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Our best friend, Justin is a 62-year-old man who is very ill. After years of struggling with dilated cardiomyopathy, Justin’s doctors at Vanderbilt University Medical Center told him that he is in desperate need of a life-saving heart transplant.
Justin is one of the nicest guys you will ever know, always willing to help others in need. He is a wonderful father to his son Drew and good friend to many. He has lived in North Carolina, South Dakota and for the last 10 years has lived in Tennessee. Justin was a school teacher, professional tennis player and has followed his life-long passion of working with horses, competing and then doing ranch work and running clinics. Two years ago Justin suffered cardiac arrest and his very-active life changed dramatically. He is no longer able to work or do most things we all take for granted. Justin looks forward to returning to the horse world as soon as he is able.
Transplants are life-saving but financially draining. Even with insurance, Justin is facing very high expenses including travel and relocation to Nashville for up to six months to be closer to Vanderbilt and his heart transplant team, post-transplant medications up to $1200 per month, co-pays, lab fees, and more.
To help with the financial burden of Justin’s uninsured expenses, a fundraising campaign in his honor has been established with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax deductible to the full extent allowed by law, are held by Help Hope Live in the South Atlantic Heart Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. Please consider a contribution.
Keep an eye on Justin’s campaign page at www.helphopelive.org. We will be posting updates regularly and are planning some fundraising events soon.
On behalf of Justin, ourselves and his family, thank you for your kindness, generosity, support and prayers.
Frank & Oveta Bush
931.707.9800
It has been quite a year so far. In Dec '15, I contracted RSV, which was serious...a virus with no treatment. It affected my heart function by reducing my ejection/fraction rate by 35%. This affected my breathing and stamina. I am just about back to pre-RSV strength tho I am still on a weight lifting restriction of 25 pounds. It took a good 6 weeks to get rid of the cough. I pray no one out there gets this RSV. I was super close to pneumonia. You all please keep healthy! :)
HHL has told me to update this "blog" to keep you all informed of my health and needs. As many of you know me very well, I am very independent and very reluctant to ask for help at all. It was a tough task to deal with last year in doing so but I realized I cannot do this nor survive without help. A lot of Folks came forward with support and some fund raising benefits. I am ever so thankful, appreciative, and grateful.
As HHL and I discussed, there is a common misconception that once a person is in remission, all is well. My added concern is my heart health - which is delicate at best.
From a year ago, I am healthy now and able to function better but the medical bills and expenses continue to pile up as visits, meds, and tests are routine. Yes I am in remission. Yes I am not eligible right now for a heart transplant, and fortunately, I do not need heart bridge surgery. And I am able to enjoy life almost normally but.....
I have osteoporosis as a result of the chemo and the steroids. My bones are that if a 85-90 year old. I have lost 3 teeth that had root canals. One was a small front tooth. I smile like Tom Selleck now! Any way I look at it, a "repair" is 2K, which I do not have. HHL Funds will assist with the tooth repair.
I am 6 figures in debt with medical bills which I will more than likely never be able to pay off unless a lottery ticket pans out! :)
I recently had to delay a needed prescription due to the "new" rules on co-pay and I did not have the money.
I was encouraged to express all this to give you the real point of view in facts regarding my "fight". And not only my fight, but thousands of people in my boat.
I am expressing this not to have you feel sorry for me or express sympathy. Rather I simply ask for your support in any form: prayers and/or donations, even support to other individuals need if you are able and feel comfortable to do so.
Thank you so much for your kindness last year and now. Many Blessings!
November 4, 2015
It has been quite a year. With the diagnosis of cancer, I must be cancer free for 5 years for my heart transplant. I was given a a year or less to live without the heart transplant or bridge surgery. I told them a year ago Sept: "I am going to fool you all." (I do remain on the heart transplant list.) I have been in complete remission for 5 months now and my heart is strong enough that I have been "freed" to do anything I feel like with an 80 pound weight lifting limit. To celebrate my first moth off of chemo, my friend Ben took me to NC to white water raft and zip line in the same day. Probably not a smart thing to do but I did do it and had a blast. Folks have been so nice to me. My biggest thrill is that I was able to start riding Smokey again and that is big for me.
