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Medications to treat MS have very serious side effects, and only slow the progression of the disease. Unfortunately for Lori, these drugs have not been successful and are very expensive, costing upwards of $70,000 per year. Lori is sometimes left immobile, in chronic pain and is very weak and cannot always leave her home. The few drugs that are available to her have very dangerous side effects and can lead to fatal brain infections. Lori is not willing to take that chance.
Despite the challenges and difficult road that Lori has faced, she does have some hope for the future. A promising treatment known as hematopoietic stem cell transplantation (HSCT) has had very positive results for the MS community. This treatment can be very effective and life-changing, and if it works, HSCT can completely halt the progression of MS. If successful, Lori would never have to face the devastating effects of her disease again, and she could once again live a normal and active life. After extensive medical testing to qualify for this treatment, Lori has been accepted into an HSCT program, but her health insurance company is denying payment. Without financial help, Lori will be expected to raise $50,000 and she cannot do this alone. Lori is determined to get back on her feet, but she is asking for your help!
Funding the HSCT procedure is a monumental task. Lori has appealed the decision of her health insurance, however there is no guarantee she will win the battle for payment. Even with health insurance approval, Lori will be faced with many out-of-pocket medical expenses including co-pays and deductibles, lab fees, travel and lodging expenses, anti-rejection medications, and more.
Lori has chosen to fundraise with Help Hope Live in part because Help Hope Live assures fiscal accountability of funds raised and tax deductibility to the full extent allowed by law for donors. Donors can be sure that funds donated will be used only to pay or reimburse medically-related expenses. To make a tax-deductible donation to this fundraising campaign, click on the Donate Now button.
For more information, please contact Help Hope Live at 800.642.8399.
Thank you for your support!
Your support is critical to the overall success of Lori’s struggle. Please know that your contribution counts, and is one step closer to a successful outcome for Lori. Thank you in advance for your generosity.
Thursday, March 1st, I get an MRI to confirm that I have an active lesion! I am in the midst of a MAJOR MS exacerbation which has left me basically in pain 100% of the time and legs which simply are not able to support me. I only need one active lesion to immediately be put on the transplant!!
Praise the Lord!!! Medicare is effective now so once I have money, I can schedule my transplant!!!
I want to say thank you to those who have donated. I don't know who you sweet people are because you donated anonymously, but I want you to know that your gift is appreciated more than I can explain!!
The latest update is that BCBSKC decided that my disease was not life threatening so they will not be covering it. Never mind that their CEO made over 4 million dollars last year. Can't help but wonder if this was because of his denials and the pharmaceutical companies showing him their thanks?
Anyway, I am now going to be receiving social security disability and hoping my Medicare is eligible for use Jan 2017. When it is, I must pay $2,500 for the transplant and cover hotels and food for one month minimum. Chicago hotels near Northwestern Prentice are NOT inexpensive, so please pray about that.
Thank you so very much!!!
Please visit my BLOG at www.loripunchesms.com
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Praying for you Lori!! I'm so sorry you are going through this!!!
Angie Abernathy
Lori, I couldn't be happier for you! It's finally gonna happen! I can't wait until you have HSCT & your MS is stopped!! Praying for fundraising to happen quickly so you can get HSCT sooner! You've been waiting way too long! You deserve this! Love you!
Barb Yoder Coppins
Praying for Lori! ❤️
Jennifer Jordan
We're here for you, Lori!
Jamie Atkinson
Lori,
I know your pain as my brother suffers from the progressive form of MS. I also have a friend who has the relapsing form and has found improvement by following the Wahl Proticol. You can find it online. Dr. Wahl is a female who also has MS and has done much research on the disease. It's a nutritional program.
Prayers for you and your family,
Pam from Shawnee
Dr. Burt is amazing! Sending positive thoughts and prayers. I as well fought with insurance for 6 months while continually getting worse. Don't give up!!!
Andrea
You are in my prayers. Remember, Never, Never Give Up, God is watching and hearing your crystal for help. I am forwarding this on my Facebook page, in hopes there will be others to donate. God Loves You.
Carole Westmoreland Burress
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Lori Carter
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
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