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In February 2014, Julie, my mom, her life was turned upside down when she was told that she had end-stage liver disease and that she needed a liver transplant. The year for her was very tough as her condition worsened and she was placed on the liver transplant waiting list. She never imagined that at sixty-two years of age, she would be faced with the overwhelming cost of a life-saving transplant.
When she got the call from the Medical University of South Carolina in Charleston, South Carolina on March 13, 2015 at 3:30 in the morning, her life changed. By 9:00 that night, her donor liver was in place and she was in recovery. With her life changed forever, the healing process began.
A year and a half has now passed and with the onset of 2017 near, January means insurance co-payments on her immunosuppressant medications once again. She is on two different types; Cellcept and Prograf. These medications are very expensive for a 30-day supply. Even with insurance, a liver transplant, while life-saving, can be financially draining. With co-pays and these two post-transplant medications that will cost more than $1,000 a month each, Mom will need to take these medications for the rest of her life.
To help with the financial burden of Mom’s uninsured expenses, this same fundraising campaign in her honor, is still active with Help Hope Live, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible to the full extent of the law, are held by Help Hope Live in the South-Atlantic Liver Transplant Fund, and are administered by Help Hope Live for transplant-related expenses only. Please consider making a contribution too continue to support Julie.
Working together, you that have given previously, have seen Mom’s future get brighter. My father and I greatly appreciate the donations each of you have given to my mom’s fundraising campaign. We again ask for your consideration in donating for her continued health.
Thank you for your prayers, support and generosity.
With grateful respect,
Lamar Hewett, Julie’s son
843-908-2313
douglas.l.hewett.jr@gmail.com
On August 22, my mom went to MUSC for a check-up at the transplant clinic. What seemed to be a very normal visit, turned out to be a very concerning one. The labs she had an hour before showed her liver function numbers to be dangerously high. My mom and I just looked at each other. We knew what this most likely meant.
The doctor was very frank with us. He did say there was a good possibility she was in liver rejection. We just cringed. We knew, however, we could not give up.
Since that day, my mom has been having labs weekly. Her liver numbers have come down, but not to the level they need to be. The doctor is now talking of doing a biopsy to help confirm the possibility of rejection.
I will keep everyone updated as much as I can. Please pray for my mom.
Please take a moment to read the section, "About Julie." I have updated it to reflect the new year and again ask for your help and consider once again donating. It will explain why.
However, I will post it here for those that would like to keep reading:
Supporting Julie Post-Transplant!
In February 2014, when Julie, my mom's life was turned upside down when she was told that she had end-stage liver disease and that she needed a liver transplant, the year for her was very tough as her condition worsened and she was placed on the liver transplant waiting list. She never imagined that at sixty-two years of age, she would be faced with the overwhelming cost of a life-saving transplant.
When she got the call from the Medical University of South Carolina in Charleston, South Carolina on March 13, 2015 at 3:30 in the morning, her life changed. By 9:00 that night, her donor liver was in place and she was in recovery. With her life changed forever, the healing process began.
Nine months has now past and with the onset of 2016 near, January means insurance co-payments on her immunosuppressant medications. She is on two different types; Cellcept and Prograf. These medications are very expensive for a 30-day supply. Even with insurance, a liver transplant, while life-saving, can be financially draining. With co-pays and these two post-transplant medications that will cost more than $1,000 a month each, Julie will need to take these medications for the rest of her life.
To help with the financial burden of Mom's uninsured expenses, this same fundraising campaign in her honor, is still active with HelpHOPELive, a trusted nonprofit organization that has been providing community-based fundraising guidance to patients and their families for more than 30 years. All donations are tax-deductible, are held by HelpHOPELive in the South-Atlantic Liver Transplant Fund, and are administered by HelpHOPELive for transplant-related expenses only. Please consider making a contribution too continue to support Julie.
Working together, you that have given previously, have seen Julie's future get brighter. My father and I greatly appreciate the donations each of you have given to my mother's fundraising campaign. We again ask for your consideration in donating for her continued health.
Thank you for your prayers, support and generosity.
With grateful respect,
Lamar Hewett, Julie's son
843-908-2313
It is so hard to believe that December now makes nine months since mom had her liver transplant. It seems just like yesterday that she had it. Time really does fly!
During these nine months, mom has been doing well, but she has had several set backs. She had several ongoing stitch abscesses that would not heal since March, so the surgeon had to remove the permanent deep stitches in order for her to heal. She had this surgery on December 16.
Just recently, the umbilical hernia repair she had in November last year (2014- before her liver transplant) has reoccurred and the surgeons are reassessing her situation and the best way to heal it.
It has been a very long year, but we have made it this far and will continue to do so in 2016!
Yesterday, September 13th, was the six month anniversary of mom's liver transplant. For my mom and our family, it seems just like yesterday we were rushing to the hospital after the call. Mom is doing very well and has had no complications from her new liver, but had had a few drawbacks with the medication. However, we are very blessed!
Momma's liver transplant was a success! She has a long way still to go, but she will make it!
Momma is at MUSC now getting worked up for a possible liver transplant. We got the call at 4:30 this morning and arrived shortly thereafter. Doctors are harvesting the liver now, will test it and see how viable it is. One of them said it looks really good , so maybe today is the day!
I don't have much of an update on momma's condition. We are still waiting for another call. In the meantime, momma is doing fairly well. Just taking it day by day. That's all we can do, but as long as she is okay, that's all that matters!
Momma got a call today from MUSC stating that a liver offer was made. They wanted to ask questions and see if we were ready. They were testing the liver and said that if it didn't match the primary candidates, and it matched the secondary, being momma, we'd get a call back.
However, it didn't pan out. Maybe the primary candidate was able to receive it. If so, we are happy for them.
So, now we just wait again.
We received some good news on Tuesday. Momma was finally placed on the liver transplant list! It happened a little over a year to the day we started the process. It's been a long road, and it's going to be even longer, but we are gonna make it!
My mom, Julie Hewett, is a patient at MUSC, in Charleston, SC, and is awaiting a liver transplant. She is 62 years old and has had diabetes for almost 20 years. Due to her complications of diabetes attacking her liver, she is in end-stage liver disease, or cirrhosis. She has never smoked or drank her entire life. Which just goes to show how bad a disease diabetes is. Thank you for taking the time to check my page out and we appreciate any help given in making her liver transplant a success!
Please always keep me updated. You know I pray every night for your Mom. My heart goes out to you and I truly care.
Jackie Boyd
Lamar,
My prayers are with you and your family.
Marilyn Faulks
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Julie Hewett
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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