Tho I am gaining strength every month, I still face treatment and medicines. I appreciate all of you that have supported me and hope you will continue to do so over the next 6 months or so. I expect to be strong enough to "work" in the Spring!
Your support has paid for medicines and co-pays that I simply cannot afford too.
The osteoporosis has taken it's toll on me, particularly with my teeth. I will not go into detail but an upper denture is my best, my logical path. Your support will help me get this done.
I thank you all from the bottom of my heart!
One lesson very much learned from the past year plus that I would like to share with all: Do not put things off until tomorrow - do them as soon as you can! Period! Smile! Always smile!.
Blessings with much gratitude!
I wanted to report that things are going well. I had a check with both the Cardiologist and the Hematolgist last Wed, Dec 3rd. Heart is stronger tho the LVAD is still on the plate and in the near future. The myeloma is being eradicated at a great rate. 5 weeks ago the bad cell count was 3.8, 2 3 weeks ago 3.1 and last week 2.5, so we are making great progress there with the meds and God's plans for me.
Thank all you for your continued support in so many ways! We are still short $3,200 for the projected 5k needed for LVAD. Any help from any source is more than welcome and appreciated with much gratitude.
Have a very Merry Christmas. Blessings be with you and your family at all times! Thank you.
I am doing better and I am so thankful to those of you have supported me through donations, travel, and other things. We came up pretty short of our financial goal for 31 Oct 14 but I know we will attain it in the long run. Thank you so much once again!
I have spent more time home than ever in my life. That has been a tough part for me. I am used to being so active. My good friend Frank took me out last Thursday to spend time with my horse Smokey and that was a great 1.5 hours.
Looks like the ever-changing weather is now with us until Spring.
You all please take care and blessings to all! :)
Had a nice trip to SD/ND courtesy of my 3 best friends here in TN. This trip allowed me to see two of my best friends, Roger (ND) & Nolan (SD) and family. I also visited in SD with my friend Tiss and her son Nick! Also, a great man I am able to call my friend, Bob Hanson, who was 96 while I was there. Bob is remarkable as he was a POW in WWII. He has received the French Legion of Merit for his efforts from France - their highest award. Thank you Frank, Randall, & John. It is such beautiful country and I enjoyed living there as long as I did!
Medically, a great check up yesterday. I am on the LVAD list (heart pump) awaiting for kidneys to stabilize/baseline to make surgery as risk-free as possible.
Thank you all for your contributions. We are short of our Oct 31st goal by quite a bit but time will take care of it. Thank you personally for all your support! Blessings!
Howdy Folks! Returned home form Vanderbilt this past Friday afer 17 days in house. Whew! It was tough for someone that is used to being outside. Many of you know the deal and the bargain I did not ask for, so in the interest of not boring you, lol, the four step plan in my reality is this: 1) Get kidney functions back to normal; 2) get LVAD done - heart pump bridge surgery; 3) Whoop cancer; 4) heart transplant. I am fortunate in that the myeloma was caught early. It would have been 1-2 years before I showed any symptoms and therefore I am very fortunate we uncovered it now. I have responded very well to the steroid therapy I have been thru.
I appreciate all the thoughts, prayers, and donations. I am speechless therefore: Thank you much!
Vanderbilt visit the 22nd was eye opening. Tests results dropped from 15.1 to 10.9 on SVO2 test. That means I am getting less oxygen as 14 is a transplant benchmark/line. Anyone who has ever exercised knows what it is like to have sore muscles and can hardly move them when the lactic acid builds up. That is fairly normal for me walking a slight hill or 8 or more steps. I never thought in my whole life I would be this out of shape! lol,,,, Thank you for your support.
Next visit top Vanderbilt is on the 22nd of August. Blood work and some tests along with a Team Meeting! Vanderbilt has given me a super team!
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Robert J Case
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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