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I was later told that I had had an extremely crippling seizure, which left me paralyzed from the waist down. Since it shut down internal bodily functions, I was intubated. The paralysis spread up to my neck and I became blind in both eyes. I have faint memories from this time. I remember the agonizing, burning, needle-like pain that wouldn’t go away even with many pain killers. I couldn’t sleep for the first month I was in the hospital because I had a breathing aid (bi-pap) that covered most of my face. It also hid the fact that I was blind because I thought it was just the position of the mask over my eye. I was unable to eat, drink water, or leave my little room in the pediatric ICU for three weeks for fear of a lung collapse – my diagnosis — Neuromyelitis Optica!
After two months in the hospital, I met with Dr. Sheremata from the University of Miami Health Systems who is an expert on my disease! He immediately re-admitted me to the hospital for a week of very high-dose steroid therapy to help with the inflammation in my spine; this treatment was followed by five weeks in spinal rehab at Jackson Memorial. I have continued with these medical professionals since that time –they feel like family. I am so grateful for all of the people who have helped me on my journey. For now, I will continue therapy and every six months, I will receive a dose of Rituximab chemotherapy to keep the disease at bay.
Even with insurance, I still have many uninsured, illness related expenses such as: co-pays and deductibles, doctor visits, rehabilitation therapy and expensive medications that I will need to take for the rest of my life.
To help offset such expenses, a fundraising campaign in my honor has been established with HelpHOPELive, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible, are held by HelpHOPELive, are held by HelpHOPELive in the Southeast Catastrophic Illness Fund, and are administered by HelpHOPELive for illness-related expenses only. If you would like to make a contribution today, simply click the DONATE NOW button.
Thank you kindly for your support and assistance during this troubling time.
Jazzmin Peluchette and Family
Hi everyone!
I'm coming to you today to ask for your help. You might've read my messages before asking for the smart drive power assist wheel. I just want to explain why I would need it and what it is. As you know, school is coming up around the corner. I'm planning to attend FIU this fall semester. I also plan to live on my own in a dorm their since they are wheelchair accessible, unlike UM. This is a huge step for me and to be able to get around such a huge campus without wearing myself out, I would need the Smart Drive Power Assist Wheel. It is a wheel that would attach to my regular wheelchair. It basically just saves my arms from having to manually push around the whole campus. As you can imagine, it's really hard to push yourself in a wheelchair long distances especially in this heat! The wheel would propel me forward. For example, rather than me pushing myself 5 ft with one push, this wheel would propel me approximately 20ft with one push! I'm not sure how far exactly, but I tried one out recently at Jackson and it is such a lifesaver! Especially pushing up an incline or a ramp. It would help me out, because if you can only imagine doing the most basic things are tiresome for me. This simple wheel would give me more energy to put forth is studying etc.
I'm coming to you guys today to ask for your help in funding me. This wheel would help me be independent in college and getting around without wearing myself out!
Here is a link where you can learn more details about the wheel: www.livingspinal.com
Any donation would help! Thank you
Xo
Jazz
Hi everyone! I'm going to try my best to update this page as much as possible. However, there is a current Facebook page updated by my immediate family and I where you can learn about more update! Feel free to "like" and learn more about me: www.facebook.com
Thank you to all those who’ve been so supportive of me. You don’t understand how nice it is to have such a great support group behind me at all times. I think this is what has kept me going and kept my fighting spirit alive. While I have come so far, there is still a long journey ahead. Things have changed a lot. Some for the better, some not. I have had to change my plans for college because unfortunately the dorms at the University of Miami are totally inaccessible to someone like me. I still plan to pursue my studies in business, but instead of at the University of Miami. I will be a full time student at FIU. I am very comfortable there and had a great vibe, last week, when I stepped on campus there for the first time in a year! Since I will be living on campus, I am in need of a power assist wheel to help me wheel across campus without tiring myself too much. Also, I will need to continue with my acupuncture to help abide with the nerve pain that I get incessantly, many more hours of therapy to help make sure I can continue to live independently, and countless other medical bills who have overwhelmed my family and I over the past year among many other things. It is a lot to take for oneself so I’m glad you’re all in on the ride with me!
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Jazzmin,
We have sent a donation in memory of your grandfather, Mel Peluchette. We wish you the best.
Fred and Martha Wojcik
Jazzmin--- we work with your cousin Marissa and we have donated a memorial contribution in memory of your grandfather Melvin Eugene Peluchette to you and your Road to Recovery Fund. Please accept our sincere condolences on the loss of your grandfather. Also please know that we are all praying for your continued recovery and happy life. I am sure this holiday will be difficult for you and your family. We in Arkansas pray for peace in your hearts.
Dana Beggs, Baptist Health Therapy Department Manager
Jazz, we continue to keep you in our prayers. You are truly a beautiful and amazing young lady with that Peluchette zest for life! We love you!
Frank and Sandy Day
You are such an inspiration. God bless you!❤️
Char Rios
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Jazzmin Peluchette
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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