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Crystal Webster unexpectedly fell ill in July 2014 and was diagnosed with Focal Segmental Glomerulo Sclerosis (FSGS). Now 36 years old, she is in kidney failure and must undergo 4 hour dialysis treatments three days a week until a kidney becomes available for transplant. We are asking for everyone’s help in finding a living donor as well donations to help with the out-of-pocket medical expenses related to transplant. Please feel free to share a link, send an email, tell a friend, whatever you can do will always be greatly appreciated.
Crystal, a Hairstylist by trade, is a great candidate for transplant, but the number of people waiting is high and her quality of life and health are being compromised further the longer it takes to get a transplant. Crystal has always been a fighter – tough, hardworking and always perseverant – but fighting this may well take everything we’ve got. Even with insurance, the costs of transplant can be overwhelming. There are many medical expenses not covered such as co-pays, living donor expenses, caregivers, travel for pre and post-transplant medical visits and the costly anti-rejection medications that Crystal will have to take for the rest of her life.
To help with the financial burden of Crystal’s uninsured expenses, a fundraising campaign in her honor has been established with HelpHOPELive, is a trusted Nonprofit Organization that has been providing community-based fundraising guidance to patients and their families for over 30 years. All donations are tax deductible, are held by HelpHOPELive in the South Atlantic Kidney Transplant Fund, and are administered by HelpHOPELive for transplant-related expenses only. Please consider contributing, every little bit helps.
Your support is critical to the overall success of Crystal’s struggle. Please know, no matter how big or small, every contribution counts. On behalf of Crystal, her family, friends and me, we thank you in advance for your kind consideration.
Gratefully,
Steven Wilson, Crystal’s spouse
(704) 369-6916 [email protected]
Great News! Crystal got a healthy kidney and is recovering well. The Doctors are thrilled with her overall progress. We can't thank everyone enough for all of their support, donations, prayers and kind words. She should be back in full swing by 2018 and she is looking and feeling great! We will continue accepting donations here. These funds were always intended to help cover any prescription, doctor or equipment costs insurance won't cover (which is currently changing as we speak). We are so fortunate to have all of you in our corner. Please reach out with any questions or concerns: Steven - [email protected]
Some good news, but still waiting:
We've completed all the steps necessary to get Crystal back to "active" status on the Donor Recipient list!
As I imagine with all chronic illness/disease, there are good days and bad. Crystal has always had a fighting spirit, but more recently she has been unable to work as often as she would like due to the physical effects of dialysis and the kidney failure itself.
We eagerly anticipate the call that an organ has become available and pray its a good fit/match. It will mean surgery, recovery, time off work, new meds. It won't be easy, but it truly can't come soon enough.
As always, thank every one of you that has donated, shared links, said prayers or just said a kind word. We truly appreciate everyone's kindness and certainly understand most of you have your individual struggles as well. Times are not easy & things are not cheap, which is why even a dollar or two still means a lot. Because most people do not have it to spare. They will give it out of kindness, but go without something else. Generosity. Philanthropy. Acts of kindness, even on the smallest level, can truly make a huge difference, have a huge impact on someone's current outlook, or possibly the rest of their life.
That is huge. That is something we should teach, encourage and reward more. Not greed, giving. Not hate, loving. Not me, us. Not why, how.
Hey everyone! Just a quick update. Crystal's 2nd fistula port (right arm this round) is healing well. She's been so tough thru it all (returning to work a week after surgery.) We have an appointment mid-July to get the port examined and cleared for use, at which point she can have the perm-cath removed (again).
We are also VERY close to getting her back as "active" on the transplant list. Please continue to send prayers & wishes of wellness. Donations are still being accepted @ Help Hope Live for Crystal Lynn Webster.
Thank you all again, from the bottom of our hearts. We truly appreciate everyone's support.
Wanted to give a quick update. A potential donor has gone through a majority of the screenings and looks like she is a good match for transplant. We are very hopeful at this stage and endlessly thankful for being one step closer to getting Crystal back in good health. Thankful as well for all of the prayers and continued support we've gotten through discovering and coping with her illness. We are still accepting donations, which are going to a trustworthy source, will be tax deduct-able and go specifically to medical and transplant-related costs not normally covered by insurance alone. Please help us spread the word and donate if you can. We will keep everyone posted when we find out more.
The National Kidney Foundation's Kidney Walk is happening Sat. May 9th, 2015 at Knights Stadium in uptown Charlotte. Check-in at 10pm, Walk at 11pm. Walkers and volunteers can register at kidneywalk.org.
Make checks payable to:
Help Hope Live
Note in memo:
In honor of Crystal L Webster
Mail to:
Help Hope Live
2 Radnor Corporate Center
Suite 100
100 Matsonford Road
Radnor, PA 19087
Donor preference is important to us. Please specify in writing if you wish for your name or donation amount to be kept private.
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