August 27, 2024
It’s been an amazing journey thanks to your love and support for Ed and our entire family as we continue to navigate some of the highs and lows of life after transplant.
Some updates: We started 2024 with so much to be thankful for! As you know, Edward got a kidney transplant in 2023. It’s been an incredible gift that we’re all so grateful for, but if you’ve been following our journey here on Edward’s Campaign Page, you know there have been some challenges, too! Edward was hospitalized once in 2022 and has had to receive more frequent follow-up care than we expected this fall and winter.
As a result, we’ve also had to take on some unexpected medical costs that our insurance doesn’t cover, like parking/tolls, caregiving for Jannah as she accompanies Ed to his follow-up appointments, and the ongoing cost of Ed’s anti-rejection meds. These medications keep his kidney strong, and he will keep taking them for a lifetime – so we have to keep covering the co-pays for a lifetime, too.
August 26, 2024
https://helphopelive.org
December 26, 2023
We wanted to take a minute to update you on how things have been going with Edward, how much you’ve helped us, and where we could still use your support.
Wow. This year has been a whirlwind of emotions for us as Ed has continued to figure out how to move from surviving to thriving with his new kidney.
We’ve had a few rough patches. We won’t soon forget the Thanksgiving Day hospitalization when his blood pressure dropped—an accidental holiday memory for all of us.
We’ve had some really bright spots, too, like when Ed dropped off Julie and Tavi at school on Ed’s birthday and the student orchestra played his favorite song right on the front steps. Now THAT was a birthday surprise for the books.
Through it all, the whole town of Charmont has been covering us in constant love and support.
We want to really, really thank you for the love and donations over this past year.
Thanks to you, we were able to cover the unexpected $982 ambulance ride on Thanksgiving and still spend the afternoon together with Ed and the kids. You helped us cover over $1,900 in medication costs that are giving Ed his life back by protecting his new kidney.
And this summer Ed got to return to the pool thanks to his physical therapy sessions with Dr. Luco. We could never have covered those sessions—and so much more—without your help.
The gift of life is something Ed will treasure for the rest of his years, but it is also something we need to financially support day after day to keep him with us.
This gift of new life would not have been possible without you.
Thank you from all four of us (and Fluffy).
December 8, 2023
This is an update
September 18, 2023
GivingTuesday is BACK!!! We hope you'll join us for a big campaign for the year's biggest annual day of giving on Tuesday, November 28. We have a lot planned to celebrate with you, so please reach out to Kath if you'd like to get involved with planning online fundraisers for the big day, and make sure you're follow us on Instagram, TikTok, and our new Facebook Page!
June 22, 2023
Hello! Here are a few updates from this summer.
-Jannah graduated from medical school and is looking forward to residential study as she continues her pathway to giving back to the profession that saved Ed's life so many times!!
-Willy and Gemma are getting ready for third grade. We are grateful to their school staff and principal for helping to organize a Talent Night and Bake Sale fundraiser to benefit Help Hope Live in Ed's honor for October!
May 16, 2023
It's been a while but here are some updates from this spring!
Ed has been back at the transplant center weekly just to keep an eye on potential signs of rejection. He is switching medications and we are SO grateful for support through this campaign, because right now his new medication may not be covered by our insurance, so we're looking at about $400 out-of-pocket per month.
May 2, 2023
Update post live deploy
May 1, 2023
This is another update
May 1, 2023
This is a test update from alx
May 1, 2023
Another Update
May 1, 2023
This is my update
April 27, 2023
Another update
April 7, 2023
Another Testa
April 6, 2023
Subscribe testa
February 15, 2023
Latest Update Here
December 30, 2022
Same vid
December 23, 2022
HAPPY NEW YEAR! We are starting 2023 with SO MUCH LOVE in our hearts for all you've been able to help us do in 2022.
Here are just a few things that your support made possible for our beloved Ed and his family!
-You helped us cover an unexpected hospital stay to help Ed fight off transplant rejection and keep his new kidney strong.
-Ed was able to return to work remotely in December FOR THE FIRST TIME since 2019!!! He is really excited to be back in the professional world, and it would not have been possible without the emotional and financial support you have been showing us throughout this year.
March 25, 2020
Hope everyone is staying safe! I have a few updates about my medical bills and the transplant process:
First of all, I want to say that it has been beautiful to watch people come together during a time of crisis. My family already experienced what it's like to have everything you know disrupted by a medical diagnosis, from work to home life. We realized quickly...
December 30, 2019
Hello, everyone! I thought now would be the perfect time to share a few of our family's updates and to look back at all we've accomplished with your help in 2019.
First of all, Edward received the gift of life in October, and we couldn't be happier!
November 27, 2017
Today is Giving Tuesday! No credit card fees for all donations in my honor here at helphopelive.org. Also check out my Facebook Fundraiser!
November 16, 2017
The Battle of the Schools is in full swing! Congratulations to our current leader Indian Hill! Make your donations now!
June 29, 2017
Another month, and we've got tons of updates for you from our family. Here are some of the things we're working on:
May 8, 2017
Hey, friends -- this video shares my gratitude for your involvement in my last Poker Run fundraiser. Learn how donations will change my life!
March 23, 2017
Hello, everyone! It's been a while since we last updated, so here's a quick refresh on everything that's been happening in our lives.
First of all, THANK YOU all from the bottom of our hearts for your help in planning, staffing, and supporting the Spaghetti Dinner Help Hope Live fundraiser that we held in February! What a wonderful occasion! We raised over $6,000. The event was not only an event to raise funds, but also a way for us to connect with more than 150 of you in person to show you just how much you support means to us. Ed felt so encouraged and loved!
Ed was back in the hospital for two weeks in mid-February, but now he is home again with strict orders to rest and remain home from work until he is feeling completely recovered. His next surgery is scheduled for April.
February 7, 2017
Many, many thanks to those of you who came out to help with my Fourth Annual Poker Run fundraiser for Help Hope Live! What an amazing day, and great weather!
July 22, 2016
Hey guys! Wow -- a lot has happened since last week. Jenny and I spent almost an entire day at the transplant center discussing preparations we need to make plus our financial commitment. We are so grateful for your donations so far because...
February 2, 2016
Check out this video of my latest fundraising event. Thanks for your support!
December 15, 2015
Had such a great conversation with an old friend today who found this page via Facebook. He is going to help me plan my next event! Really excited and feeling blessed.
November 24, 2015
Just want to take this opportunity to thank ALL OF YOU for your support and donations in my honor. Thanks to you, I get to spend the holidays with my wife and baby boy without financial worries ruining this season for us. I'm able to afford the doctor's visits and deductibles that will keep me healthy going into 2016. My family and I thank you from the bottom of our hearts.
November 24, 2015
Little bit of pain in my abdomen today but not enough to call the doc...so grateful that you guys helped me cover my co-pays, so I don't have to add stress to my pain right now! Love you all!
