Dear Friends and Family,
Breathing is something most people take for granted, however, for a person living with cystic fibrosis every breath is a chore. Cystic fibrosis is a genetic disease that causes thicker than normal mucus to clog airways and cause infection. After repeated infections and scar tissue buildup, the lungs decline in function and will eventually fail. I have lived with this disease all of my life. Despite 26 years of fighting to stay healthy with daily breathing treatments and repeated rounds of IV antibiotics, my lungs are failing. For me, once simple tasks now require a great deal of energy and effort. Supplemental oxygen is now a 24/7 requirement. Although not without risk, a double lung transplant seems to be my final and only option.
December 3, 2009
Photographer documents struggle with cystic fibrosis w/ slide show and link to National Transplant Assistance Fund page
The Joplin Globe – November 25, 2009
December 3, 2009
Local Man Awaits Lung Transplant
The Neosho Daily News – Sun Nov 08, 2009
Photo Galleries (3)
July 11, 2010
Curtis-wonderful to see that you reached your goal! Best wishes to you and yours.
Jade King, Neosho
May 31, 2010
My name is David and was "introduced" to your name by the staff at the Heart Institute Pulmonary Rehab center in Joplin. I began rehab there in May after being diagnosed with Interstitial Lung Disease and will begin appointments in June at Barnes-Jewish to discuss the possibility of Lung transplant. It is always inspiring to hear stories of people like yourself who have been given new life after long years of suffering with a disease. I hope that your recovery is going well and that your days are getting easier and easier. This process for me is new and I spend a lot of time researching and reading. If you were to ever have any advice for me, I would surely appreciate it. I can be found in the Joplin phone book or you can email me at [email protected] Once again, I hope that you are doing well!!
David Meinershagen-Webb City, MO
February 16, 2010
Hi my name is Cara and I didnt know much about CF. I am glad I came upon this website. I have a friend with a baby that has it and it just makes you think how short life can be and what we need to do to help make changes in other peoples lives before our own. I hope your transplant happens and goes well for you, I am just sorry that anyone has these kind of problems and so young. Keep your chin up and it will happen for you.
Praying for you...Cara Missouri
December 25, 2009
Curtis, We are so thankful for your Christmas miracle. I hope your recovery goes well. You and your family continue to be in our prayers.
Dana, Kevin, Jared & Kelsey Sanders, Joplin, MO