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Jackson Needs You!

Just days before Christmas 2013, at just 18-months-old, Jackson was admitted to Randall Children’s Hospital and rushed into an emergency MRI because his eyelid began to droop. There were more doctor visits, tests and appointments with specialists that spanned three different hospitals and yet, we received no definitive diagnosis. A few months later, our fears subsided when the symptoms disappeared and Jackson returned to his normal, active self. The relief was short-lived when almost a year to the day during Christmas 2014, Jackson’s symptoms returned – only this time they were much worse. This time both of his eyes were affected and he is now starting to lose his vision.

Updates (100)

January 17, 2017

January 6th, 2017

Post sleep study chocolate muffin. Between you, me, and the sleep technician, he did great. Official results will come in a few weeks.

January 17, 2017

January 5th, 2017

Jackson is all hooked up and ready for his final sleep study. Let’s all hope and pray that this is our last overnight visit at the hospital.

He’s being soooooooooo good.

Photo Galleries (2)

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Guestbook

July 7, 2015

I just read your story Jack. Stay strong and keep fighting! God's got you!

Stephanie Word

June 8, 2015

Deena & I are praying for your family

Steve Colson

March 24, 2015

Praying...keep the faith!

joanie, derek's mom :)

March 17, 2015

Auntie loves you so much Jackson! We will get to the bottom of this and get you better! ♡♡♡

Auntie Holly