Heather Bailey is a 49-year-old mother of a beautiful 15-year-old daughter who shares her great love of horses and animals in general. Heather had suffered from PAH for more than nine years and underwent a double lung transplant on July 2nd at Brigham and Women’s Hospital in Boston, MA. A very thankful Heather is now recovering at home. Her fiance, Kerry, family and friends are raising money to help pay for uninsured medical expenses and transportation costs associated with transplantation.
To help with Heather’s uninsured expenses, a fundraising campaign in her honor has been established with HelpHOPELive, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible, are held by HelpHOPELive in the Northeast Lung Transplant Fund, and are administered by HelpHOPELive for transplant-related expenses only.
August 24, 2015
Great clinic appointment Wednesday! My lung functions are up by 20+%, even though I was coughing horribly during testing. I have had a cough all week, sloughing of lung stuff causes this. A lot of pain and my sternum wire has shifted from all the coughing and over doing. This is pretty normal and chest x-ray and CT show all is well. I’m on “house arrest” for a while. I guess I thought feeling good meant I could start resuming normal life but I was WRONG….. I thought I was taking it easy. However, Kay and I did do the mall after an appointment with my pulmonogyst in Portland where I was greeted with smiles and hugs. Nine years of being ill has ended and they were so happy to see me looking and feeling so much better. It was so nice to just mindlessly shop oxygen and exhaustion free. And, I didn’t really buy much at all, the thrill was all in just walking and looking. Who knew? It’s awesome to feel good and I can’t wait to jump into life with both feet. I little more healing time is needed. I felt so bad for so long I was so used to it, now even when I’m weak and tired I still feel great in comparison. I’m waiting for another bronchosopy to be scheduled in the next week or so and dropped a few meds- no more Lovonox shots every night- yeah!!!!! First time I have been on pills only in over 5 years!!!!! Can’t wait to ride that beautiful, chubby mare of mine. She is such a pretty lady and soooo sweet. Thank you Amy and Nora for giving her so much love. My surgeon says it will be a while before I can ride just to be safe, my chest has to heal. I was hoping for the last MHA show in September but he says NO!!!! Maybe some showmanship and halter classes. I’m counting on October beach rides, I’ll be able to run like the wind with all of my pals for the first time ever- I can’t wait!!!
August 13, 2015
My transplant happened on July 2nd and I am at home recovering. It was a difficult experience that I am so thankful for. My life has changed so much already. I am breathing normally and am healing more every day. I just can’t believe how much better I feel and how lucky I am to have received such a precious gift. I ended up having the transplant done at the Brigham in Boston and the surgeon, doctors , nurses and staff were remarkable. As I said the experience was difficult but I had so much support every step of the way. There were things that happened that I never imagined and things I had imagined that weren’t that bad at all. The pain was very manageable but the absolute loss of ability to walk was surprising. I was so weak I had to learn how to walk again. Fortunately it came back to me quickly and I am doing better than ever now. No more oxygen, iv medicine, redness or huffing or puffing. Soon I will be able to drive again and finally be able to ride my horse like a regular person!!!!! My heart and undying thanks go out to my donor and to their family for giving me the gift of life.
December 15, 2014
Heather, I wish you all the luck in the world. You are in my thoughts and prayers. God will help you through this.
Jane (Heath) Rowe
November 18, 2014
Benefit dinner is Nov. 22 @ Evergreen hall, 1 Columbus drive, Brunswick. Please come-- Every dollar counts--so much Love to you Heather.
November 18, 2014