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Dylan currently continues to do a whole host of therapies on a daily and/or weekly basis in an effort to help him gain strength, balance and improve his vestibular system. A few of those therapies are: he rides horses, sees a physical therapist (who works on his motor skills & stretching), stands in his stander every morning before school, uses a gait trainer both at school and at home, practices walking with his walker, swims, does a daily spinning program (on the astronaut board), a listening program (on the ILS system), a stretching program, sees a chiropractor (Pam Cobbs) for Sacral Occipital Therapy, does Neurofeedback at Bend Counceling and Biofeedback, and hyperbaric oxygen therapy in a soft chamber. He is a trooper who works hard every day and never complains.
Dylan’s strength and stamina have increased but it has become evident that we need find something that will help him with his balance, strength, flexibility and coordination. Through extensive research, we have found a piece of equipment that will do all of those things. Called the Galileo, it is a vibration platform used for exercise training and therapeutic use. We also believe that the Galileo could help correct Dylan’s ankles, which have a severe pronation, and also help his hips to form properly. We recently went to see an orthopedic surgeon who believes that if we don’t get Dylan’s ankles, legs and hips corrected through therapy, then our only recourse would be for him to have surgery. Dylan is medically fragile and the risk of this surgery is too great. Little guys like Dylan have died after having surgery that their bodies could not handle.
The looming realization of these future surgeries prompted us to act quickly to find other options for Dylan. In early October 2015 we made a quick trip to Seattle to meet with the founder/ designer, engineer, and US reps, of the Galileo. Dylan got a chance to test out the Galileo and they got a chance to see him using it and give amazing feedback for exercises and which of the six models would work the best. We were very encouraged with the possibilities that the Galileo holds for Dylan and he is eager to get one. In fact, when recently asked what he wanted us to say for his night time prayers, he said “Pray for Dylan”, and when asked what he wanted us to pray for, he said “the Galileo”. Over the years, we have learned that Dylan innately knows what his body needs.
We are hoping to raise enough with this campaign to purchase the Galileo ($8,500) and the tilt table ($11,000). We have chosen to fundraise with HelpHOPELive in part because HelpHOPELive provides both tax-deductibility and fiscal accountability to contributors. Contributors can be sure that funds contributed will be used only to pay or reimburse medically-related expenses.
To make a contribution to Dylan’s fundraising campaign, click the “Donate Now” button
For more information, please contact HelpHOPELive at 800-642-8399.
Thank you for your support!
Jinger and Mark Cain
Please read this wonderful article about Dylan and the Galileo machine that he needs: http://www.bendbulletin.com/health/3637739-151/family-looks-to-buy-device-for-son-with#
Dylan, You are one good looking young man! I look forward to the next time we can spend some time together. Your loving grammy...
Grammy Tucker
Hi Dylan, "We cannot direct the wind but we can adjust the sails". With the grace of God, your wonderful parents and all who pray and love you, the day will come where you walk with us.
Love, John & Colleen Schostalo
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Dylan Cain
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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Accessibility for all: Helping people connect with who and what matters most
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