Grant Michael McCauley-Davis

Frederick, MD

Mid-Atlantic Transplant Fund

Share Grant Michael McCauley-Davis's Page

Mail a Check

Make checks payable to:
Help Hope Live

Note in memo:
In honor of Grant Michael McCauley-Davis

Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087

Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.

Family and friends of Grant McCauley-Davis are raising money to pay for uninsured medical expenses associated with transplantation.

Grant has chosen to fundraise with HelpHOPELive in part because HelpHOPELive assures fiscal accountability of funds raised and tax deductibility for donors. Donors can be sure that funds donated will be used only to pay or reimburse medically-related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Donate Now button.

February 2, 2015

I came home from the hospital Friday evening and am so happy to be out of there! I am hoping that I do not have to go back for a long time! My home nurse came today to draw blood and she was impressed at how fast the blood came flowing out. Usually it was a lot of work, I would have to be positional (one arm up, one leg bent just right....or on my side with one arm up) which was a pain but not anymore. I have a follow up appointment with my doctor at Georgetown tomorrow. Hopefully they say that I can start eating again because I miss my bananas and mixed fruit oatmeal. All I am taking by mouth is pedialyte. Nana is making me another broviac bra since my port is in the center of my chest instead of the upper right side. Today is a good day and I thank God for all the blessings in my life. =)

January 30, 2015

I am still in the hospital...I went in because my potassium was too low and ended up having to have surgery on my Broviac line. When one of the nurses was drawing blood it broke so I had to have immediate surgery and get that fixed. It was scary but I put on my brave face and knew that everything would turn out to be alright. We always have to count out blessings though and luckily they were able to use the same vein as before and the surgeon was able to just rewire the existing Broviac. The doctor's are saying I can come home tomorrow afternoon so fingers crossed it still happens that way!!

January 27, 2015

Hello world!! I have not written lately because I have been extremely busy!! Still no word on my transplant but we are still waiting patiently. My Nana made me a Broviac Bra so I have not been scratching off my dressing as much. Mommy used to have to change it daily, sometimes twice a day, now she only has to change it twice a week! Every time I scratch off my dressing it scares my Mommy because of the possibility of getting a line infection. A few months ago I got a line infection and it ended up being staph infection. I was in the hospital for 9 days, 7 nights.

I had a horrible day yesterday! My home nurse came to draw blood but could not get any from my broviac line. She ended up leaving to see her other patients and came back later to see if she could get any blood. While I was taking my nap I projectile vomited and it got all over me including my eyes. Nana gave me a quick bath while Mommy cleaned everything up and found me a new outfit. I have been vomiting daily because I have a blockage in my small intestine where they connected it to my large intestine. The doctors don't want to do surgery again on my stomach until I receive my transplant because of all the scar tissue. So the home nurse came back and was trying to get enough blood for the tests that she needed so that my TPN mixture was correct. She was here for 7 hours and still could not get enough blood that she needed. Mommy got a call from Georgetown saying that my potassium was extremely low (it was 2.3 when it needed to be closer to 5.2) so I needed to be brought into the Emergency Room. It was snowing and the roads were icy so Mommy was not going to drive in that. They said to give me Pedialyte and that the home nurse could come tomorrow morning and draw my blood. My potassium levels were still low so now I am on my way to Georgetown University Hospital.

I can not wait to receive my transplant because then I will not have to make as many trips to the hospital. There's not a lot of fun things to do in a hospital room.

Please say a prayer for me that the doctors figure out why I am vomiting all the time and that they figure out a solution.

Thank you for reading and staying up to date on my progress!

January 3, 2015

Good Morning world! Today is another exciting day!! I am still getting over the flu (Mommy took me to the local hospital a few days ago because I had a fever of 104.7) I have a deep wheezing cough, runny nose and congestion. Unfortunately, since I am TPN dependent and my bowel is so short, I can not take any medicine by mouth because my body can not absorb it. Therefore, I can not take Tylenol (for my bodyaches), cough syrup, tamiflu, etc. I can only have a medicine via IV. There is a tamiflu that is injectable that exists in Korea and Japan, it just has not made it into the United States yet. Mommy is keeping me quiet and entertained by watching Bob the Builder on my Sprout Cubby (thank you Maw Maw) and I just have to let it run it's course.

My mommy fears that if I do not get well soon I will not be a candidate for a transplant. I have to be 100% healthy in order to receive the transplant.

Other than being sick, everything else is going well...I did not scratch off my broviac dressing last night for the first time in months!!

Alrighty, I am signing off, thank you for taking the time to read my updates! Talk to you tomorrow!

January 2, 2015

My name is Grant, I am a 10 month old on the transplant list for a small intestine. I was born with short gut syndrome gastroschisis, which means that my organs were formed on the outside of my body due to a hole in my abdominal wall. I was born with less than 10cm of small intestine. Since my body cannot absorb enough fluids and nutrition I get my nutrients from TPN (total parental nutrition). TPN is a solution which contains a mixture of fluids and nutrients, such as protein, fats, sugars, and essential vitamins and minerals. The solutions are given intravenously (through a large vein in my chest and neck into which a catheter, a flexible plastic tube, has been inserted). I am on my TPN for 20 hours a day. After I have my transplant I will no longer need my TPN for feeds, I will be able to eat normally. Other than my gastroschisis I am a happy, loving, energetic baby boy. I travel to Georgetown University Hospital once a week for blood draws and check ups. I also have a home nurse who comes to my house every Monday. I have a physical therapist and a massage therapist who both come twice a month. My birth defect has changed the lives of everyone around me. My Mommy and Nana have learned so much in the past 10 months they could both be doctors! I have so many people who love me so much and they can not wait to see me grow up into an amazing young man!

A transplant of any kind is very expensive and requires a lot of work, so your donations are greatly appreciated and will not go unnoticed! Thank you!