don't know if you remember me-I was at Calvary Camarillo when you went with John. I'm sorry to hear about your situation. I will pray about it and check my finances and see what I can do to help. Do you live in Ventura?
Lord, thank you for your humble daughter, Ria. Please be her strength and supply her with all she needs. If it is Your will, would you heal her? Whatever it is you're doing and will do, please let Ria see it so she can be encouraged that You are with her even in this. May Your saints see the need and if it is Your will, provide willingly. To You alone goes the glory and the honor.
Shaughn Hamman
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Ria Fincham
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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